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3 in total

1. Towards consensus for best practice: the use of patient records for research in general practice.

Authors: Nigel Mathers; Nicola M R Perrin; Graham C M Watt
Journal: Br J Gen Pract Date: 2008-11 Impact factor: 5.386

2. Big health data: the need to earn public trust.

Authors: Tjeerd-Pieter van Staa; Ben Goldacre; Iain Buchan; Liam Smeeth
Journal: BMJ Date: 2016-07-14

3. A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: a privacy-protecting remote access system for health-related research and evaluation.

Authors: Kerina H Jones; David V Ford; Chris Jones; Rohan Dsilva; Simon Thompson; Caroline J Brooks; Martin L Heaven; Daniel S Thayer; Cynthia L McNerney; Ronan A Lyons
Journal: J Biomed Inform Date: 2014-01-15 Impact factor: 6.317

3 in total

1. Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research.

Authors: Katharina Beier; Mark Schweda; Silke Schicktanz
Journal: BMC Med Inform Decis Mak Date: 2019-04-25 Impact factor: 2.796

2. Share and protect our health data: an evidence based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations.

Authors: Sandra Courbier; Rebecca Dimond; Virginie Bros-Facer
Journal: Orphanet J Rare Dis Date: 2019-07-12 Impact factor: 4.123

3. Sharing whilst caring: solidarity and public trust in a data-driven healthcare system.

Authors: Ruth Horn; Angeliki Kerasidou
Journal: BMC Med Ethics Date: 2020-11-03 Impact factor: 2.652

3 in total