Angie Mae Rodday1,2, Norma Terrin1,2, Laurel K Leslie1,3, Robert J Graham4,5, Susan K Parsons1,2. 1. Institute for Clinical Research and Health Policy Studies, Tufts Medical Center. 2. Department of Medicine, Tufts University. 3. American Board of Pediatrics, Chapel Hill, NC. 4. Division of Critical Care Medicine, Department of Anesthesiology, Perioperative and Pain Medicine, Boston Children's Hospital. 5. Department of Anesthesia, Harvard Medical School.
Abstract
Objective: Explore interrelationships between domains of child health-related quality of life (HRQL) and parent emotional functioning using parent-proxy and child report in the context of hematopoietic stem cell transplant (HSCT). Methods: Data on 258 parent-child dyads were used from two longitudinal studies. Domains of HRQL included physical, emotional, and role functioning, and HSCT-related worry. We used structural equation modeling to model the outcome of parent emotional functioning using primary and alternative conceptual models. Results: Parent-proxy raters reported lower child HRQL than child raters. Structural equation models demonstrated relationships between child emotional functioning, child HSCT-related worry, and parent emotional functioning, with some differences by raters. Conclusions: Relationships between child HRQL and parent emotional functioning within the context of HSCT are complex. To optimize the child's health outcomes, providing psychosocial support for children and their families may be necessary, especially for those experiencing distress or facing treatment complications.
Objective: Explore interrelationships between domains of child health-related quality of life (HRQL) and parent emotional functioning using parent-proxy and child report in the context of hematopoietic stem cell transplant (HSCT). Methods: Data on 258 parent-child dyads were used from two longitudinal studies. Domains of HRQL included physical, emotional, and role functioning, and HSCT-related worry. We used structural equation modeling to model the outcome of parent emotional functioning using primary and alternative conceptual models. Results: Parent-proxy raters reported lower child HRQL than child raters. Structural equation models demonstrated relationships between child emotional functioning, child HSCT-related worry, and parent emotional functioning, with some differences by raters. Conclusions: Relationships between child HRQL and parent emotional functioning within the context of HSCT are complex. To optimize the child's health outcomes, providing psychosocial support for children and their families may be necessary, especially for those experiencing distress or facing treatment complications.
Authors: Susan K Parsons; Mei-Chiung Shih; Katherine N Duhamel; Jamie Ostroff; Deborah K Mayer; Jane Austin; D Richard Martini; Sharon E Williams; Laura Mee; Sandra Sexson; Sherrie H Kaplan; William H Redd; Sharon Manne Journal: J Pediatr Psychol Date: 2005-09-08
Authors: Brian W Pennarola; Angie Mae Rodday; Kristin Bingen; Lisa A Schwartz; Sunita K Patel; Karen L Syrjala; Deborah K Mayer; Sara J Ratichek; Eva C Guinan; Mary Jo Kupst; Judith H Hibbard; Susan K Parsons Journal: Support Care Cancer Date: 2014-12-18 Impact factor: 3.603