Mia Nelson1, Daniel Kelly2, Rachel McAndrew3, Pam Smith4. 1. School of Health in Social Science, The University of Edinburgh, Medical School, Teviot Place, Edinburgh, EH8 9AG, United Kingdom. Electronic address: mia.nelson@ed.ac.uk. 2. School of Healthcare Sciences, Cardiff University, Heath Park Campus, Cardiff, CF14 4XN, United Kingdom. Electronic address: KellyDM@cardiff.ac.uk. 3. Dpt Paediatric Oncology, Royal Hospital for Sick Children, Edinburgh, 9 Sciennes Road, Edinburgh, EH9 1LF, United Kingdom. Electronic address: rachel.mcandrew@nhslothian.scot.nhs.uk. 4. School of Health in Social Science, The University of Edinburgh, Medical School, Teviot Place, Edinburgh, EH8 9AG, United Kingdom. Electronic address: Pam.Smith@ed.ac.uk.
Abstract
OBJECTIVE: To explore recipients' perspectives on the range and origins of their emotional experiences during their 'bad news' consultations. METHODS: Participants were four bereaved families of children who had changed from active treatment to palliative care in paediatric oncology. Data was collected using emotional touchpoint storytelling. The names (descriptors) given to the emotional experiences were linguistically classified. Explanations of their perceived origins were examined using applied thematic analysis. RESULTS: 26 descriptors were given, relating to bodily sensations, affective states, evaluations and cognitive conditions. Three themes were identified in the origins of these experiences - 'becoming aware', 'the changes' and 'being in this situation'. Parents described strong emotional displays during the consultation including physical collapse. These related to the internal process of 'becoming aware'. Three descriptors were given as originating from the clinicians and their delivery of the news - 'supported', 'included', 'trusting'. CONCLUSIONS: Recipients perceive their emotional experiences as mainly originating from the news itself, and perceived consequences of it, rather than its delivery. Strong emotional reactions during the interaction are not necessarily an indicator of ineffectual delivery. PRACTICE IMPLICATIONS: Findings offer a thematic framing that may support and deepen practitioners understanding of recipients' emotional reactions during bad news consultations. Crown
OBJECTIVE: To explore recipients' perspectives on the range and origins of their emotional experiences during their 'bad news' consultations. METHODS:Participants were four bereaved families of children who had changed from active treatment to palliative care in paediatric oncology. Data was collected using emotional touchpoint storytelling. The names (descriptors) given to the emotional experiences were linguistically classified. Explanations of their perceived origins were examined using applied thematic analysis. RESULTS: 26 descriptors were given, relating to bodily sensations, affective states, evaluations and cognitive conditions. Three themes were identified in the origins of these experiences - 'becoming aware', 'the changes' and 'being in this situation'. Parents described strong emotional displays during the consultation including physical collapse. These related to the internal process of 'becoming aware'. Three descriptors were given as originating from the clinicians and their delivery of the news - 'supported', 'included', 'trusting'. CONCLUSIONS: Recipients perceive their emotional experiences as mainly originating from the news itself, and perceived consequences of it, rather than its delivery. Strong emotional reactions during the interaction are not necessarily an indicator of ineffectual delivery. PRACTICE IMPLICATIONS: Findings offer a thematic framing that may support and deepen practitioners understanding of recipients' emotional reactions during bad news consultations. Crown
Authors: Sarah Mitchell; Karina Bennett; Andrew Morris; Anne-Marie Slowther; Jane Coad; Jeremy Dale Journal: Palliat Med Date: 2019-08-21 Impact factor: 4.762
Authors: Jennifer Cooper; Huw Williams; Peter Hibbert; Adrian Edwards; Asim Butt; Fiona Wood; Gareth Parry; Pam Smith; Aziz Sheikh; Liam Donaldson; Andrew Carson-Stevens Journal: Bull World Health Organ Date: 2018-04-23 Impact factor: 9.408