C McClure1, S Reines2,3, P S Suchdev2,4, A Oladele5, A B Goodman2,6. 1. Emory University School of Medicine, Atlanta, GA, USA. calhoun.catherine.c@gmail.com. 2. Emory University School of Medicine, Atlanta, GA, USA. 3. The Southeast Permanente Medical Group, Atlanta, GA, USA. 4. National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA, USA. 5. DeKalb County Board of Health, Decatur, GA, USA. 6. National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA.
Abstract
BACKGROUND: Minimal literature exists regarding Autism Spectrum Disorder (ASD) among refugee children in the United States. Reliable ASD screening tools, such as the M-CHAT-R/F, have yet to be culturally adapted and translated into some languages spoken in the homes of these children. METHODS: Pediatric refugee patients (n = 13) of caregivers of Bhutanese (Nepali-speaking) descent were screened using a newly translated Nepali M-CHAT-R/F. The M-CHAT-R/F was adapted based on feedback from Bhutanese caregivers and interpreter expertise. Qualitative interviews regarding caregiver awareness of ASD were conducted. RESULTS: Caregivers understood the majority of M-CHAT-R/F items (91%). Four items required revision. Interviews revealed minimal awareness among Bhutanese caregivers regarding ASD or child development. DISCUSSION: The M-CHAT-R/F was adapted into Nepali using a combination of translation protocols, and is publicly available for clinical use. Future validation studies are needed which will aid in clinical screening for and epidemiologic research of ASD in this population.
BACKGROUND: Minimal literature exists regarding Autism Spectrum Disorder (ASD) among refugee children in the United States. Reliable ASD screening tools, such as the M-CHAT-R/F, have yet to be culturally adapted and translated into some languages spoken in the homes of these children. METHODS: Pediatric refugee patients (n = 13) of caregivers of Bhutanese (Nepali-speaking) descent were screened using a newly translated Nepali M-CHAT-R/F. The M-CHAT-R/F was adapted based on feedback from Bhutanese caregivers and interpreter expertise. Qualitative interviews regarding caregiver awareness of ASD were conducted. RESULTS: Caregivers understood the majority of M-CHAT-R/F items (91%). Four items required revision. Interviews revealed minimal awareness among Bhutanese caregivers regarding ASD or child development. DISCUSSION: The M-CHAT-R/F was adapted into Nepali using a combination of translation protocols, and is publicly available for clinical use. Future validation studies are needed which will aid in clinical screening for and epidemiologic research of ASD in this population.
Authors: P A Filipek; P J Accardo; G T Baranek; E H Cook; G Dawson; B Gordon; J S Gravel; C P Johnson; R J Kallen; S E Levy; N J Minshew; S Ozonoff; B M Prizant; I Rapin; S J Rogers; W L Stone; S Teplin; R F Tuchman; F R Volkmar Journal: J Autism Dev Disord Date: 1999-12
Authors: Ricardo Canal-Bedia; Patricia García-Primo; María Victoria Martín-Cilleros; José Santos-Borbujo; Zoila Guisuraga-Fernández; Lorena Herráez-García; María del Mar Herráez-García; Leticia Boada-Muñoz; Joaquín Fuentes-Biggi; Manuel Posada-de la Paz Journal: J Autism Dev Disord Date: 2011-10
Authors: Michaela DuBay; Linda R Watson; Grace T Baranek; Helen Lee; Carolina Rojevic; William Brinson; Danna Smith; John Sideris Journal: J Autism Dev Disord Date: 2021-01-04