Nancy E Mayo1, Sabrina Figueiredo2, Sara Ahmed3, Susan J Bartlett4. 1. Department of Medicine, School of Physical and Occupational Therapy, McGill University, Center for Outcomes Research and Evaluation, Research Institute-McGill University Health Center, Ross Pavilion R4.29, 687 Pine Avenue West, Montreal, Quebec, Canada H3A 1A1. Electronic address: nancy.mayo@mcgill.ca. 2. School of Physical and Occupational Therapy, McGill University, 3654 Promenade Sir-William-Osler, Montreal, Quebec, Canada H3G 1Y5. 3. Department of Medicine, School of Physical and Occupational Therapy, McGill University, Center for Outcomes Research and Evaluation, Research Institute-McGill University Health Center, Ross Pavilion R4.29, 687 Pine Avenue West, Montreal, Quebec, Canada H3A 1A1; Centre de recherche interdisciplinaire en réadaptation du Montréal métropolitain (CRIR), 2275 Laurier Ave E, Montreal, Quebec, Canada H2H 2N8; Department of Medicine, McGill University/McGill University Health Center, 687 Pine Ave W R4.29, Montreal, Quebec, Canada H3A 1A1. 4. Department of Medicine, McGill University/McGill University Health Center, 687 Pine Ave W R4.29, Montreal, Quebec, Canada H3A 1A1; Division of Rheumatology, Johns Hopkins School of Medicine, 5200 Eastern Avenue #4100, Baltimore, MD 21224, USA.
Abstract
BACKGROUND: We outline different health outcomes and describe how multiple perspectives can be harnessed to optimize accuracy of key data collected about patients with chronic conditions. The terms health status, health-related quality of life, and quality of life are often used interchangeably without recognizing that they have different meanings, as are the terms used to refer to the different components of function. Although the advantages and limitations of existing frameworks and perspectives are largely understood, greater precision is needed when using health outcome terminology and identifying optimal sources of information. OBJECTIVE: A refinement of the current taxonomy is proposed to distinguish between patient-reported outcomes and self-report outcomes and expand the concept of clinically reported outcomes to include those assessed by performance and emerging technologies. DISCUSSION: Health outcomes yield important information that can be used to improve the lives of many people. Now is the time to "talk the talk" as part of larger coordinated efforts within and across countries to identify and measure what matters most in health.
BACKGROUND: We outline different health outcomes and describe how multiple perspectives can be harnessed to optimize accuracy of key data collected about patients with chronic conditions. The terms health status, health-related quality of life, and quality of life are often used interchangeably without recognizing that they have different meanings, as are the terms used to refer to the different components of function. Although the advantages and limitations of existing frameworks and perspectives are largely understood, greater precision is needed when using health outcome terminology and identifying optimal sources of information. OBJECTIVE: A refinement of the current taxonomy is proposed to distinguish between patient-reported outcomes and self-report outcomes and expand the concept of clinically reported outcomes to include those assessed by performance and emerging technologies. DISCUSSION: Health outcomes yield important information that can be used to improve the lives of many people. Now is the time to "talk the talk" as part of larger coordinated efforts within and across countries to identify and measure what matters most in health.
Authors: Jessica K Roydhouse; Matthew L Cohen; Henrik R Eshoj; Nadia Corsini; Emre Yucel; Claudia Rutherford; Katarzyna Wac; Allan Berrocal; Alyssa Lanzi; Cindy Nowinski; Natasha Roberts; Angelos P Kassianos; Veronique Sebille; Madeleine T King; Rebecca Mercieca-Bebber Journal: Qual Life Res Date: 2021-07-12 Impact factor: 4.147
Authors: Livia P Carvalho; Simon Décary; Isabelle Beaulieu-Boire; Rosalie Dostie; Isabelle Lalonde; Émilie Texier; Laurence Laprise; Elizabeth Pepin; Mélodie Gilbert; Hélène Corriveau; Michel Tousignant Journal: Int J Environ Res Public Health Date: 2021-06-30 Impact factor: 3.390