Marieke Groot1,2, Anne F Ebenau1,2, Helen Koning1, Anja Visser1,3, Carlo Leget4, Hanneke W M van Laarhoven5, René van Leeuwen6, Riet Ruben7, Marijke Wulp8, Bert Garssen1,9. 1. Helen Dowling Institute for Psycho-Oncological Care, Bilthoven, The Netherlands. 2. Department of Anesthesiology, Pain and Palliative Care, Radboud University Medical Center, Nijmegen, The Netherlands. 3. Faculty of Theology and Religious Studies, Comparative Study of Religion, University of Groningen, Groningen, The Netherlands. 4. Ethics of Care and Spiritual Counselling Sciences, University of Humanistic Studies (UvH), Utrecht, The Netherlands. 5. Translational Medical Oncology, University of Amsterdam (AMC/VUMC), Amsterdam, The Netherlands. 6. Healthcare and Spirituality, Faculty of Health Care, Reformed University of Applied Science (VIAA), Zwolle, The Netherlands. 7. Hospital Gelderse Vallei (ZGV), Ede, The Netherlands. 8. AGORA, Bunnik, The Netherlands. 9. Department Health Psychology, Rijksuniversiteit Groningen, Groningen, The Netherlands.
Abstract
AIM: To gain insight into the quantity and quality of spiritual care provided by nurses in curative cancer care, from the perspectives of both patients and nurses. BACKGROUND: Cancer causes patients to suffer from diverse symptoms related to their illness. Nurses play an important role in the care for people with cancer. Next to paying attention to physical and psychosocial needs, caring for spiritual needs of patients also belongs to good nursing. Most of the research concerning spirituality and spiritual care in relation to cancer has focused on palliative care. DESIGN: A mixed methods design will be used in two sub-phases. First, we will conduct semi-structured interviews with 72-90 patients coming from nine hospitals. Subsequently, approximately the same number of nurses working on oncology wards of these hospitals will be interviewed. METHODS: We meticulously composed both interview guides so that only near the end of the interview explicit terms like spirituality and spiritual care are explicitly mentioned. Until that point, we will use other words to define the concepts. Next to the interviews, demographics, answers to some statements and several questionnaires will be gathered. Content analysis supported by DEDOOSE will be used to answer the research questions. DISCUSSION: The insight we will gain in this study enables us to compare experiences from the perspective of both patients and nurses. This can also provide us with suggestions for the improvement of nursing care for people with cancer who are treated with curative intent, a topic until now hardly addressed.
AIM: To gain insight into the quantity and quality of spiritual care provided by nurses in curative cancer care, from the perspectives of both patients and nurses. BACKGROUND:Cancer causes patients to suffer from diverse symptoms related to their illness. Nurses play an important role in the care for people with cancer. Next to paying attention to physical and psychosocial needs, caring for spiritual needs of patients also belongs to good nursing. Most of the research concerning spirituality and spiritual care in relation to cancer has focused on palliative care. DESIGN: A mixed methods design will be used in two sub-phases. First, we will conduct semi-structured interviews with 72-90 patients coming from nine hospitals. Subsequently, approximately the same number of nurses working on oncology wards of these hospitals will be interviewed. METHODS: We meticulously composed both interview guides so that only near the end of the interview explicit terms like spirituality and spiritual care are explicitly mentioned. Until that point, we will use other words to define the concepts. Next to the interviews, demographics, answers to some statements and several questionnaires will be gathered. Content analysis supported by DEDOOSE will be used to answer the research questions. DISCUSSION: The insight we will gain in this study enables us to compare experiences from the perspective of both patients and nurses. This can also provide us with suggestions for the improvement of nursing care for people with cancer who are treated with curative intent, a topic until now hardly addressed.
Authors: Anne Ebenau; Marieke Groot; Anja Visser; Hanneke W M van Laarhoven; René van Leeuwen; Bert Garssen Journal: Scand J Caring Sci Date: 2019-05-16