OBJECTIVES: : analyze the discourse of healthcare professionals and families on the continuous and complex care for children with special healthcare needs; understand hospital discharge as a process centered on children demands and family learning. METHOD: : qualitative research conducted between 2013 and 2015 through semi-structured interviews, document analysis and the sensitive creative method; the participants were ten children with special healthcare needs, six professionals and eleven family members from a public pediatric teaching hospital in Rio de Janeiro. The data underwent critical discourse analysis. RESULTS: : at discharge, family caregivers should learn innovative care to guarantee the maintenance of their children's lives at home, but preparation is limited. CONCLUSION: : the clinicians and the families pointed out Nurse as the most qualified professional for this preparation, since caring for these children requires nursing care skills.
OBJECTIVES: : analyze the discourse of healthcare professionals and families on the continuous and complex care for children with special healthcare needs; understand hospital discharge as a process centered on children demands and family learning. METHOD: : qualitative research conducted between 2013 and 2015 through semi-structured interviews, document analysis and the sensitive creative method; the participants were ten children with special healthcare needs, six professionals and eleven family members from a public pediatric teaching hospital in Rio de Janeiro. The data underwent critical discourse analysis. RESULTS: : at discharge, family caregivers should learn innovative care to guarantee the maintenance of their children's lives at home, but preparation is limited. CONCLUSION: : the clinicians and the families pointed out Nurse as the most qualified professional for this preparation, since caring for these children requires nursing care skills.
Authors: Michelli Christina Magalhães Novais; Deusiane Santos Victor; Danielle da Silva Rodrigues; Bruno Oliveira Freitas; Nilo Manoel Pereira Vieira Barreto; Daiana de Jesus da Silva Mendes; Micheli Bernardone Saquetto Journal: Rev Paul Pediatr Date: 2021-06-23