Literature DB >> 28366109

Reflections: The Value of Patient Support Groups.

Amanda Hu1.   

Abstract

A patient support group is defined as "a group of people with common experiences and concerns who provide emotional and moral support for one another." Support groups fulfill many functions: educating patients/family, sharing the illness experience, providing strength to its members, raising public awareness, and fundraising. Some research has shown an improvement in quality of life of patients with head and neck cancer who have participated in support groups. A wide variety of support groups are available for otolaryngology patients, ranging from head and neck oncology to tinnitus and spasmodic dysphonia. Some support groups are face-to-face, while others use social media and the Internet. Surprisingly, engagement in patient support groups is low-about 10%. Some barriers to accessing support groups are awareness, time constraints, and confrontation of negative aspects of the disease. As otolaryngologists, we can help our patients access support groups so that they can benefit from these resources.

Entities:  

Keywords:  anxiety/psychology; patient participation; social adjustment; social support

Mesh:

Year:  2017        PMID: 28366109     DOI: 10.1177/0194599817697030

Source DB:  PubMed          Journal:  Otolaryngol Head Neck Surg        ISSN: 0194-5998            Impact factor:   3.497


  14 in total

1.  Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

Authors:  Lori A Newkirk; Virginia L Dao; Joshua T Jordan; Loren I Alving; Helen D Davies; Linda Hewett; Sherry A Beaudreau; Logan D Schneider; Christine E Gould; Christina F Chick; Rayna B Hirst; Sophia Miryam Schüssler-Fiorenza Rose; Lauren A Anker; Jared R Tinklenberg; Ruth O'Hara
Journal:  J Alzheimers Dis       Date:  2020       Impact factor: 4.472

2.  European white paper: oropharyngeal dysphagia in head and neck cancer.

Authors:  Laura W J Baijens; Margaret Walshe; Leena-Maija Aaltonen; Christoph Arens; Reinie Cordier; Patrick Cras; Lise Crevier-Buchman; Chris Curtis; Wojciech Golusinski; Roganie Govender; Jesper Grau Eriksen; Kevin Hansen; Kate Heathcote; Markus M Hess; Sefik Hosal; Jens Peter Klussmann; C René Leemans; Denise MacCarthy; Beatrice Manduchi; Jean-Paul Marie; Reza Nouraei; Claire Parkes; Christina Pflug; Walmari Pilz; Julie Regan; Nathalie Rommel; Antonio Schindler; Annemie M W J Schols; Renee Speyer; Giovanni Succo; Irene Wessel; Anna C H Willemsen; Taner Yilmaz; Pere Clavé
Journal:  Eur Arch Otorhinolaryngol       Date:  2020-12-19       Impact factor: 2.503

3.  A survey of patients with laryngotracheal stenosis on future clinical trial design.

Authors:  Ioan Lina; Alexandra Berges; Rafael Ospino; Kevin Motz; Ruth Davis; Catherine Anderson; Mary Stroud; Casey Rodweller; Alexander Gelbard; Alexander T Hillel
Journal:  Clin Trials       Date:  2022-01-06       Impact factor: 2.599

4.  Support Group Participation: Effect on Perceptions of Patients with Newly Diagnosed Multiple Sclerosis.

Authors:  Meghan Garabedian; Erin Perrone; Caitlin Pileggi; Vanessa Zimmerman
Journal:  Int J MS Care       Date:  2019-10-08

Review 5.  Speech-Language Pathology Evaluation and Management of Hyperkinetic Disorders Affecting Speech and Swallowing Function.

Authors:  Julie M Barkmeier-Kraemer; Heather M Clark
Journal:  Tremor Other Hyperkinet Mov (N Y)       Date:  2017-09-21

6.  Brain Tumor Discussions on Twitter (#BTSM): Social Network Analysis.

Authors:  Josemari T Feliciano; Liz Salmi; Charlie Blotner; Adam Hayden; Edjah K Nduom; Bethany M Kwan; Matthew S Katz; Elizabeth B Claus
Journal:  J Med Internet Res       Date:  2020-10-08       Impact factor: 5.428

7.  What are People That Seek Care for Rotator Cuff Tendinopathy Experiencing in Their Daily Life?

Authors:  Chris Ulack; Joel Suarez; Laura Brown; David Ring; Scott Wallace; Elizabeth Teisberg
Journal:  J Patient Exp       Date:  2022-01-05

8.  Evaluation of Attachment Style and Social Support in Patients With Severe Migraine. Applications in Doctor-Patient Relationships and Treatment Adherence.

Authors:  Rose-Angélique Belot; Margaux Bouteloup; Magalie Bonnet; Anne-Laure Parmentier; Eloi Magnin; Frédéric Mauny; Fabrice Vuillier
Journal:  Front Neurol       Date:  2021-07-12       Impact factor: 4.003

9.  Lessons for Patient Engagement in Research in Low- and Middle-Income Countries.

Authors:  Ana Janic; Kahaki Kimani; Isabel Olembo; Helen Dimaras
Journal:  Ophthalmol Ther       Date:  2020-03-28

10.  Surgical decision making in premenopausal BRCA carriers considering risk-reducing early salpingectomy or salpingo-oophorectomy: a qualitative study.

Authors:  Faiza Gaba; Shivam Goyal; Dalya Marks; Dhivya Chandrasekaran; Olivia Evans; Sadiyah Robbani; Charlotte Tyson; Rosa Legood; Ertan Saridogan; W Glenn McCluggage; Helen Hanson; Naveena Singh; D Gareth Evans; Usha Menon; Ranjit Manchanda
Journal:  J Med Genet       Date:  2021-02-10       Impact factor: 6.318

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