Literature DB >> 28130711

The right to be forgotten: a change in access to insurance and loans after childhood cancer?

Agnès Dumas1,2, Rodrigue Allodji3,4, Brice Fresneau3,4,5, Dominique Valteau-Couanet5, Chiraz El-Fayech5, Hélène Pacquement6, Anne Laprie7, Tan Dat Nguyen8, Pierre-Yves Bondiau9, Ibrahima Diallo3,4, Catherine Guibout3,4, Carole Rubino3,4, Nadia Haddy3,4, Odile Oberlin5, Gilles Vassal4, Florent de Vathaire3,4.   

Abstract

PURPOSE: Access to insurance for a loan or a mortgage is an important issue for childhood cancer survivors. The aim of this study was to describe difficulties experienced by adult survivors.
METHODS: A total of 1920 survivors treated before the age of 18 in five French cancer centers responded to a questionnaire in 2010. Survivors who had tried to obtain a loan were asked if they had experienced difficulties, which were defined as experiencing rejection, higher premiums, or exclusions. The questionnaire investigated health problems related to the circulatory, respiratory, digestive, urinary, endocrine, hormonal, and nervous systems. Second tumors, diabetes mellitus, cardiac disease, and stroke were ascertained from a physician's report or medical records. Multivariable analyses were conducted to identify the characteristics of survivors reporting difficulties.
RESULTS: Difficulties were experienced by 10.4% of those who had tried to obtain a small loan (n = 787) and by 30.1% of those who had tried to obtain a home loan (n = 909). Disclosure of childhood cancer to the insurer and amputation surgery were negatively associated with insurance accessibility, even when controlling for age, gender, education, health-related unemployment, familial situation, and severe or life-threatening conditions such as cardiovascular diseases, second cancers, or diabetes.
CONCLUSION: This study showed that the financial burden of cancer can extend decades after diagnosis. IMPLICATIONS FOR CANCER SURVIVORS: Thanks to a 2016 law, French cancer survivors no longer have to disclose their cancer to insurers after a fixed number of years. This law will probably lessen the socioeconomic burden of cancer.

Entities:  

Keywords:  Cohort studies; Discrimination; Economic burden of disease; Long-term adverse effects; Quality of life; Survivorship

Mesh:

Year:  2017        PMID: 28130711     DOI: 10.1007/s11764-017-0600-9

Source DB:  PubMed          Journal:  J Cancer Surviv        ISSN: 1932-2259            Impact factor:   4.442


  14 in total

1.  Access to loan-related insurance for French cancer survivors.

Authors:  Agnès Dumas; Florent De Vathaire; Gilles Vassal
Journal:  Lancet Oncol       Date:  2016-10       Impact factor: 41.316

2.  Socio-economic implications of cancer survivorship: results from the PROFILES registry.

Authors:  Floortje Mols; Melissa S Y Thong; Pauline Vissers; Tamar Nijsten; Lonneke V van de Poll-Franse
Journal:  Eur J Cancer       Date:  2011-12-21       Impact factor: 9.162

3.  The health-related quality of life of long-term survivors of melanoma treated with isolated limb perfusion.

Authors:  E M Noorda; R H J van Kreij; B C Vrouenraets; O E Nieweg; M Muller; B B R Kroon; N K Aaronson
Journal:  Eur J Surg Oncol       Date:  2007-02-14       Impact factor: 4.424

4.  Quality of life in long-term survivors of testicular cancer: a population-based case-control study.

Authors:  F Joly; J F Héron; L Kalusinski; P Bottet; D Brune; N Allouache; J Macé-Lesec'h; J E Couëtte; J Pény; M Henry-Amar
Journal:  J Clin Oncol       Date:  2002-01-01       Impact factor: 44.544

5.  Unemployment among adult survivors of childhood cancer: a report from the childhood cancer survivor study.

Authors:  Anne C Kirchhoff; Wendy Leisenring; Kevin R Krull; Kirsten K Ness; Debra L Friedman; Gregory T Armstrong; Marilyn Stovall; Elyse R Park; Kevin C Oeffinger; Melissa M Hudson; Leslie L Robison; Thomas Wickizer
Journal:  Med Care       Date:  2010-11       Impact factor: 2.983

6.  Long-term outcomes of childhood cancer survivors in Sweden: a population-based study of education, employment, and income.

Authors:  Krister K Boman; Frank Lindblad; Anders Hjern
Journal:  Cancer       Date:  2010-03-01       Impact factor: 6.860

7.  Chronic health conditions in adult survivors of childhood cancer.

Authors:  Kevin C Oeffinger; Ann C Mertens; Charles A Sklar; Toana Kawashima; Melissa M Hudson; Anna T Meadows; Debra L Friedman; Neyssa Marina; Wendy Hobbie; Nina S Kadan-Lottick; Cindy L Schwartz; Wendy Leisenring; Leslie L Robison
Journal:  N Engl J Med       Date:  2006-10-12       Impact factor: 176.079

8.  Employment and insurance outcomes and factors associated with employment among long-term thyroid cancer survivors: a population-based study from the PROFILES registry.

Authors:  S J Tamminga; U Bültmann; O Husson; J L P Kuijpens; M H W Frings-Dresen; A G E M de Boer
Journal:  Qual Life Res       Date:  2015-09-22       Impact factor: 4.147

9.  Income in Adult Survivors of Childhood Cancer.

Authors:  Laura Wengenroth; Grit Sommer; Matthias Schindler; Ben D Spycher; Nicolas X von der Weid; Eveline Stutz-Grunder; Gisela Michel; Claudia E Kuehni
Journal:  PLoS One       Date:  2016-05-23       Impact factor: 3.240

10.  Educational and occupational outcomes of childhood cancer survivors 30 years after diagnosis: a French cohort study.

Authors:  Agnes Dumas; Claire Berger; Pascal Auquier; Gérard Michel; Brice Fresneau; Rodrigue Sètchéou Allodji; Nadia Haddy; Carole Rubino; Gilles Vassal; Dominique Valteau-Couanet; Sandrine Thouvenin-Doulet; Léonie Casagranda; Hélène Pacquement; Chiraz El-Fayech; Odile Oberlin; Catherine Guibout; Florent de Vathaire
Journal:  Br J Cancer       Date:  2016-04-26       Impact factor: 7.640

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  6 in total

Review 1.  Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade.

Authors:  Emily S Tonorezos; Dana Barnea; Richard J Cohn; Monica S Cypriano; Brice C Fresneau; Riccardo Haupt; Lars Hjorth; Yasushi Ishida; Jarmila Kruseova; Claudia E Kuehni; Purna A Kurkure; Thorsten Langer; Paul C Nathan; Jane E Skeen; Roderick Skinner; Nurdan Tacyildiz; Marry M van den Heuvel-Eibrink; Jeanette F Winther; Melissa M Hudson; Kevin C Oeffinger
Journal:  J Clin Oncol       Date:  2018-06-06       Impact factor: 44.544

2.  Childhood Cancer Survivors: Self-Reported Quality of Life during and after the Cancer Trajectory.

Authors:  Margaretha Stenmarker; Karin Enskär; Maria Björk; Mirka Pinkava; Bo Rolander; Marie Golsäter
Journal:  Asia Pac J Oncol Nurs       Date:  2020-09-14

Review 3.  Cancer survivorship: an integral part of Europe's research agenda.

Authors:  Pernilla Lagergren; Anna Schandl; Neil K Aaronson; Hans-Olov Adami; Francesco de Lorenzo; Louis Denis; Sara Faithfull; Lifang Liu; Franḉoise Meunier; Cornelia Ulrich
Journal:  Mol Oncol       Date:  2019-01-08       Impact factor: 6.603

4.  Prognosis and cure of long-term cancer survivors: A population-based estimation.

Authors:  Luigino Dal Maso; Chiara Panato; Stefano Guzzinati; Diego Serraino; Silvia Francisci; Laura Botta; Riccardo Capocaccia; Andrea Tavilla; Anna Gigli; Emanuele Crocetti; Massimo Rugge; Giovanna Tagliabue; Rosa Angela Filiberti; Giuliano Carrozzi; Maria Michiara; Stefano Ferretti; Rosaria Cesaraccio; Rosario Tumino; Fabio Falcini; Fabrizio Stracci; Antonietta Torrisi; Guido Mazzoleni; Mario Fusco; Stefano Rosso; Francesco Tisano; Anna Clara Fanetti; Giovanna Maria Sini; Carlotta Buzzoni; Roberta De Angelis
Journal:  Cancer Med       Date:  2019-06-17       Impact factor: 4.452

5.  Health and life insurance-related problems in very long-term cancer survivors in Germany: a population-based study.

Authors:  Melissa S Y Thong; Daniela Doege; Linda Weißer; Lena Koch-Gallenkamp; Heike Bertram; Andrea Eberle; Bernd Holleczek; Alice Nennecke; Annika Waldmann; Sylke Ruth Zeissig; Ron Pritzkuleit; Michael Schlander; Hermann Brenner; Volker Arndt
Journal:  J Cancer Res Clin Oncol       Date:  2021-10-13       Impact factor: 4.553

6.  Cross-sectional nationwide mixed-methods population-based study of living conditions, and identification of sexual and fertility profiles among young women after breast cancer in France: the Candy study protocol.

Authors:  Emerline L F Assogba; Agnès Dumas; Anne-Sophie Woronoff; Caroline Mollévi; Charles Coutant; Sylvain Ladoire; Isabelle Desmoulins; Tienhan Sandrine Dabakuyo-Yonli
Journal:  BMJ Open       Date:  2022-09-28       Impact factor: 3.006

  6 in total

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