| Literature DB >> 28471507 |
Marie-Claude Tremblay1, Debbie H Martin2, Ann C Macaulay3, Pierre Pluye3.
Abstract
A long-standing challenge in community-based participatory research (CBPR) has been to anchor practice and evaluation in a relevant and comprehensive theoretical framework of community change. This study describes the development of a multidimensional conceptual framework that builds on social movement theories to identify key components of CBPR processes. Framework synthesis was used as a general literature search and analysis strategy. An initial conceptual framework was developed from the theoretical literature on social movement. A literature search performed to identify illustrative CBPR projects yielded 635 potentially relevant documents, from which eight projects (corresponding to 58 publications) were retained after record and full-text screening. Framework synthesis was used to code and organize data from these projects, ultimately providing a refined framework. The final conceptual framework maps key concepts of CBPR mobilization processes, such as the pivotal role of the partnership; resources and opportunities as necessary components feeding the partnership's development; the importance of framing processes; and a tight alignment between the cause (partnership's goal), the collective action strategy, and the system changes targeted. The revised framework provides a context-specific model to generate a new, innovative understanding of CBPR mobilization processes, drawing on existing theoretical foundations.Entities:
Keywords: Collective action; Community-based participatory research; Health promotion; Process evaluation; Program evaluation; Social movements
Mesh:
Year: 2017 PMID: 28471507 PMCID: PMC5518203 DOI: 10.1002/ajcp.12142
Source DB: PubMed Journal: Am J Community Psychol ISSN: 0091-0562
Figure 1The initial conceptual framework represents a graphic summary of key concepts of social movement theories and their relationships.
Description of the a priori themes from the initial conceptual framework
| Themes/Categories | Descriptions |
|---|---|
| Organizational base | Organizations instrumental to the movement's creation and collective action (involving organizations, coalitions, leaders or spokespersons, members) |
| Cause | Agenda of the movement formalized in a framing discourse around a collective discontent |
| Collective action strategy | General action strategy used by the movement, targets, and level of action (policy, organizations, individuals) |
| Interpretative frame | In negotiation among movement adherents, collectively constructed frames to define a problematic situation in need of change, to articulate a solution, to raise awareness or motivate others to take action or garner support, and to demobilize antagonists |
| Opportunities | Structural changes and power shifts (mostly political) that are crucial to a movement's creation, infrastructure building, and resources mobilization |
| Resources | Tangible and intangible assets used by the movement to carry out its action, brought by organizations and individuals |
| Policy, social, or cultural changes | Changes achieved as a result of the movement's action, also include new capacities and new possibilities of action for groups and people engaged |
| Stage 1 | Emergence: Beginning of the movement and building of movement's infrastructure in response to a general discontent over an issue |
| Stage 2 | Coalescence: Development of the movement's identity and vision, the movement becomes more organized and strategic |
| Stage 3 | The movement's moment: Implementation of the movement's collective action, the movement shows a high political power and a strong level of organization |
| Stage 4 | Decline or consolidation: The movement fails and dissipates, or achieves its goals and sustains itself |
Eligibility criteria
| Identification criteria of bibliographic records | Selection criteria of full‐text papers |
|---|---|
| 1. Does the citation indicate primary participatory research? | 1. Does the full‐text paper describe a participatory project showing high level of involvement/partnership with non‐academic partners, in at least two phases of the research, such as: (a) identifying or setting the research questions; (b) setting the methodology or collecting data or analyzing the data; (c) uptake or dissemination of the research findings. |
| 2. Does the citation indicate a health‐related intervention component to the research? | 2. Does the full‐text paper still indicate a health‐related intervention/action component, in balance with the research component? (i.e., An intervention component aiming to promote or improve health has to be an integral part of the research) |
| 3. Does the citation indicate a community setting? | 3. Does the full‐text paper still describe a community setting and community change targets? (i.e., A project aiming at environmental and system changes in the community) |
| 4. Does the citation indicate some form of description or information about the CBPR process? | 4. Does the full‐text paper describe a sustainable project, involving long‐term commitment from the partners and sustainability aspects such as spinning‐offs or institutionalization of effective strategies, incorporation or successful fund raising after the project? |
| 5. Does the citation indicate a paper in English? | 5. Does the full‐text paper provide enough description of the participatory research process or development? |
Figure 2The search yielded 635 potentially relevant bibliographic records after de‐duplication. Following screening, 60 records met our criteria. Full‐text screening reduced the pool to eight articles, corresponding to eight specific CBPR projects. With companion papers and project‐related documents, the final dataset consisted of 58 documents.
Description of final themes
| Themes/Categories | Description | Dimensions, examples |
|---|---|---|
| Context | Aspects of the context that play a crucial role in the emergence of the problem, the availability of opportunities and resources from which the partnership form and develop, as well as in framing processes | Aspects of context:
Social context Political context Historical context Economical context |
| Problem | A concerning and pre‐existing health or social problem that is experienced by the community, gives birth to and justifies the partnership | Range of problems:
General health status Specific health condition or disease Problematic health behaviors Problematic health determinants or exposure |
| Partnership | A formal partnership between academic and community partners that plays a central and catalytic role in the mobilization process, often with the addition of other partners and the community at large in the action phase | Types of partners:
a researcher or a group of researchers; a pre‐existing community organization; a community–academic research organization; a coalition of organizations; a local health department; a group of grassroots community members. |
| Cause | Programmatic goal of a partnership, enclosing a representation of the problem, strategically and collaboratively defined to reach and mobilize community members | Range of causes:
To reduce the incidence or prevalence of a specific disease or health condition; To act on an health‐deleterious situation; To promote health generally |
| Collective action strategy | A general line of action followed by the partnership to accomplish or achieve its goal | Levels of collective action:
Systemic/environmental:
To address social, physical, institutional, and political determinants of health or specific health conditions; Individual:
To address individual determinants of health or health conditions (behaviors, knowledge, beliefs) |
| Framing processes | Collaborative and strategic interpretative construction processes that define the cause of the partnership, raise awareness of the cause in the community, and define an action to address the problem | Roles of the framing process:
Define the cause of the partnership Raise awareness of the cause Define a collective action
Health as a complex issue; Health as a political issue; Health as a structural issue; Health as a social/environmental justice issue |
| Opportunities | Temporal and contextual circumstances that have prompted the partnership's formation and building | Types of opportunities:
Internal opportunities
Former relationships or collaboration between the partners; External opportunities:
Funding opportunities |
| Resources | Assets acquired and used by the partnership to carry out its function | Types of resources:
Intangible resources
Expert, technical, professional skills, and knowledge; Research conducted by the partnership and study results; Previous experience of the problem, the community and the local context; Pre‐existing networks and relationships; Credibility of partners; Local assets of the community; Tangible resources
Funding |
| System an community changes | As a direct outcome of the partnership's work, changes in the social, policy, and physical environments of the community | Types of system/environmental changes:
Social changes, including capacity building and empowerment Physical environment changes Policy changes |
| Stage 1 | Creation of the partnership, with the specific aim of working on a pre‐existing health or social issue. Sometime involves research to document the issue. Implies building on tangible and intangible resources, internal and external opportunities provided by the context. | |
| Stage 2 | Definition of the cause and development of a collective action strategy in view of particular objectives (system changes) and according to research results. Framing processes to define the cause, raise awareness of the cause in the general population, and mobilize further partners and community members in defining or validating an acceptable collective action, taking into account the particular context of the community. Sometime involves research to guide the action. | |
| Stage 3 | Implementation of the collective action strategy, with the help of partners for action, in view of objectives and targeted system changes. | |
| Stage 4 | Continuity of the partnership's action after it has achieved its goal or after the formal end of the partnership (forming a new incorporated organization, incorporating the partnership's priority activities into partner organizations' program, scaling up the implemented program to other levels of action with different partners, furthering participation of the community partners in similar initiatives at higher levels of action). | |
Figure 3The revised conceptual framework proposes a clear picture of CBPR mobilization processes, highlighting key themes and relationships between concepts.
Guideposts for CBPR practice
| Stages | Questions |
|---|---|
| 1 |
What is the pre‐existing health or social problem that is experienced by the community?
(e.g., the general health status of the community, a specific health condition or disease, a problematic health behavior, a problematic health determinants or exposure) What are the elements of the context to take into consideration relating to this problem?
(Social, political, historical, economical context) Could research be relevant to document this problem at this stage? Who are the parties interested by this problem, who could be the principal partners, and how the partnership could be formalized (structure)? What are the opportunities that could be used to build the partnership?
(Internal opportunities: e.g., former relationships or collaboration between the partners) (External opportunities: e.g., funding opportunities)? What are the pre‐existing resources that could be used or acquired by the partners to build the project?
(Intangible resources: e.g., expert, technical, professional skills and knowledge, previous experience of the problem, research results, the community and the local context, pre‐existing networks and relationships, credibility of partners, local assets of the community) (Tangible resources: e.g., funding, office, material) |
| 2 |
What frame and strategy will be used to define the cause, raise awareness, and mobilize partners and community members?
What values are foundational to the partnership or the partnering organizations, the community members? What are the elements of the context to be taken into consideration? (Social, political, historical, economical context) Could research results be useful to raise awareness of the cause in the community? |
|
What is the cause to be addressed by the partnership? What frame and strategy will be used to define the collective action?
What frame has been used to define the cause and to raise awareness? What values are foundational to the partnership, the partnering organizations, and the community members? What are the elements of the context to be taken into consideration? (Social, political, historical, economical context) Could research help in defining a collective action strategy at this stage? What other partners can be mobilized to help in defining a collective action strategy? | |
| 3 |
What is the stated collective action strategy of the partnership? What actions are relevant to achieve this strategy? At which levels?
(Systemic/environmental level: i.e., addressing social, physical, institutional and political, determinants of health, disease, or health condition) (Individual level: i.e., addressing individual determinants of health or health conditions, such as behaviors, knowledge, beliefs) Could research help in defining and implementing alternative action strategies at this stage? What are the elements of the context to be taken into consideration when implementing the collective action? What other partners could be involved in implementing the collective action? How can other partners and community members at large be mobilized by the collective action strategy? How will system changes produced by the partnership's work be assessed? |
| 4 |
What system changes have been achieved as a result of the partnership's action?
(i.e., social changes, physical environment changes, policy changes) Has the partnership's action evolved and continued after the formal end of the partnership? How will sustainability of the partnership's work be ensured after the end of the formal partnership?
(i.e., forming a new incorporated organization, incorporating the partnership's activities into partner organizations' program, scaling up the action to other levels of action with different partners, furthering participation of the community partners in similar initiatives at higher levels of action) |
| Main document | Companion papers and related documents | Name of the intervention/partnership | Website | |
|---|---|---|---|---|
| 1 | Cheatham‐Rojas and Shen ( | 0 | The Long Beach HOPE (Health, Opportunities, Problem‐solving and Empowerment) project (Long Beach, California, US) | Project's spin‐off website (Khmer girls in action): |
| 2 | Fawcett et al. ( | 5 (scientific articles) | The Latino Health for All Coalition (LHFA), (Kansas City, Kansas, US) |
|
| 3 | Gonzalez et al. ( | 8 (4 scientific articles, 4 reports) | The West Oakland Environmental Indicators Project (WOEIP) (West Oakland, California, US) |
|
| 4 | Jernigan et al. ( | 2 (scientific articles) | The Round Valley Community Coalition (Round Valley Reservation, Northern California, US) | |
| 5 | Minkler et al. ( | 3 (1 scientific article and 2 reports) | The Healthy Cities Committee of New Castle Partnership (New Castle, Indiana, US) | Incorporated community partner organization website (Healthy Communities of Henry County): |
| 6 | Nguyen et al. ( | 20 (17 scientific articles and 3 reports) | Vietnamese REACH for Health Initiative (VRHI), (Santa Clara County, California, US) | |
| 7 | Vasquez et al. ( | 5 (2 scientific articles, 2 book chapters, 1 report) | The Earth Crew project (West Harlem, New York, New York, US) | Community partner website: |
| 8 | Vasquez et al. ( | 7 (3 scientific articles, 1 dissertation, 1 book chapter, and 2 report) | The Good Neighbor Program (Bayview Hunters Point, San Francisco, California, US) | Community partner website: |
| Total | 8 main papers | 50 companion papers and project‐related documents | ||
| No | Name of the intervention/partnership | Context | Problem | Original partnership | Cause | Collective action strategy |
|---|---|---|---|---|---|---|
| 1 | The Long Beach HOPE (Health, Opportunities, Problem‐solving and Empowerment) project (Long Beach, California) | Community of approximately 30,000 Cambodians, characterized by a lack of political involvement, low‐paying jobs, unsafe working conditions, and high poverty and welfare rates. The Cambodian community is still suffering from impacts of war and violence in Cambodia and racial profiling in the welfare system | A high rate of sexual harassment in youth | Between a community‐based organization (Asian Communities for Reproductive Justice) including some academic members (postdoc) and community members (HOPE members, i.e., young Cambodian girls) | To involve youth as agents of change in addressing sexual harassment in youth | Empowering youth in addressing systemic and individual challenges to sexual harassment in youth |
| 2 | The Latino Health for All Coalition (LHFA), (Kansas City, Kansas) | Latino residents of Wyandotte County (26.3%), Kansas, mostly first‐generation, low‐income, uninsured, and with low levels of education. Principally of Mexican descent (81%). Latinos living in Kansas City have a life expectancy 11 years shorter than Whites, and are nearly 1½ times more likely to die from diabetes | A high prevalence of diabetes and cardiovascular diseases and related risk factors of unhealthy diets, physical inactivity, and limited access to health services | Between academic partners (University of Kansas's Work Group for Community Health and Development and Juntos Center for Advancing Latino Health at the Kansas University Medical Center) and a community organization (El Centro). (Was later extended to include another 40 + organizations, including community organizations, government agencies, and faith‐based institutions) | To reduce diabetes and cardiovascular disease by promoting healthy nutrition, physical activity, and access to health services among Latinos in Kansas City/Wyandotte County | Drawing on the Health for All model, promote environmental changes through targeted, community‐determined and ‐led interventions at different ecological levels, which will result in behavior changes and consequently improved health outcomes for the community |
| 3 | (WOEIP) (West Oakland, California) | A vibrant community (approx. 22,000 persons) of predominately low‐income African American and Latino residents located on the San Francisco Bay. Bounded by freeways, this community is exposed to thousands of moving and stationary sources of diesel pollution. Important background of social activism in the neighborhood | High youth asthma rates and diesel truck traffic in the neighborhood of West Oakland | Between a research partner (the Pacific Institute) and a community organization (West Oakland Environmental Indicators Project) | To address the neighborhood's disproportionate exposure to diesel truck air pollution | Addressing, through a range of intersecting policy and advocacy efforts, disproportionate pollution exposure in the neighborhood (environmental changes) and increase community participation in decision making |
| 4 | Food security in Round Valley Indian Reservation community (Northern California) | Round Valley is a rural and isolated Indian Reservation in Mendocino County, in Northern California (approx. 4000 persons). The community is characterized by low education and income levels, high unemployment, high rate of obesity and diabetes, but also by progressive values, and community activism. A third of families receive food from a food distribution program. There is no nearby supermarket, only one local grocery store (selling overpriced and packaged foods) and a gas station that sells food. There is a lack of Native‐owned shops or stands at the farmers' market | Food insecurity in the rural Indigenous Reservation of Round Valley | Between an academic partner (the University of California) and a coalition of community organizations (including community leaders, Round Valley Indian Health Center staff, California Indian Health Service representatives) | To identify and address upstream causes of food insecurity in a rural California reservation | Addressing systemic barriers to food access through policies and interventions |
| 5 | Partnership with the Healthy City Committee of New Castle (New Castle, Indiana) | New Castle is a rural town whose automobile industry was central to the economy. The population has declined in recent decades, as a result of declines in the automobile industry. The community uses to help itself and utilizes the resources available; the pre‐existing Healthy City Committee is an example. The community is characterized by a conservative mindset | Low individual health indicators and health behaviors in New Castle, including high rates of smoking, problematic dietary choices, low physical activity, and other | Between an academic partner (Indiana University's School of Nursing) and a community organization (the Healthy City Committee of New Castle) | To promote healthier lifestyle in New Castle | “Making the healthy choice the easy choice” through a variety of environmental (‘small p policy’) changes. |
| 6 | Vietnamese REACH for Health Initiative (VRHI) Coalition, (Santa Clara County, California) | The Vietnamese community of Santa Clara County, California (102,841) is a large community with churches, pagodas, stores, restaurants, health providers, and community‐based organizations. Almost all Vietnamese‐Americans arrived as refugees after 1975, when the Vietnam War ended, and resulted for many in changes in socioeconomic status. Many households remain linguistically isolated. The main barrier to health remains access to affordable and culturally appropriate care. This community has many low‐income immigrants, but also an educated and acculturated pool of professionals with a strong ethnic identity | A high rate of cervical cancer in Vietnamese‐American women in general | The Vietnamese REACH for Health Initiative (VRHI) Coalition which was formed through a partnership between a community–academic research organization (Vietnamese Community Health Promotion Project, University of California) and a number of community organizations (including the Department of Public Health, health care organizations or organizations serving low‐income or recent Vietnamese immigrants, and community leaders) | To increase cervical cancer awareness and screening (Pap test) and, more generally, to improve the health of the whole community of Vietnamese‐Americans of Santa Clara County | Addressing individual, systemic (providers and health care system) and environmental (financial and cultural) barriers to cervical cancer screening |
| 7 | The Earth Crew project, Partnership between West Harlem Environmental Action (WE ACT) and Columbia University (West Harlem, New York) | West Harlem is part of Northern Manhattan, comprising 627,000 low‐income to mid‐income African‐Americans and Latinos. The community has a rich and diverse population and cultural history, but disproportionate rates of disability and premature death (one in four children suffer from asthma). Six of the eight Manhattan diesel bus depots housing were sited in Northern Manhattan | A high rate of asthma, and related morbidity and mortality in the neighborhood of West Harlem | Between an academic partner (Columbia University's Children's Center for Environmental Health) and a community organization (West Harlem Environmental Action) | To address the neighborhood poor air quality | Addressing air pollution environmental injustice through policy changes and community leadership development |
| 8 | The Good Neighbor Program (Bayview Hunters Point, San Francisco, California) | Bayview Hunters Point is an economically disadvantaged neighborhood of San Francisco, populated by African Americans, Asian Americans, and Pacific Islander Americans (30,000 persons). The environment is considered as a food desert, characterized by a lack of access to culturally appropriate, affordable, and healthy food, and making it difficult for local residents to access nutritious foods such as fruits and vegetables | Food insecurity in Bayview Hunters Point's Neighborhood | Between a community organization (Literacy for Environmental Justice), a consultant academic partner (research evaluator) and a local health department (San Francisco Department of Public Health) | To increase the access to healthy food in the neighborhood (food security), and to decrease the display of and access to tobacco products | Addressing the link between tobacco and food security and increase community accessibility to healthy food with policy and environmental efforts |