Katharine Hayward1, Angela Y Chen2, Elizabeth Forbes3, Rachel Byrne4, Marcia B Greenberg5, Eileen G Fowler6. 1. Tarjan Center at UCLA, 760 Westwood Plaza, 58-228 Semel Institute, Los Angeles, CA 90095, USA. Electronic address: khayward@mednet.ucla.edu. 2. UCLA Department of Obstetrics and Gynecology, West Medical, 1010 Veteran Ave., Los Angeles, CA 90095, USA. Electronic address: AngelaChen@mednet.ucla.edu. 3. UCLA Department of Obstetrics and Gynecology, West Medical, 1010 Veteran Ave., Los Angeles, CA 90095, USA. Electronic address: Efruppel@gmail.com. 4. Cerebral Palsy Foundation, 3 Columbus Circle, 15th Floor, New York, NY 10019, USA. Electronic address: rachel.byrne@yourcpf.org. 5. Center for Cerebral Palsy at UCLA, Department of Orthopaedic Surgery, 1000 Veteran Avenue, Los Angeles, CA 90095, USA. Electronic address: mgreenberg@mednet.ucla.edu. 6. Tarjan Center at UCLA, 760 Westwood Plaza, 58-228 Semel Institute, Los Angeles, CA 90095, USA; Center for Cerebral Palsy at UCLA, Department of Orthopaedic Surgery, 1000 Veteran Avenue, Los Angeles, CA 90095, USA. Electronic address: efowler@mednet.ucla.edu.
Abstract
BACKGROUND: Little is known about pregnancy rates in women with disabilities in general and even less is known about women with child-onset disabilities such as cerebral palsy (CP). HYPOTHESIS: We hypothesized that discussions about pregnancy with healthcare providers and pregnancy rates for woman with CP would be related to their functional levels. METHODS: Survey methodology was used to gather information about demographics, function, whether women were asked about their desire for children, pregnancy outcomes, and services offered during pregnancy and postpartum. RESULTS: Of the 375 women with CP who participated in the survey, 76 (20%) reported 149 pregnancies resulting in 100 live births. Using Chi square statistics, mobility, manual dexterity, and communication function were significantly higher in women who were queried about or who experienced pregnancy. More than half of the women experienced a loss of mobility during pregnancy but few received referrals for physical or occupational therapy. Few reported screening for postpartum depression. A higher rate of Cesarean sections (50.4%), preterm births (12.1%), low birth weight infants (15.7%), and very low birth weight infants (7.1%) was reported by women with CP compared to national statistics. CONCLUSIONS: Pregnancy rates and discussions were related to functional levels. As 20% of women with CP surveyed experienced pregnancy, there is a need to increase awareness, education, support, and advocacy for achievement of optimal reproductive health. More research is needed to identify factors contributing to maternal and infant health in women with CP.
BACKGROUND: Little is known about pregnancy rates in women with disabilities in general and even less is known about women with child-onset disabilities such as cerebral palsy (CP). HYPOTHESIS: We hypothesized that discussions about pregnancy with healthcare providers and pregnancy rates for woman with CP would be related to their functional levels. METHODS: Survey methodology was used to gather information about demographics, function, whether women were asked about their desire for children, pregnancy outcomes, and services offered during pregnancy and postpartum. RESULTS: Of the 375 women with CP who participated in the survey, 76 (20%) reported 149 pregnancies resulting in 100 live births. Using Chi square statistics, mobility, manual dexterity, and communication function were significantly higher in women who were queried about or who experienced pregnancy. More than half of the women experienced a loss of mobility during pregnancy but few received referrals for physical or occupational therapy. Few reported screening for postpartum depression. A higher rate of Cesarean sections (50.4%), preterm births (12.1%), low birth weight infants (15.7%), and very low birth weight infants (7.1%) was reported by women with CP compared to national statistics. CONCLUSIONS: Pregnancy rates and discussions were related to functional levels. As 20% of women with CP surveyed experienced pregnancy, there is a need to increase awareness, education, support, and advocacy for achievement of optimal reproductive health. More research is needed to identify factors contributing to maternal and infant health in women with CP.
Authors: Michelle Huezo García; Samantha E Parker; Julie M Petersen; Eric Rubenstein; Martha M Werler Journal: Disabil Health J Date: 2021-12-01 Impact factor: 2.554
Authors: Traci M Kazmerski; Elizabeth Miller; Gregory S Sawicki; Phaedra Thomas; Olga Prushinskaya; Eliza Nelson; Kelsey Hill; Anna Miller; S Jean Emans Journal: Patient Date: 2019-04 Impact factor: 3.883