Literature DB >> 28173710

Health researcher views on comparative effectiveness research and research engagement.

Laura P Forsythe1, Lori B Frank1, Thomas A Workman2, Amanda Borsky2, Tandrea Hilliard2, Daniel Harwell2, Lauren Fayish1.   

Abstract

AIM: To understand researcher capability for and interest in patient-centered comparative effectiveness research (PC-CER), particularly related to engaging with patients/caregivers. MATERIALS &
METHODS: Web-based survey of 508 health researchers recruited via professional health research organizations.
RESULTS: Most respondents (94%) were familiar with CER and many (69%) reported having previously conducting some form of CER. Most respondents were familiar with (81%) and interested in (87%) partnering with patients and/or caregivers in research. Resources to assist in training, coordination of partners, guidance in apply for funding and improved infrastructure were commonly cited factors that would help researchers conduct PC-CER.
CONCLUSION: There is a significant opportunity for researchers to engage patients and caregivers as partners in CER. Researchers recognize the need for additional training and expertise to leverage those opportunities.

Entities:  

Keywords:  comparative effectiveness research; engagement; health researchers

Mesh:

Year:  2017        PMID: 28173710     DOI: 10.2217/cer-2016-0063

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  4 in total

1.  Practical Guidance for Involving Stakeholders in Health Research.

Authors:  Thomas W Concannon; Sean Grant; Vivian Welch; Jennifer Petkovic; Joseph Selby; Sally Crowe; Anneliese Synnot; Regina Greer-Smith; Evan Mayo-Wilson; Ellen Tambor; Peter Tugwell
Journal:  J Gen Intern Med       Date:  2018-12-18       Impact factor: 5.128

2.  Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research.

Authors:  James D Harrison; Wendy G Anderson; Maureen Fagan; Edmondo Robinson; Jeffrey Schnipper; Gina Symczak; Catherine Hanson; Martha B Carnie; Jim Banta; Sherry Chen; Jonathan Duong; Celene Wong; Andrew D Auerbach
Journal:  Patient       Date:  2018-08       Impact factor: 3.883

3.  Good practices for real-world data studies of treatment and/or comparative effectiveness: Recommendations from the joint ISPOR-ISPE Special Task Force on real-world evidence in health care decision making.

Authors:  Marc L Berger; Harold Sox; Richard J Willke; Diana L Brixner; Hans-Georg Eichler; Wim Goettsch; David Madigan; Amr Makady; Sebastian Schneeweiss; Rosanna Tarricone; Shirley V Wang; John Watkins; C Daniel Mullins
Journal:  Pharmacoepidemiol Drug Saf       Date:  2017-09       Impact factor: 2.890

4.  What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings.

Authors:  Rachel Hemphill; Laura P Forsythe; Andrea L Heckert; Andrew Amolegbe; Maureen Maurer; Kristin L Carman; Rikki Mangrum; Lisa Stewart; Ninma Fearon; Laura Esmail
Journal:  Health Expect       Date:  2019-12-04       Impact factor: 3.377

  4 in total

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