Literature DB >> 28159098

Reducing the Clinical and Socioeconomic Burden of Narcolepsy by Earlier Diagnosis and Effective Treatment.

Michael Thorpy1, Anne Marie Morse2.   

Abstract

The burden of narcolepsy is likely the result of 2 main aspects: the clinical difficulties and disability incurred as a direct effect of the disorder and the socioeconomic burden. The clinical burden includes the symptoms, diagnosis, comorbidities, treatment, and even mortality that can be associated with narcolepsy. Lifelong therapy is necessary for these patients. Effective treatment results in long-term benefits from both patient and societal perspectives by improving clinical outcomes, potentially enabling improved education and increased employment and work productivity, and quality of life. Thus, reducing the time to appropriate management results in improved outcomes in these patients.
Copyright © 2017 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Burden; Cataplexy; Comorbidities; Diagnosis; Narcolepsy; Psychosocial; Sleepiness; Socioeconomic

Mesh:

Year:  2017        PMID: 28159098     DOI: 10.1016/j.jsmc.2016.10.001

Source DB:  PubMed          Journal:  Sleep Med Clin        ISSN: 1556-407X


  5 in total

1.  Observation and Interview-based Diurnal Sleepiness Inventory for measurement of sleepiness in patients referred for narcolepsy or idiopathic hypersomnia.

Authors:  Laure Peter-Derex; Fabien Subtil; Guillaume Lemaitre; François Ricordeau; Hélène Bastuji; Agathe Bridoux; Fannie Onen; S-Hakki Onen
Journal:  J Clin Sleep Med       Date:  2020-09-15       Impact factor: 4.062

2.  Pregnancy and Contraception Experiences in Women With Narcolepsy: A Narcolepsy Network Survey.

Authors:  Maeve Pascoe; Lawrence P Carter; Eveline Honig; James Bena; Nancy Foldvary-Schaefer
Journal:  J Clin Sleep Med       Date:  2019-10-15       Impact factor: 4.062

Review 3.  Narcolepsy and Psychiatric Disorders: Comorbidities or Shared Pathophysiology?

Authors:  Anne Marie Morse; Kothare Sanjeev
Journal:  Med Sci (Basel)       Date:  2018-02-15

Review 4.  Narcolepsy in Children and Adults: A Guide to Improved Recognition, Diagnosis and Management.

Authors:  Anne Marie Morse
Journal:  Med Sci (Basel)       Date:  2019-11-27

5.  A Mobile App for Longterm Monitoring of Narcolepsy Symptoms: Design, Development, and Evaluation.

Authors:  Laury Quaedackers; Jan De Wit; Sigrid Pillen; Merel Van Gilst; Nikolaos Batalas; Gert Jan Lammers; Panos Markopoulos; Sebastiaan Overeem
Journal:  JMIR Mhealth Uhealth       Date:  2020-01-07       Impact factor: 4.773

  5 in total

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