Literature DB >> 28379042

"Not Taking it Will Just be Like a Sin": Young People Living with HIV and the Stigmatization of Less-Than-Perfect Adherence to Antiretroviral Therapy.

Sarah Bernays1,2, Sara Paparini2,3, Janet Seeley4, Tim Rhodes2.   

Abstract

Global health priorities are being set to address questions on adherence to HIV antiretroviral therapy in adolescence. Few studies have explored young people's perspectives on the complex host of social and relational challenges they face in dealing with their treatment in secret and their condition in silence. In redressing this, we present findings from a longitudinal qualitative study with young people living with HIV in the UK, Ireland, US, and Uganda, embedded within the BREATHER international clinical trial. Drawing from Goffman's notion of stigma, we analyze relational dynamics in HIV clinics, as rare spaces where HIV is "known," and how young people's relationships may be threatened by non-adherence to treatment. Young people's reflections on and strategies for maintaining their reputation as patients raise questions about particular forms of medicalization of HIV and the moralization of treatment adherence that affect them, and how these may restrict opportunities for care across the epidemic.

Entities:  

Keywords:  Adolescence; HIV; qualitative; stigma; treatment adherence

Mesh:

Substances:

Year:  2017        PMID: 28379042     DOI: 10.1080/01459740.2017.1306856

Source DB:  PubMed          Journal:  Med Anthropol        ISSN: 0145-9740


  19 in total

1.  Truth, Deception, and Coercion; Communication Strategies Used by Caregivers of Children with Perinatally Acquired HIV During the Pre-Disclosure and Post-Disclosure Period in Rural Communities in South Africa.

Authors:  Mmathale Molokwane; Sphiwe Madiba
Journal:  Glob Pediatr Health       Date:  2021-05-31

2.  Blood and Blood: Anti-retroviral Therapy, Masculinity, and Redemption among Adolescent Boys in the Eastern Cape Province of South Africa.

Authors:  Lesley Gittings; Christopher J Colvin; Rebecca Hodes
Journal:  Med Anthropol Q       Date:  2022-01-14

3.  Qualitative study of the BREATHER trial (Short Cycle antiretroviral therapy): is it acceptable to young people living with HIV?

Authors:  Sarah Bernays; Sara Paparini; Janet Seeley; Stella Namukwaya Kihika; Diana Gibb; Tim Rhodes
Journal:  BMJ Open       Date:  2017-02-17       Impact factor: 2.692

4.  "How Do We Start? And How Will They React?" Disclosing to Young People with Perinatally Acquired HIV in Uganda.

Authors:  Stella Namukwaya; Sara Paparini; Janet Seeley; Sarah Bernays
Journal:  Front Public Health       Date:  2017-12-13

5.  Validation of a self-report adherence measurement tool among a multinational cohort of children living with HIV in Kenya, South Africa and Thailand.

Authors:  Rachel C Vreeman; Michael L Scanlon; Wanzhu Tu; James E Slaven; Carole I McAteer; Stephen J Kerr; Torsak Bunupuradah; Sararut Chanthaburanum; Karl-Günter Technau; Winstone M Nyandiko
Journal:  J Int AIDS Soc       Date:  2019-05       Impact factor: 5.396

6.  Being an 'adolescent': The consequences of gendered risks for young people in rural Uganda.

Authors:  Sarah Bernays; Dominic Bukenya; Claire Thompson; Fatuma Ssembajja; Janet Seeley
Journal:  Childhood       Date:  2017-09-25

7.  "My mother told me that I should not": a qualitative study exploring the restrictions placed on adolescent girls living with HIV in Zambia.

Authors:  Constance Rs Mackworth-Young; Virginia Bond; Alison Wringe; Katongo Konayuma; Sue Clay; Chipo Chiiya; Mutale Chonta; Kirsty Sievwright; Anne L Stangl
Journal:  J Int AIDS Soc       Date:  2017-12       Impact factor: 5.396

8.  Scaling up peer-led community-based differentiated support for adolescents living with HIV: keeping the needs of youth peer supporters in mind to sustain success.

Authors:  Sarah Bernays; Maureen Tshuma; Nicola Willis; Kudzanayi Mvududu; Adrian Chikeya; Juliet Mufuka; Frances Cowan; Webster Mavhu
Journal:  J Int AIDS Soc       Date:  2020-09       Impact factor: 5.396

9.  Qualitative research on community experiences in large HIV research trials: what have we learned?

Authors:  Carol S Camlin; Janet Seeley
Journal:  J Int AIDS Soc       Date:  2018-10       Impact factor: 5.396

10.  Experiences and effects of HIV-related stigma among youth living with HIV/AIDS in Western Uganda: A photovoice study.

Authors:  Emmanuel Kimera; Sofie Vindevogel; Didier Reynaert; Kintu Mugenyi Justice; John Rubaihayo; Jessica De Maeyer; Anne-Mie Engelen; Khamisi Musanje; Johan Bilsen
Journal:  PLoS One       Date:  2020-04-24       Impact factor: 3.240

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