Literature DB >> 28204949

Caregiver burden and the medical ethos.

Karsten Witt1, Johanne Stümpel2, Christiane Woopen2.   

Abstract

Are physicians sometimes morally required to ease caregiver burden? In our paper we defend an affirmative answer to this question. First, we examine the well-established principle that medical care should be centered on the patient. We argue that although this principle seems to give physicians some leeway to lessen caregivers' suffering, it is very restrictive when spelled out precisely. Based on a critical analysis of existing cases for transcending patient-centeredness we then go on to argue that the medical ethos should indeed contain a rule requiring physicians to alleviate caregiver burden under certain circumstances. Finally, we apply our findings to deep brain stimulation (DBS) for Parkinson's disease. We present empirical data from a recent study of DBS indicating that spousal caregivers of Parkinson patients treated with DBS are sometimes deeply troubled by the effects of the therapy and discuss what moral obligations the treating physicians may have in such cases.

Entities:  

Keywords:  Caregiver burden; Deep brain stimulation; Keywords; Medical ethos; Patient-centeredness

Mesh:

Year:  2017        PMID: 28204949     DOI: 10.1007/s11019-017-9757-2

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  33 in total

1.  Taking families seriously.

Authors:  J L Nelson
Journal:  Hastings Cent Rep       Date:  1992 Jul-Aug       Impact factor: 2.683

Review 2.  Reviving a distinctive medical ethic.

Authors:  L R Churchill
Journal:  Hastings Cent Rep       Date:  1989 May-Jun       Impact factor: 2.683

3.  A defense of unqualified medical confidentiality.

Authors:  Kenneth Kipnis
Journal:  Am J Bioeth       Date:  2006 Mar-Apr       Impact factor: 11.229

Review 4.  Neurosurgery in Parkinson's disease: the doctor is happy, the patient less so?

Authors:  Y Agid; M Schüpbach; M Gargiulo; L Mallet; J L Houeto; C Behar; D Maltête; V Mesnage; M L Welter
Journal:  J Neural Transm Suppl       Date:  2006

Review 5.  The moral nature of patient-centeredness: is it "just the right thing to do"?

Authors:  Patrick S Duggan; Gail Geller; Lisa A Cooper; Mary Catherine Beach
Journal:  Patient Educ Couns       Date:  2005-12-13

6.  The virtue of moral responsibility and the obligations of patients.

Authors:  Candace Cummins Gauthier
Journal:  J Med Philos       Date:  2005-04

7.  The trouble with families: toward an ethic of accommodation.

Authors:  C Levine; C Zuckerman
Journal:  Ann Intern Med       Date:  1999-01-19       Impact factor: 25.391

8.  Risk Factors of Caregiver Burden Evolution, for Patients With Subjective Cognitive Decline or Neurocognitive Disorders: A Longitudinal Analysis.

Authors:  Virginie Dauphinot; Alix Ravier; Teddy Novais; Floriane Delphin-Combe; Christelle Mouchoux; Pierre Krolak-Salmon
Journal:  J Am Med Dir Assoc       Date:  2016-08-26       Impact factor: 4.669

9.  Predictors of caregiver burden in partners of patients with Parkinson's disease.

Authors:  Marco D'Amelio; Valeria Terruso; Barbara Palmeri; Norma Di Benedetto; Giorgia Famoso; Paolo Cottone; Paolo Aridon; Paolo Ragonese; Giovanni Savettieri
Journal:  Neurol Sci       Date:  2009-02-03       Impact factor: 3.307

10.  Improving family communication after a new genetic diagnosis: a randomised controlled trial of a genetic counselling intervention.

Authors:  Jan M Hodgson; Sylvia A Metcalfe; Maryanne Aitken; Susan M Donath; Clara L Gaff; Ingrid M Winship; Martin B Delatycki; Loane L C Skene; Belinda J McClaren; Jean L Paul; Jane L Halliday
Journal:  BMC Med Genet       Date:  2014-03-14       Impact factor: 2.103

View more
  2 in total

Review 1.  Caregiver Burden in Partners of Parkinsonian Patients with Deep Brain Stimulation.

Authors:  Eileen Gülke; Monika Pötter-Nerger
Journal:  Brain Sci       Date:  2022-02-09

Review 2.  Bringing Advanced Therapies for Parkinson's Disease to the Clinic: An Analysis of Ethical Issues.

Authors:  Kristina Hug
Journal:  J Parkinsons Dis       Date:  2021       Impact factor: 5.568

  2 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.