Literature DB >> 28452008

Underrepresentation of Hispanics and Other Minorities in Clinical Trials: Recruiters' Perspectives.

Aurora Occa1, Susan E Morgan2, JoNell E Potter3.   

Abstract

Clinical trials and research studies often fail to recruit participants from the minorities, hampering the generalizability of results. In order to mitigate this problem, the present study investigated how race/ethnicity affects the process of recruiting people from racial and ethnic minority groups, by conducting 11 focus groups with professional recruiters. Several themes emerged, such as how to adapt to potential participants' language competency and literacy levels, the importance to engage in culturally appropriate verbal and non-verbal communication, and to establish a sense of homophily between recruiters and patients. In addition, recruiters pointed out possible solutions to accommodate socioeconomic concerns, to adapt to contextual factors-including immigration status-and ultimately to respond to potential participants' mistrust of medical research. These findings are discussed, and future recommendations are provided.

Entities:  

Keywords:  Accrual; Clinical trial communication; Minority participants; Recruiters

Mesh:

Year:  2017        PMID: 28452008     DOI: 10.1007/s40615-017-0373-x

Source DB:  PubMed          Journal:  J Racial Ethn Health Disparities        ISSN: 2196-8837


  32 in total

1.  An experimental study of homophily in the adoption of health behavior.

Authors:  Damon Centola
Journal:  Science       Date:  2011-12-02       Impact factor: 47.728

2.  Moving toward true inclusion of racial/ethnic minorities in federally funded studies. A key step for achieving respiratory health equality in the United States.

Authors:  Esteban G Burchard; Sam S Oh; Marilyn G Foreman; Juan C Celedón
Journal:  Am J Respir Crit Care Med       Date:  2015-03-01       Impact factor: 21.405

3.  Exploring Willingness to Participate in Clinical Trials by Ethnicity.

Authors:  Katrina L Pariera; Sheila T Murphy; Jingbo Meng; Margaret L McLaughlin
Journal:  J Racial Ethn Health Disparities       Date:  2016-09-07

4.  Aversive Racism and Medical Interactions with Black Patients: A Field Study.

Authors:  Louis A Penner; John F Dovidio; Tessa V West; Samuel L Gaertner; Terrance L Albrecht; Rhonda K Dailey; Tsveti Markova
Journal:  J Exp Soc Psychol       Date:  2010-03-01

5.  Honorarium or coercion: use of incentives for participants in clinical research.

Authors:  Susan W Groth
Journal:  J N Y State Nurses Assoc       Date:  2010 Spring-Summer

6.  Racial/ethnic disparities in primary care: the role of physician-patient concordance.

Authors:  Erin C Strumpf
Journal:  Med Care       Date:  2011-05       Impact factor: 2.983

7.  Community needs, concerns, and perceptions about health research: findings from the clinical and translational science award sentinel network.

Authors:  Linda B Cottler; Donna Jo McCloskey; Sergio Aguilar-Gaxiola; Nancy M Bennett; Hal Strelnick; Molly Dwyer-White; Deborah E Collyar; Shaun Ajinkya; Sarena D Seifer; Catina Callahan O'Leary; Catherine W Striley; Bradley Evanoff
Journal:  Am J Public Health       Date:  2013-02-14       Impact factor: 9.308

8.  What do people really know and think about clinical trials? A comparison of rural and urban communities in the South.

Authors:  Daniela B Friedman; Caroline D Bergeron; Caroline Foster; Andrea Tanner; Sei-Hill Kim
Journal:  J Community Health       Date:  2013-08

Review 9.  Twenty years post-NIH Revitalization Act: enhancing minority participation in clinical trials (EMPaCT): laying the groundwork for improving minority clinical trial accrual: renewing the case for enhancing minority participation in cancer clinical trials.

Authors:  Moon S Chen; Primo N Lara; Julie H T Dang; Debora A Paterniti; Karen Kelly
Journal:  Cancer       Date:  2014-04-01       Impact factor: 6.860

10.  Participation of the elderly, women, and minorities in pivotal trials supporting 2011-2013 U.S. Food and Drug Administration approvals.

Authors:  Nicholas S Downing; Nilay D Shah; Joseph H Neiman; Jenerius A Aminawung; Harlan M Krumholz; Joseph S Ross
Journal:  Trials       Date:  2016-04-14       Impact factor: 2.279

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  7 in total

1.  Centralized registry for COVID-19 research recruitment: Design, development, implementation, and preliminary results.

Authors:  Anna Peeler; Hailey Miller; Oluwabunmi Ogungbe; Cassia Lewis Land; Liz Martinez; Monica Guerrero Vazquez; Scott Carey; Sumati Murli; Megan Singleton; Cyd Lacanienta; Kelly Gleason; Daniel Ford; Cheryl R Himmelfarb
Journal:  J Clin Transl Sci       Date:  2021-07-14

2.  Confronting Racism in All Forms of Pain Research: Reframing Study Designs.

Authors:  Janelle E Letzen; Vani A Mathur; Mary R Janevic; Michael D Burton; Anna M Hood; Calia A Morais; Staja Q Booker; Claudia M Campbell; Edwin N Aroke; Burel R Goodin; Lisa C Campbell; Ericka N Merriwether
Journal:  J Pain       Date:  2022-02-26       Impact factor: 5.383

3.  Cultural and linguistic adaptation of psychosocial measurements for latinx participants-Leveraging community-engaged research methods.

Authors:  Gabriela A Nagy; Rosa Solorzano; Allison M Stafford; Maralis Mercado Emerson; Rosa Gonzalez-Guarda
Journal:  Res Nurs Health       Date:  2021-04-12       Impact factor: 2.238

4.  Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart failure proms among diverse, low-income patients.

Authors:  Courtney Lyles; Urmimala Sarkar; Jonathan Davis; Kristan Olazo; Maribel Sierra; Michelle E Tarver; Brittany Caldwell; Anindita Saha; Sarah Lisker
Journal:  J Patient Rep Outcomes       Date:  2022-01-15

5.  Improving diversity in study participation: Patient perspectives on barriers, racial differences and the role of communities.

Authors:  Lisa Shea; Jacqueline Pesa; Gabrielle Geonnotti; Valerie Powell; Caryl Kahn; Wesley Peters
Journal:  Health Expect       Date:  2022-06-28       Impact factor: 3.318

Review 6.  Recommendations to encourage participation of individuals from diverse backgrounds in psychiatric genetic studies.

Authors:  Casey MacDermod; Michaela A Pettie; Emily A Carrino; Susana Cruz Garcia; Sophie Padalecki; Jody E Finch; Christina Sanzari; Hannah L Kennedy; Pratiksha S Pawar; Makenna M Mcgough; Ava Iwashita; Mary Takgbajouah; Danielle Coan; Lindsey Szakasits; Rachel W Goode; Ya-Ke Wu; Mae Lynn Reyes-Rodríguez; Eva María Trujillo Chi Vacuán; Martin A Kennedy; Lana Cleland; Jennifer Jordan; Sarah Maguire; Jerry D Guintivano; Paola Giusti-Rodríguez; Jessica H Baker; Laura M Thornton; Cynthia M Bulik
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2022-07-04       Impact factor: 3.358

7.  Demographic and Health Behavior Factors Associated With Clinical Trial Invitation and Participation in the United States.

Authors:  Courtney P Williams; Nicole Senft Everson; Nonniekaye Shelburne; Wynne E Norton
Journal:  JAMA Netw Open       Date:  2021-09-01
  7 in total

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