Literature DB >> 28329800

Characterizing Readiness for Advance Care Planning From the Perspective of Residents, Families, and Clinicians: An Interpretive Descriptive Study in Supportive Living.

Marta Shaw1, Jennifer Hewson2, David B Hogan1, Shelley Raffin Bouchal3, Jessica Simon1.   

Abstract

Background and
Objectives: Advance care planning (ACP) involves reflection on health care preferences and communication of the person's wishes in case of future incapacity. ACP is particularly pertinent in supportive living (SL) as residents are at high risk of cognitive decline and changes in health status, but the readiness of residents, families, and health care practitioners to engage in ACP discussions is not known. The purpose of this study was to explore the readiness among these stakeholders and the factors that influence the degree of readiness. Research Design and
Methods: Twenty-seven participants (10 residents, 8 family members, 9 health care practitioners) affiliated with 4 SL facilities in Calgary, AB, Canada took part in semistructured, one-on-one interviews. An interpretive descriptive approach was utilized to generate clinically relevant findings.
Results: Variability in the conceptualization of ACP, including confusion regarding terminology, emerged as a major theme. Themes that influenced readiness for engagement in ACP discussions included the influence of prior experience for residents and family members, perception of treatment goals, and understanding of roles in the process between the groups. Discussion and Implications: Recommendations for clinicians include clarifying ACP concepts for themselves and residents, shifting focus toward an elucidation of values and preferences rather than on documentation, greater clarity about the roles of the various stakeholders, and recognizing the importance of prior experience for residents and family members. These findings can be used to contribute to the understanding of ACP engagement in SL and inform an approach to engaging in meaningful discussions about ACP.

Entities:  

Mesh:

Year:  2018        PMID: 28329800     DOI: 10.1093/geront/gnx006

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  8 in total

Review 1.  Exploring the Uptake of Advance Care Planning in Older Adults: An Integrative Review.

Authors:  Erica Frechman; Mary S Dietrich; Rachel Lane Walden; Cathy A Maxwell
Journal:  J Pain Symptom Manage       Date:  2020-07-06       Impact factor: 3.612

2.  Influence of clinical context on interpretation and use of an advance care planning policy: a qualitative study.

Authors:  Marta Shaw; Shelley Raffin Bouchal; Lauren Hutchison; Reanne Booker; Jayna Holroyd-Leduc; Deborah White; Andrew Grant; Jessica Simon
Journal:  CMAJ Open       Date:  2020-01-07

3.  Advance Care Planning Needs in Idiopathic Pulmonary Fibrosis: A Qualitative Study.

Authors:  Meena Kalluri; Sara Orenstein; Nathan Archibald; Charlotte Pooler
Journal:  Am J Hosp Palliat Care       Date:  2021-08-26       Impact factor: 2.090

4.  Information needs of patients with chronic diseases and their relatives for web-based advance care planning: a qualitative interview study.

Authors:  Doris van der Smissen; Judith A C Rietjens; Lisette van Gemert-Pijnen; Sandra van Dulmen; Agnes van der Heide; Ida J Korfage
Journal:  BMC Palliat Care       Date:  2021-05-30       Impact factor: 3.234

Review 5.  A realist review of advance care planning for people with multiple sclerosis and their families.

Authors:  Laura Cottrell; Guillaume Economos; Catherine Evans; Eli Silber; Rachel Burman; Richard Nicholas; Bobbie Farsides; Stephen Ashford; Jonathan Simon Koffman
Journal:  PLoS One       Date:  2020-10-16       Impact factor: 3.240

6.  Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada.

Authors:  Ellie G Siden; Rachel Z Carter; Doris Barwich; Eman Hassan
Journal:  Health Expect       Date:  2021-12-14       Impact factor: 3.377

7.  Unraveling patients' readiness in advance care planning conversations: a qualitative study as part of the ACTION Study.

Authors:  M Zwakman; M M Milota; A van der Heide; L J Jabbarian; I J Korfage; J A C Rietjens; J J M van Delden; M C Kars
Journal:  Support Care Cancer       Date:  2020-10-01       Impact factor: 3.603

8.  Patient Views on Advance Care Planning in Cirrhosis: A Qualitative Analysis.

Authors:  Michelle Carbonneau; Tracy Davyduke; Jude Spiers; Amanda Brisebois; Kathleen Ismond; Puneeta Tandon
Journal:  Can J Gastroenterol Hepatol       Date:  2018-07-18
  8 in total

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