Literature DB >> 28426563

Routine inclusion of long-term functional and patient-reported outcomes into trauma registries: The FORTE project.

Arturo J Rios-Diaz1, Juan P Herrera-Escobar, Elizabeth J Lilley, Jessica R Appelson, Belinda Gabbe, Karen Brasel, Terri deRoon-Cassini, Eric B Schneider, George Kasotakis, Haytham Kaafarani, George Velmahos, Ali Salim, Adil H Haider.   

Abstract

BACKGROUND: The National Academies of Sciences, Engineering, and Medicine (formerly the Institute of Medicine) recently recommended inclusion of postdischarge health-related quality of life (HRQoL) and patient-reported outcomes (PROs) metrics to benchmark the quality of trauma care. Currently, these measures are not routinely collected at most trauma centers. We sought to determine the feasibility and value of adding such long-term outcome measures to trauma registries.
METHODS: As part of the FORTE (Functional Outcomes and Recovery after Trauma Emergencies) project, we included patients with an Injury Severity Score of 9 or greater, admitted to the Brigham and Women's Hospital in Boston, MA, who were identified retrospectively using the institutional trauma registry and contacted 6 or 12 months after injury to participate in a telephone survey evaluating HRQoL (Short Form 12 [SF-12]), PROs (Trauma Quality of Life), posttraumatic stress disorder, return to work, residential status, and health care utilization.
RESULTS: Data were collected for 171 of 394 eligible patients: 85/189 (45%) at 6 months and 86/205 (42%) at 12 months; 25%/29% (6/12 months) patients could not be contacted, 15%/16% (6/12 months) declined to participate, and 15%/13% (6/12 months) were interested in participating at another time but were not reached again. Approximately 20% patients screened positive for posttraumatic stress disorder, and half had not yet returned to work. There were significant reductions in SF-12 physical composite scores relative to population norms (mean, 50 [SD, 10]) at 6 months (mean, 44; 95% confidence interval [CI], 41-47) and 12 months (45; 95% CI, 42-47); no difference was noted in the SF-12 mental composite scores (6 months: 51 [95% CI, 48-54]; 12 months: 50 [95% CI, 46-53]).
CONCLUSIONS: Trauma patients reported considerable impairment 6 and 12 months after injury. Routine collection of PROs and HRQoL provides important data regarding trauma outcomes beyond mortality and will enable the development of quality improvement metrics that better reflect patients' postinjury experiences. Improved and alternate methods for collection of these data need to be developed to enhance response rates before widespread adoption across trauma centers in the United States. LEVEL OF EVIDENCE: Prognostic/epidemiologic, level II; Therapeutic, level III.

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Year:  2017        PMID: 28426563     DOI: 10.1097/TA.0000000000001490

Source DB:  PubMed          Journal:  J Trauma Acute Care Surg        ISSN: 2163-0755            Impact factor:   3.313


  13 in total

1.  Influence of psychiatric co-morbidity on health-related quality of life among major trauma patients.

Authors:  Maximilian A Meyer; Tijmen van den Bosch; Juanita A Haagsma; Marilyn Heng; Loek P H Leenen; Falco Hietbrink; Roderick Marijn Houwert; Marjan Kromkamp; Stijn D Nelen
Journal:  Eur J Trauma Emerg Surg       Date:  2022-09-24       Impact factor: 2.374

2.  Point-of-Care Analysis of Neutrophil Phenotypes: A First Step Toward Immuno-Based Precision Medicine in the Trauma ICU.

Authors:  Roy Spijkerman; Lillian Hesselink; Suzanne Bongers; Karlijn J P van Wessem; Nienke Vrisekoop; Falco Hietbrink; Leo Koenderman; Luke P H Leenen
Journal:  Crit Care Explor       Date:  2020-07-17

3.  The feasibility and acceptability of mobile health monitoring for real-time assessment of traumatic injury outcomes.

Authors:  Sara F Jacoby; Andrew J Robinson; Jessica L Webster; Christopher N Morrison; Therese S Richmond
Journal:  Mhealth       Date:  2021-01-20

4.  Predictors of Change in Functional Outcome at six months and twelve months after Severe Injury: A Retrospective Cohort Study.

Authors:  Aidan Lyanzhiang Tan; Yi Chiong; Nivedita Nadkarni; Jolene Yu Xuan Cheng; Ming Terk Chiu; Ting Hway Wong
Journal:  World J Emerg Surg       Date:  2018-12-03       Impact factor: 5.469

5.  An Assessment of Long-Term Physical and Emotional Quality of Life of Persons Injured on 9/11/2001.

Authors:  Robert M Brackbill; Howard E Alper; Patricia Frazier; Lisa M Gargano; Melanie H Jacobson; Adrienne Solomon
Journal:  Int J Environ Res Public Health       Date:  2019-03-23       Impact factor: 3.390

6.  Routine incorporation of longer-term patient-reported outcomes into a Dutch trauma registry.

Authors:  Quirine M J van der Vliet; Abhiram R Bhashyam; Falco Hietbrink; R Marijn Houwert; F Cumhur Öner; Luke P H Leenen
Journal:  Qual Life Res       Date:  2019-05-16       Impact factor: 4.147

7.  Trauma Transitional Care Coordination: protecting the most vulnerable trauma patients from hospital readmission.

Authors:  Erin C Hall; Rebecca Tyrrell; Thomas M Scalea; Deborah M Stein
Journal:  Trauma Surg Acute Care Open       Date:  2018-02-08

8.  Long-term patient-reported outcome measures after injury: National Trauma Research Action Plan (NTRAP) scoping review protocol.

Authors:  Juan Pablo Herrera-Escobar; Manuel A Castillo-Angeles; Samia Y Osman; Claudia P Orlas; Mahin B Janjua; Muhammad Abdullah-Arain; Emma Reidy; Molly P Jarman; Michelle A Price; Eileen M Bulger; Deepika Nehra; Adil H Haider
Journal:  Trauma Surg Acute Care Open       Date:  2020-05-28

9.  Evaluation of a call center to assess post-discharge maternal and early neonatal outcomes of facility-based childbirth in Uttar Pradesh, India.

Authors:  Jonathon D Gass; Katherine Semrau; Fatima Sana; Anup Mankar; Vinay Pratap Singh; Jennifer Fisher-Bowman; Brandon J Neal; Danielle E Tuller; Bharath Kumar; Stuart Lipsitz; Narender Sharma; Bhala Kodkany; Vishwajeet Kumar; Atul Gawande; Lisa R Hirschhorn
Journal:  PLoS One       Date:  2018-11-27       Impact factor: 3.240

10.  What constitutes a 'successful' recovery? Patient perceptions of the recovery process after a traumatic injury.

Authors:  Graeme Rosenberg; Sean R Zion; Emily Shearer; Sylvia Bereknyei Merrell; Natasha Abadilla; David A Spain; Alia J Crum; Thomas G Weiser
Journal:  Trauma Surg Acute Care Open       Date:  2020-02-23
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