Literature DB >> 28489224

Current Concepts of Transition of Care in Cystic Fibrosis.

Ajanta Patel, Maria Dowell, B Louise Giles.   

Abstract

Over the past 6 decades, advances in cystic fibrosis (CF) diagnosis and management have extended the life expectancy of patients far beyond childhood; therefore, all pediatric CF patients must prepare for transition to adult care. Readiness assessment, knowledge and skill education, and support structures are all elements of ideal transition. Transition should begin early in life with teaching skills and knowledge for disease care, and in adolescence the readiness to transition should be addressed. Transition is a gradual process of increasing responsibilities in self-care and disease management, an improvement in the understanding of CF, and an iterative process of self-assessment with knowledge acquisition. Communication and collaboration between pediatric and adult providers is necessary to ensure a smooth and successful transition with minimum effect on outcomes. Although there is increased knowledge of successful transition practices, this area presents many opportunities for advancement of care for the patient with CF. [Pediatr Ann. 2017;46(5):e188-e192.]. Copyright 2017, SLACK Incorporated.

Entities:  

Mesh:

Year:  2017        PMID: 28489224     DOI: 10.3928/19382359-20170425-02

Source DB:  PubMed          Journal:  Pediatr Ann        ISSN: 0090-4481            Impact factor:   1.132


  5 in total

Review 1.  Challenges in Transition of Care for Pediatric Patients after Weight-Reduction Surgery: a Systematic Review and Recommendations for Comprehensive Care.

Authors:  Sarah B Cairo; Indrajit Majumdar; Aurora Pryor; Alan Posner; Carroll M Harmon; David H Rothstein
Journal:  Obes Surg       Date:  2018-04       Impact factor: 4.129

2.  Hospital Readmission of Adolescents and Young Adults With Complex Chronic Disease.

Authors:  Peter Dunbar; Matt Hall; James C Gay; Clarissa Hoover; Jessica L Markham; Jessica L Bettenhausen; James M Perrin; Karen A Kuhlthau; Morgan Crossman; Brigid Garrity; Jay G Berry
Journal:  JAMA Netw Open       Date:  2019-07-03

3.  Controlled evaluation of a transition clinic for Dutch young people with cystic fibrosis.

Authors:  Mariëlle A C Peeters; Jane N T Sattoe; AnneLoes van Staa; Simone E Versteeg; Inge Heeres; Niels W Rutjes; Hettie M Janssens
Journal:  Pediatr Pulmonol       Date:  2019-08-19

4.  A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings.

Authors:  Sarah B Rutland; Rikard Palmer Bergquist; Andreas Hager; Robin Geurs; Cathy Mims; Hector H Gutierrez; Gabriela R Oates
Journal:  JMIR Form Res       Date:  2021-01-26

5.  Gaps in transition readiness measurement: a comparison of instruments to a conceptual model.

Authors:  Katherine South; Maureen George; Arlene Smaldone
Journal:  J Transit Med       Date:  2022-07-12
  5 in total

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