M Victoria Navarta-Sánchez1, Neus Caparrós2, Mario Riverol Fernández3, Sara Díaz De Cerio Ayesa4, M Eugenia Ursúa Sesma5, Mari Carmen Portillo6. 1. Faculty of Nursing, University of Navarre, Pamplona, Navarre, Spain. 2. Faculty of Law and Social Sciences, University of La Rioja, Logroño, La Rioja, Spain. 3. Department of Neurology, Clínica Universidad de Navarra, Pamplona, Navarre, Spain. 4. Navarre Association of Parkinson's patients, Pamplona, Navarre, Spain. 5. San Juan Primary Health Centre, Navarre Service of Health-Osasunbidea, Pamplona, Navarre, Spain. 6. NIHR CLAHRC WESSEX, Faculty of Health Sciences, University of Southampton, Southampton, Hampshire, UK.
Abstract
AIMS: The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease. BACKGROUND: Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills. DESIGN: A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented. METHODS: Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers. FINDINGS: The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed. CONCLUSION: Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long-term conditions.
AIMS: The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease. BACKGROUND: Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills. DESIGN: A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented. METHODS: Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers. FINDINGS: The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed. CONCLUSION: Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long-term conditions.
Authors: M V Navarta-Sánchez; M E Ursua; M Riverol Fernández; L Ambrosio; M Medina; S Díaz de Cerio; M J Álvarez; J M Senosiain; A Gorraiz; N Caparrós; S Anaut; R Martín-Lanas; M Recio; M C Portillo Journal: BMC Fam Pract Date: 2018-04-05 Impact factor: 2.497
Authors: Annette O A Plouvier; Tim C Olde Hartman; Anne van Litsenburg; Bastiaan R Bloem; Chris van Weel; Antoine L M Lagro-Janssen Journal: Eur J Gen Pract Date: 2018-12 Impact factor: 1.904
Authors: Mari Carmen Portillo; Leire Ambrosio; Raquel Lanas Martín; Maria Victoria Navarta; MEugenia Ursua Sesma; Mario Riverol Fernández Journal: Nurs Open Date: 2019-07-01
Authors: Annelien Duits; Colin van der Heijden; Masja van Het Hoofd; Gabriel Roodbol; Mark Tiemessen; Marten Munneke; Maxime Steppe Journal: Clin Park Relat Disord Date: 2020-07-03
Authors: María Cristina Lopes Dos Santos; María Victoria Navarta-Sánchez; José Antonio Moler; Ignacio García-Lautre; Sagrario Anaut-Bravo; Mari Carmen Portillo Journal: Parkinsons Dis Date: 2020-04-28