Literature DB >> 28513617

The perceived impact of the European registration system for genetic counsellors and nurses.

Milena Paneque1,2,3, Ramona Moldovan3,4, Christophe Cordier3,5, Clara Serra-Juhé3,6,7, Irene Feroce3,8, Sara Pasalodos3,9, Emmanuelle Haquet3,10, Debby Lambert3,11, Inga Bjørnevoll3,12, Heather Skirton3,13.   

Abstract

The aim of the European Board of Medical Genetics has been to develop and promote academic and professional standards necessary in order to provide competent genetic counselling services. The aim of this study was to explore the impact of the European registration system for genetic nurses and counsellors from the perspectives of those professionals who have registered. Registration system was launched in 2013. A cross-sectional, online survey was used to explore the motivations and experiences of those applying for, and the effect of registration on their career. Fifty-five Genetic Nurses and Counsellors are registered till now, from them, thirty-three agreed to participate on this study. The main motivations for registering were for recognition of their work value and competence (30.3%); due to the absence of a registration system in their own country (15.2%) and the possibility of obtaining a European/international certification (27.3%), while 27.3% of respondents registered to support recognition of the genetic counselling profession. Some participants valued the registration process as an educational activity in its own right, while the majority indicated the greatest impact of the registration process was on their clinical practice. The results confirm that registrants value the opportunity to both confirm their own competence and advance the genetic counselling profession in Europe.

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Year:  2017        PMID: 28513617      PMCID: PMC5558176          DOI: 10.1038/ejhg.2017.84

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN: 1018-4813            Impact factor:   4.246


  11 in total

1.  A profile of the genetic counsellor and genetic nurse profession in European countries.

Authors:  Cristophe Cordier; Debby Lambert; Marie-Antoinette Voelckel; Ulrika Hosterey-Ugander; Heather Skirton
Journal:  J Community Genet       Date:  2011-12-14

2.  Genetic counsellors: a registration system to assure competence in practice in the United kingdom.

Authors:  Heather Skirton; Lauren Kerzin-Storrar; Christine Patch; Chris Barnes; Penny Guilbert; Claire Dolling; Ann Kershaw; Elizabeth Baines; Dianne Stirling
Journal:  Community Genet       Date:  2003

3.  The establishment of core competencies for canadian genetic counsellors: validation of practice based competencies.

Authors:  Raechel Ann Ferrier; Mary Connolly-Wilson; Jennifer Fitzpatrick; Sonya Grewal; Laura Robb; Julie Rutberg; Margaret Lilley
Journal:  J Genet Couns       Date:  2013-09-14       Impact factor: 2.537

Review 4.  Genetics in health care: an overview of current and emerging models.

Authors:  R N Battista; I Blancquaert; A-M Laberge; N van Schendel; N Leduc
Journal:  Public Health Genomics       Date:  2011-07-02       Impact factor: 2.000

5.  The role and practice of the genetic nurse: report of the AGNC Working Party.

Authors:  H Skirton; C Barnes; G Curtis; J Walford-Moore
Journal:  J Med Genet       Date:  1997-02       Impact factor: 6.318

6.  Genetic counseling training and certification in Australasia.

Authors:  A R McEwen; M A Young; S A Wake
Journal:  J Genet Couns       Date:  2013-01-25       Impact factor: 2.537

7.  A study of the practice of individual genetic counsellors and genetic nurses in Europe.

Authors:  Heather Skirton; Christophe Cordier; Debby Lambert; Ulrika Hosterey Ugander; Marie-Antoinette Voelckel; Anita O'Connor
Journal:  J Community Genet       Date:  2012-09-28

Review 8.  The role of the genetic counsellor: a systematic review of research evidence.

Authors:  Heather Skirton; Christophe Cordier; Charlotta Ingvoldstad; Nicolas Taris; Caroline Benjamin
Journal:  Eur J Hum Genet       Date:  2014-06-11       Impact factor: 4.246

9.  Expansion of genetic services utilizing a general genetic counseling clinic.

Authors:  V L Hannig; M P Cohen; J P Pfotenhauer; M D Williams; T M Morgan; J A Phillips
Journal:  J Genet Couns       Date:  2013-05-31       Impact factor: 2.537

10.  Development of a registration system for genetic counsellors and nurses in health-care services in Europe.

Authors:  Milena Paneque; Ramona Moldovan; Christophe Cordier; Clara Serra-Juhé; Irene Feroce; Debby Lambert; Inga Bjørnevoll; Heather Skirton
Journal:  Eur J Hum Genet       Date:  2015-11-04       Impact factor: 4.246

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  4 in total

1.  The role of the Genetic Counsellor in the multidisciplinary team: the perception of geneticists in Europe.

Authors:  Francesca Catapano; Mohamed El Hachmi; Natacha Ketterer-Heng; Alessandra Renieri; Francesca Mari; Michael Morris; Christophe Cordier
Journal:  Eur J Hum Genet       Date:  2022-10-05       Impact factor: 5.351

Review 2.  The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.

Authors:  Nick Dragojlovic; Kennedy Borle; Nicola Kopac; Ursula Ellis; Patricia Birch; Shelin Adam; Jan M Friedman; Amy Nisselle; Alison M Elliott; Larry D Lynd
Journal:  Genet Med       Date:  2020-06-24       Impact factor: 8.822

3.  The genetic counseling profession in Austria: Stakeholders' perspectives.

Authors:  Gunda Schwaninger; Caroline Benjamin; Sabine Rudnik-Schöneborn; Johannes Zschocke
Journal:  J Genet Couns       Date:  2021-04-02       Impact factor: 2.537

Review 4.  The Global State of the Genetic Counseling Profession.

Authors:  MaryAnn Abacan; Lamia Alsubaie; Kristine Barlow-Stewart; Beppy Caanen; Christophe Cordier; Eliza Courtney; Emeline Davoine; Janice Edwards; Niby J Elackatt; Kate Gardiner; Yue Guan; Lian-Hua Huang; Charlotta Ingvoldstad Malmgren; Sahil Kejriwal; Hyon J Kim; Deborah Lambert; Paulina Araceli Lantigua-Cruz; Juliana M H Lee; Marianne Lodahl; Åshild Lunde; Shelley Macaulay; Ivan Macciocca; Sonia Margarit; Anna Middleton; Ramona Moldovan; Joanne Ngeow; Alexandra J Obregon-Tito; Kelly E Ormond; Milena Paneque; Karen Powell; Kunal Sanghavi; Diana Scotcher; Jenna Scott; Clara Serra Juhé; Shiri Shkedi-Rafid; Tina-Marié Wessels; Sook-Yee Yoon; Catherine Wicklund
Journal:  Eur J Hum Genet       Date:  2018-10-05       Impact factor: 4.246

  4 in total

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