Literature DB >> 28353189

Reflections on Ethics and Humanity in Pediatric Neurology: the Value of Recognizing Ethical Issues in Common Clinical Practice.

Gabriel M Ronen1, Peter L Rosenbaum2.   

Abstract

Our goals in this reflection are to (i) identify the ethical dimensions inherent in any clinical encounter and (ii) bring to the forefront of our pediatric neurology practice the myriad of opportunities to explore and learn from these ethical questions. We highlight specifically Beauchamp and Childress's principles of biomedical ethics. We use the terms ethics in common clinical practice and an ethical lens to remind people of the ubiquity of ethical situations and the usefulness of using existing ethical principles to analyze and resolve difficult situations in clinical practice. We start with a few common situations with which many of us tend to struggle. We describe what we understand as ethics and how and why developments in technology, novel potential interventions, policies, and societal perspectives challenge us to think about and debate ethical issues. Individual patients are not a singular population; each patient has their own unique life situations, culture, goals, and expectations that need to be considered with a good dose of humanity and humility. We believe that using an ethical lens-by which we mean making an explicit effort to identify and consider these issues openly-will help us to achieve this goal in practice, education, and research.

Entities:  

Keywords:  Children; Clinical ethics; Education; Morality; Neurodisability; Research

Mesh:

Year:  2017        PMID: 28353189     DOI: 10.1007/s11910-017-0749-7

Source DB:  PubMed          Journal:  Curr Neurol Neurosci Rep        ISSN: 1528-4042            Impact factor:   5.081


  14 in total

1.  Technology-assisted language intervention for children who are deaf or hard-of-hearing; a pilot study of augmentative and alternative communication for enhancing language development.

Authors:  Jareen Meinzen-Derr; Susan Wiley; Rose McAuley; Laura Smith; Sandra Grether
Journal:  Disabil Rehabil Assist Technol       Date:  2016-12-16

Review 2.  Early autism detection: are we ready for routine screening?

Authors:  Mona Al-Qabandi; Jan Willem Gorter; Peter Rosenbaum
Journal:  Pediatrics       Date:  2011-06-13       Impact factor: 7.124

3.  Assessing the effectiveness of community screening programs.

Authors:  D Cadman; L Chambers; W Feldman; D Sackett
Journal:  JAMA       Date:  1984 Mar 23-30       Impact factor: 56.272

Review 4.  Ethical considerations in pediatric neurology.

Authors:  Gabriel M Ronen; Bernard Dan
Journal:  Handb Clin Neurol       Date:  2013

Review 5.  The 'F-words' in childhood disability: I swear this is how we should think!

Authors:  P Rosenbaum; J W Gorter
Journal:  Child Care Health Dev       Date:  2011-11-01       Impact factor: 2.508

6.  Pascal's wager and the hanging of crepe.

Authors:  M Siegler
Journal:  N Engl J Med       Date:  1975-10-23       Impact factor: 91.245

7.  The nature of suffering and the goals of medicine.

Authors:  E J Cassel
Journal:  N Engl J Med       Date:  1982-03-18       Impact factor: 91.245

Review 8.  A systematic review of interventions for children with cerebral palsy: state of the evidence.

Authors:  Iona Novak; Sarah McIntyre; Catherine Morgan; Lanie Campbell; Leigha Dark; Natalie Morton; Elise Stumbles; Salli-Ann Wilson; Shona Goldsmith
Journal:  Dev Med Child Neurol       Date:  2013-08-21       Impact factor: 5.449

9.  Patient-reported outcome measures in children with chronic health conditions: terminology and utility.

Authors:  Gabriel M Ronen
Journal:  Dev Med Child Neurol       Date:  2016-04-27       Impact factor: 5.449

10.  Very large treatment effects in randomised trials as an empirical marker to indicate whether subsequent trials are necessary: meta-epidemiological assessment.

Authors:  Myura Nagendran; Tiago V Pereira; Grace Kiew; Douglas G Altman; Mahiben Maruthappu; John P A Ioannidis; Peter McCulloch
Journal:  BMJ       Date:  2016-10-27
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  2 in total

1.  Protocol for a scoping review about ethics in transition programmes for adolescents and young adults with neurodisabilities.

Authors:  Aline Bogossian; Jan Willem Gorter; Eric Racine
Journal:  BMJ Open       Date:  2018-08-17       Impact factor: 2.692

2.  A stakeholder meeting exploring the ethical perspectives of immediately sequential bilateral cataract surgery.

Authors:  Matthew Quinn; Daniel Gray; Ahmed Shalaby Bardan; Mehran Zarei-Ghanavati; John Sparrow; Christopher Liu
Journal:  J Med Ethics       Date:  2020-09-21       Impact factor: 2.903

  2 in total

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