Literature DB >> 28270719

Listening through narratives: using a narrative approach when discussing fertility preservation options with young cancer patients.

S I G Roher1, J Gibson1, B E Gibson2, A A Gupta3.   

Abstract

Despite clinical practice guideline recommendations mandating that fertility preservation be discussed with young cancer patients, many providers fail to initiate such discussions with adolescents. Researchers and clinicians often focus on system-level changes to improve access to fertility preservation for adolescents and young adults in Canada. However, little of the available information considers the way in which health care providers approach those discussions. Research has shown that, even when fertility preservation options are broached with adolescents, survivors often report dissatisfaction with those conversations, thus raising additional concerns about their content and quality. Here, we consider how a narrative approach-and the Frank narrative typology in particular-could improve the quality of such conversations by helping providers to more accurately and thoughtfully respond to the needs of adolescent patients when discussing the possibility of fertility preservation. Based on findings from a qualitative research project, we provide concrete suggestions for how to more sensitively approach fertility preservation conversations with male adolescent cancer patients and survivors.

Entities:  

Keywords:  Fertility preservation; adolescent and young adult oncology; narrative medicine; patient-centred care

Year:  2017        PMID: 28270719      PMCID: PMC5330623          DOI: 10.3747/co.24.3419

Source DB:  PubMed          Journal:  Curr Oncol        ISSN: 1198-0052            Impact factor:   3.677


  38 in total

1.  Discussions regarding sperm banking with adolescent and young adult males who have cancer.

Authors:  Kim Nagel; Michael Neal
Journal:  J Pediatr Oncol Nurs       Date:  2008-02-12       Impact factor: 1.636

2.  Adolescents and young adults with cancer: towards better outcomes in Canada. Preamble.

Authors:  Ronald Barr; Paul Rogers; Brent Schacter
Journal:  Cancer       Date:  2011-05-15       Impact factor: 6.860

3.  Oncofertility in Canada: an overview of Canadian practice and suggested action plan.

Authors:  R Ronn; H E G Holzer
Journal:  Curr Oncol       Date:  2013-10       Impact factor: 3.677

4.  Quest, chaos and restitution: living with chronic fatigue syndrome/myalgic encephalomyelitis.

Authors:  Lisa Claire Whitehead
Journal:  Soc Sci Med       Date:  2005-10-19       Impact factor: 4.634

5.  Narrative-based medicine: potential, pitfalls, and practice.

Authors:  Vera Kalitzkus; Peter F Matthiessen
Journal:  Perm J       Date:  2009

6.  Association of an educational program in mindful communication with burnout, empathy, and attitudes among primary care physicians.

Authors:  Michael S Krasner; Ronald M Epstein; Howard Beckman; Anthony L Suchman; Benjamin Chapman; Christopher J Mooney; Timothy E Quill
Journal:  JAMA       Date:  2009-09-23       Impact factor: 56.272

7.  High risk of infertility and long term gonadal damage in males treated with high dose cyclophosphamide for sarcoma during childhood.

Authors:  L B Kenney; M R Laufer; F D Grant; H Grier; L Diller
Journal:  Cancer       Date:  2001-02-01       Impact factor: 6.860

8.  Concerns about infertility risks among pediatric oncology patients and their parents.

Authors:  B Elizabeth Oosterhuis; Tress Goodwin; Michaela Kiernan; Melissa M Hudson; Gary V Dahl
Journal:  Pediatr Blood Cancer       Date:  2008-01       Impact factor: 3.167

9.  Personal illness narratives: using reflective writing to teach empathy.

Authors:  Sayantani DasGupta; Rita Charon
Journal:  Acad Med       Date:  2004-04       Impact factor: 6.893

10.  Do men's and women's accounts of surviving a stroke conform to Frank's narrative genres?

Authors:  Emma F France; Kate Hunt; Clare Dow; Sally Wyke
Journal:  Qual Health Res       Date:  2013-10-24
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