Yannick Bleyenheuft1, Julie Paradis2, Anne Renders3, Jean-Louis Thonnard4, Carlyne Arnould5. 1. Institute of NeuroScience, Université catholique de Louvain, Brussels, Belgium. Electronic address: yannick.bleyenheuft@uclouvain.be. 2. Institute of NeuroScience, Université catholique de Louvain, Brussels, Belgium; Service l'escale, CHU Lyon, Lyon, France. 3. Clinques universitaires Saint-Luc, Université catholique de Louvain, Brussels, Belgium. 4. Institute of NeuroScience, Université catholique de Louvain, Brussels, Belgium; Clinques universitaires Saint-Luc, Université catholique de Louvain, Brussels, Belgium. 5. Haute Ecole Louvain en Hainaut, Physical and Occupational Therapy Department, Paramedical Category, Montignies-sur-Sambre, Belgium.
Abstract
OBJECTIVE: Children with cerebral palsy (CP) often have upper extremity (UE) and lower extremity (LE) impairments. While tools measuring separately UE and LE abilities are currently used, activities in which UE and LE are used in combination - numerous in everyday life - cannot be assessed because no instrument allows capturing global activity performance in children with CP. This study aimed to develop a clinical tool for measuring their global activity performance using the Rasch model. STUDY DESIGN: The caregivers of 226 children with CP (2-18 years old) answered a 154-item experimental questionnaire. Within 4-6 weeks, 129 of them filled in the questionnaire a second time. Responses were analyzed using the Rasch RUMM2020 software. RESULTS: The final 43 item scale presented a high reliability (R=0.98) and reproducibility (R=0.97). The item difficulty hierarchy was consistent over time and did not vary according to age, gender, or clinical form, allowing the follow-up of children from 2 to 18 years old. CONCLUSIONS: ACTIVLIM-CP is a unidimensional scale specifically developed to measure global activity performance in children with CP providing a reliable tool to follow children's evolution and document changes related to neurorehabilitation, especially where a combination of UE and LE is targeted. Its responsiveness is still to be tested.
OBJECTIVE:Children with cerebral palsy (CP) often have upper extremity (UE) and lower extremity (LE) impairments. While tools measuring separately UE and LE abilities are currently used, activities in which UE and LE are used in combination - numerous in everyday life - cannot be assessed because no instrument allows capturing global activity performance in children with CP. This study aimed to develop a clinical tool for measuring their global activity performance using the Rasch model. STUDY DESIGN: The caregivers of 226 children with CP (2-18 years old) answered a 154-item experimental questionnaire. Within 4-6 weeks, 129 of them filled in the questionnaire a second time. Responses were analyzed using the Rasch RUMM2020 software. RESULTS: The final 43 item scale presented a high reliability (R=0.98) and reproducibility (R=0.97). The item difficulty hierarchy was consistent over time and did not vary according to age, gender, or clinical form, allowing the follow-up of children from 2 to 18 years old. CONCLUSIONS: ACTIVLIM-CP is a unidimensional scale specifically developed to measure global activity performance in children with CP providing a reliable tool to follow children's evolution and document changes related to neurorehabilitation, especially where a combination of UE and LE is targeted. Its responsiveness is still to be tested.
Authors: Leanne Sakzewski; Sarah Reedman; Kate McLeod; Megan Thorley; Andrea Burgess; Stewart Trost; Matthew Ahmadi; David Rowell; Mark Chatfield; Yannick Bleyenheuft; Roslyn N Boyd Journal: BMJ Open Date: 2021-03-02 Impact factor: 2.692
Authors: R Araneda; S V Sizonenko; C J Newman; M Dinomais; G Le Gal; E Nowak; A Guzzetta; I Riquelme; S Brochard; Y Bleyenheuft Journal: BMC Neurol Date: 2020-04-14 Impact factor: 2.474