Literature DB >> 28510049

Education for fathers about newborn screening and leftover dried blood spots.

Erin Rothwell1, Bob Wong2, Erin Johnson2, Jeffrey R Botkin2.   

Abstract

The purpose of this research was to assess the impact of an educational intervention on paternal knowledge, attitudes, and support about newborn screening (NBS) and dried blood spots (DBS). Participants (n = 147) were randomized into one of two groups. The results from this study indicated that video education tools about NBS and DBS is associated with significantly increased knowledge, support, and satisfaction for both NBS and research use of DBS and an opt-out consent approach for DBS among fathers.

Entities:  

Year:  2017        PMID： 28510049      PMCID： PMC5496843          DOI： 10.1007/s12687-017-0305-9

Source DB:  PubMed          Journal:  J Community Genet        ISSN： 1868-310X


  5 in total

1.  Web surveys: a review of issues and approaches.

Authors:  M Couper
Journal:  Public Opin Q       Date:  2000

2.  Recommendations for effective newborn screening communication: results of focus groups with parents, providers, and experts.

Authors:  Terry C Davis; Sharon G Humiston; Connie L Arnold; Joseph A Bocchini; Pat F Bass; Estela M Kennen; Anna Bocchini; Penny Kyler; Michele Lloyd-Puryear
Journal:  Pediatrics       Date:  2006-05       Impact factor: 7.124

3.  What parents want to know about the storage and use of residual newborn bloodspots.

Authors:  Jeffrey R Botkin; Erin Rothwell; Rebecca A Anderson; Aaron Goldenberg; Miriam Kuppermann; Siobhan M Dolan; Nancy C Rose; Louisa Stark
Journal:  Am J Med Genet A       Date:  2014-08-04       Impact factor: 2.802

4.  Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.

Authors:  Jeffrey R Botkin; Erin Rothwell; Rebecca A Anderson; Nancy C Rose; Siobhan M Dolan; Miriam Kuppermann; Louisa A Stark; Aaron Goldenberg; Bob Wong
Journal:  JAMA Pediatr       Date:  2016-06-01       Impact factor: 16.193

5.  The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots.

Authors:  Erin Rothwell; Bob Wong; Rebecca A Anderson; Jeffrey R Botkin
Journal:  J Empir Res Hum Res Ethics       Date:  2016-07-06       Impact factor: 1.742
  5 in total
  1 in total

1.  Newborn Screening Knowledge and Attitudes Among Midwives and Out-of-Hospital-Birth Parents.

Authors:  Elena Coupal; Kim Hart; Bob Wong; Erin Rothwell
Journal:  J Perinat Neonatal Nurs       Date:  2020 Oct/Dec       Impact factor: 2.522
  1 in total

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