Sara Ahmed1, Patrick Ware2, William Gardner3, James Witter4, Clifton O Bingham5, Dahlia Kairy6, Susan J Bartlett7. 1. Faculty of Medicine, School of Physical & Occupational Therapy, McGill University, 3654 Prom Sir-William-Osler, Montreal, Québec, Canada H3G 1Y5; Clinical Research, Centre de recherche interdisciplinaire en réadaptation (CRIR), Canada, 2275 Laurier Ave E, Montreal, Quebec, Canada H2H 2N8; Department of Medicine, McGill University/McGill University Health Center, 687 Pine Ave W R4.29, Montreal, Quebec, Canada H3A 1A1. Electronic address: sara.ahmed@mcgill.ca. 2. Clinical Research, Centre de recherche interdisciplinaire en réadaptation (CRIR), Canada, 2275 Laurier Ave E, Montreal, Quebec, Canada H2H 2N8. 3. Epidemiology, Research Institute-Children's Hospital of Eastern Ontario and Department of Epidemiology, University of Ottawa, 410 Smyth Road, Ottawa, Ontario, Canada K1H 8L1. 4. National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), National Institutes of Health (NIH), Bethesda, MD 20892, USA. 5. Division of Rheumatology, Johns Hopkins School of Medicine, 5200 Eastern Avenue #4100, Baltimore, MD 21224, USA. 6. Centre de recherche de l'Institut de réadaptation Gingras-Lindsay de Montréal, 6300 Ave. Darlington, Montreal, Québec, Canada H3S 2J4. 7. Division of Rheumatology, Johns Hopkins School of Medicine, 5200 Eastern Avenue #4100, Baltimore, MD 21224, USA; Department of Medicine, McGill University/McGill University Health Center (RVH), 687 Pine Ave. W., Ross Pavilion R4.29, Montreal, Québec, Canada H3A 1A1.
Abstract
BACKGROUND: Given that the goal of health care systems is to improve and maintain the health of the populations they serve, the indicators of performance must include outcomes that are meaningful to patients. The growth of health technologies provides an unprecedented opportunity to integrate the patient voice into clinical care by linking electronic health records (EHRs) to patient-reported outcome (PRO) data collection. However, PRO data must be relevant, meaningful, and actionable for those who will have to invest the time and effort to collect it. OBJECTIVE: In this study, we highlight opportunities to integrate PRO data collection into EHRs. We consider how stakeholder perspectives should influence the selection of PROs and ways to enhance engagement in and commitment to PRO implementation. We propose a research and policy agenda to address unanswered questions and facilitate the widespread adoption of PRO data collection into EHRs. DISCUSSION: Building a learning health care system that gathers PRO data in ways that can inform individual patient care, quality improvement, and comparative effectiveness research has the potential to accelerate the application of new evidence and knowledge to patient care.
BACKGROUND: Given that the goal of health care systems is to improve and maintain the health of the populations they serve, the indicators of performance must include outcomes that are meaningful to patients. The growth of health technologies provides an unprecedented opportunity to integrate the patient voice into clinical care by linking electronic health records (EHRs) to patient-reported outcome (PRO) data collection. However, PRO data must be relevant, meaningful, and actionable for those who will have to invest the time and effort to collect it. OBJECTIVE: In this study, we highlight opportunities to integrate PRO data collection into EHRs. We consider how stakeholder perspectives should influence the selection of PROs and ways to enhance engagement in and commitment to PRO implementation. We propose a research and policy agenda to address unanswered questions and facilitate the widespread adoption of PRO data collection into EHRs. DISCUSSION: Building a learning health care system that gathers PRO data in ways that can inform individual patient care, quality improvement, and comparative effectiveness research has the potential to accelerate the application of new evidence and knowledge to patient care.
Authors: Michael A Kallen; Karon F Cook; Dagmar Amtmann; Elizabeth Knowlton; Richard C Gershon Journal: Qual Life Res Date: 2018-05-05 Impact factor: 4.147