Literature DB >> 28391408

Informativeness of patient initial reports of adverse drug reactions. Can it be improved by a pharmacovigilance centre?

F Kheloufi1,2, A Default1,2, F Rouby1,2, D Laugier-Castellan1, M Boyer1, B Rodrigues1, J Ponte-Astoul1, M J Jean-Pastor1, O Blin1,2, J Micallef3,4.   

Abstract

PURPOSE: Little is known about the informativeness of initial patient reports before they are reviewed by a pharmacovigilance centre (PVC). We aim to describe the patterns of patient adverse drug reaction (ADR) reporting in France and estimate the contribution of a review by a PVC assessor on the informativeness of these reports.
METHODS: A retrospective study was conducted on patient reports between July 2011 and July 2015. Informativeness of 16 key elements of information (including drug start and end date, duration of treatment, time to onset and duration of the ADR, outcome, medical history and concomitant medication) was assessed in initial reports before and after review by a pharmacovigilance assessor.
RESULTS: Overall, 240 reports concerning 522 ADR and involving 278 drugs were reported over this 4-year period. Mean number of available key elements of information in initial reports was increased from 11/16 to 15/16 after review of reports by the PVC. Time to onset and duration of the ADR were respectively available in only 51 and 58% of the reports before review compared to 83 and 90% after review. Medical history and concomitant medication were missing in 75% of the initial reports compared to less than 30% of the reports after review. Contacting the reporter enabled an increase of informativeness of most elements of information for more than 90% of the reports.
CONCLUSION: Patient reports often need to be completed on key elements of information that are required to assess reports. Both upstream education of patients and downstream intervention of a pharmacovigilance assessor to complete missing information could help to enhance the informativeness of such reports.

Entities:  

Keywords:  Adverse drug reactions; Consumer; Direct patient reporting; Health democracy; Informativeness; Patients; Pharmacovigilance; Quality; Spontaneous reporting

Mesh:

Year:  2017        PMID: 28391408     DOI: 10.1007/s00228-017-2254-y

Source DB:  PubMed          Journal:  Eur J Clin Pharmacol        ISSN: 0031-6970            Impact factor:   2.953


  27 in total

1.  Quality criteria for early signals of possible adverse drug reactions.

Authors:  I R Edwards; M Lindquist; B E Wiholm; E Napke
Journal:  Lancet       Date:  1990-07-21       Impact factor: 79.321

2.  First French experience of ADR reporting by patients after a mass immunization campaign with Influenza A (H1N1) pandemic vaccines: a comparison of reports submitted by patients and healthcare professionals.

Authors:  Geneviève Durrieu; Aurore Palmaro; Laure Pourcel; Céline Caillet; Angeline Faucher; Alexis Jacquet; Shéhérazade Ouaret; Marie Christine Perault-Pochat; Carmen Kreft-Jais; Anne Castot; Maryse Lapeyre-Mestre; Jean-Louis Montastruc
Journal:  Drug Saf       Date:  2012-10-01       Impact factor: 5.606

Review 3.  Patients' role in reporting adverse drug reactions.

Authors:  Kees van Grootheest; Lolkje de Jong-van den Berg
Journal:  Expert Opin Drug Saf       Date:  2004-07       Impact factor: 4.250

4.  Patients' motives for participating in active post-marketing surveillance.

Authors:  Linda Härmark; Miguel Lie-Kwie; Lisette Berm; Han de Gier; Kees van Grootheest
Journal:  Pharmacoepidemiol Drug Saf       Date:  2012-07-27       Impact factor: 2.890

5.  Adverse drug reaction reporting by patients in the Netherlands: three years of experience.

Authors:  Joyce de Langen; Florence van Hunsel; Anneke Passier; Lolkje de Jong-van den Berg; Kees van Grootheest
Journal:  Drug Saf       Date:  2008       Impact factor: 5.606

6.  Patients as a direct source of information on adverse drug reactions.

Authors:  A S Mitchell; D A Henry; R Sanson-Fisher; D L O'Connell
Journal:  BMJ       Date:  1988-10-08

7.  [Adverse drug reactions: a pilot study on patient reporting through patient associations].

Authors:  Daphney Nasrallah-Irles; Anne Castot; Laure Thomas; Samy Babai; Bernard Delorme; Hervé Le-Louët
Journal:  Therapie       Date:  2009-01-21       Impact factor: 2.070

8.  Adverse drug reaction reports of patients and healthcare professionals-differences in reported information.

Authors:  Leàn Rolfes; Florence van Hunsel; Sarah Wilkes; Kees van Grootheest; Eugène van Puijenbroek
Journal:  Pharmacoepidemiol Drug Saf       Date:  2014-07-31       Impact factor: 2.890

9.  Comparing patients' and healthcare professionals' ADR reports after media attention: the broadcast of a Dutch television programme about the benefits and risks of statins as an example.

Authors:  Florence van Hunsel; Anneke Passier; Kees van Grootheest
Journal:  Br J Clin Pharmacol       Date:  2009-02-26       Impact factor: 4.335

10.  Experiences from consumer reports on psychiatric adverse drug reactions with antidepressant medication: a qualitative study of reports to a consumer association.

Authors:  Andreas Vilhelmsson; Tommy Svensson; Anna Meeuwisse; Anders Carlsten
Journal:  BMC Pharmacol Toxicol       Date:  2012-12-23       Impact factor: 2.483

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  5 in total

1.  Current trends in pharmacovigilance: value and gaps of patient reporting.

Authors:  Pedro Inácio; Afonso Cavaco; Marja Airaksinen
Journal:  Int J Clin Pharm       Date:  2018-07-13

2.  Comment on "Patient Reporting in the EU: Analysis of EudraVigilance Data".

Authors:  Farid Kheloufi; Anne Default; Frank Rouby; Olivier Blin; Joelle Micallef
Journal:  Drug Saf       Date:  2017-10       Impact factor: 5.606

3.  The Role of European Patient Organizations in Pharmacovigilance.

Authors:  Cristiano Matos; Gerda Weits; Florence van Hunsel
Journal:  Drug Saf       Date:  2019-04       Impact factor: 5.606

Review 4.  The Importance of Direct Patient Reporting of Adverse Drug Reactions in the Safety Monitoring Process.

Authors:  Kamila Sienkiewicz; Monika Burzyńska; Izabela Rydlewska-Liszkowska; Jacek Sienkiewicz; Ewelina Gaszyńska
Journal:  Int J Environ Res Public Health       Date:  2021-12-31       Impact factor: 3.390

5.  Descriptions of Adverse Drug Reactions Are Less Informative in Forums Than in the French Pharmacovigilance Database but Provide More Unexpected Reactions.

Authors:  Pierre Karapetiantz; Florelle Bellet; Bissan Audeh; Jérémy Lardon; Damien Leprovost; Rim Aboukhamis; François Morlane-Hondère; Cyril Grouin; Anita Burgun; Sandrine Katsahian; Marie-Christine Jaulent; Marie-Noëlle Beyens; Agnès Lillo-Le Louët; Cédric Bousquet
Journal:  Front Pharmacol       Date:  2018-05-01       Impact factor: 5.810

  5 in total

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