Literature DB >> 28502571

Opening Life's Gifts: Facing Death for a Second Time.

Judith L Hold, Barbara J Blake, Michelle Byrne, Michael Varga.   

Abstract

Prior to the development of effective antiretroviral therapy, persons diagnosed with HIV thought they were going to die. Now, long-term survivors are contemplating death again as they age and develop other chronic diseases. The purpose of our study was to understand the experiences of adults living with HIV for 20 or more years as they faced death for a second time. Hermeneutic phenomenology guided the research as participants shared their lived experience through storytelling. Each person's story was audiotaped and transcribed verbatim. Transcript analysis occurred as data were collected. Three common themes from the narratives were identified: Making Choices, Transformation of Fear, and Meaning of Death. Positive and negative pathways influenced each participants' decision-making. Over time, fear of dying was transformed and energy was directed toward living. Even though the participants in this study were facing death again, they recognized it as a natural part of life. Published by Elsevier Inc.

Entities:  

Keywords:  HIV; death; phenomenology

Mesh:

Year:  2017        PMID: 28502571     DOI: 10.1016/j.jana.2017.03.011

Source DB:  PubMed          Journal:  J Assoc Nurses AIDS Care        ISSN: 1055-3290            Impact factor:   1.354


  3 in total

Review 1.  End-of-Life Care and Bereavement Issues in Human Immunodeficiency Virus-AIDS.

Authors:  Karl Goodkin; Sindhura Kompella; Steven F Kendell
Journal:  Nurs Clin North Am       Date:  2018-03       Impact factor: 1.208

2.  Perceptions of Next-of-Kin/Loved Ones About Last Gift Rapid Research Autopsy Study Enrolling People with HIV/AIDS at the End of Life: A Qualitative Interview Study.

Authors:  Karine Dubé; Hursch Patel; Susan Concha-Garcia; Kelly E Perry; Kushagra Mathur; Sogol Stephanie Javadi; Jeff Taylor; Andy Kaytes; Brandon Brown; John A Sauceda; Susan Little; Steven Hendrickx; Stephen A Rawlings; Davey M Smith; Sara Gianella
Journal:  AIDS Res Hum Retroviruses       Date:  2020-06-25       Impact factor: 2.205

3.  "[It] is now my responsibility to fulfill that wish:" Clinical and rapid autopsy staff members' experiences and perceptions of HIV reservoir research at the end of life.

Authors:  Kelly E Perry; Jeff Taylor; Hursch Patel; Sogol Stephanie Javadi; Kushagra Mathur; Andy Kaytes; Susanna Concha-Garcia; Susan Little; Davey Smith; Sara Gianella; Karine Dubé
Journal:  PLoS One       Date:  2020-11-18       Impact factor: 3.240

  3 in total

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