Katarina Pihl Lesnovska1,2, Gunilla Hollman Frisman2,3, Henrik Hjortswang1,4, Katarina Hjelm5, Sussanne Börjeson2. 1. Department of Gastroenterology, Linköping University, Linköping, Sweden. 2. Department of Medical and Health Sciences, Linköping University, Linköping, Sweden. 3. Department of Anaesthetics, Operations and Specialty Surgery Center, Linköping University, Linköping, Sweden. 4. Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden. 5. Department of Social and Welfare Studies, Linköping University, Norrkoping, Sweden.
Abstract
AIMS AND OBJECTIVES: The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease. BACKGROUND: The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high-quality care, greater focus must be placed on the individual's own perspective of living with the condition. DESIGN: A qualitative exploratory study was conducted based on focus groups. METHODS: Five focus groups were conducted with adult persons living with inflammatory bowel disease, 14 men and 12 women aged 19-76 years. The interviews were performed between January-June 2014. RESULTS: The perceptions of health care from the perspective of persons living with inflammatory bowel disease were summarised in two categories: 'professional attitudes of healthcare staff' and 'structure of the healthcare organisation'. Persons with inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision-making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organisation comprise access to care, accommodation, continuity of care, as well as the pros and cons of specialised care. CONCLUSION: The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs - but there is room for improvement in terms of quality of care. RELEVANCE TO CLINICAL PRACTICE: A person-centred approach, which places the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high-quality healthcare organisation for patients with Inflammatory bowel disease.
AIMS AND OBJECTIVES: The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease. BACKGROUND: The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high-quality care, greater focus must be placed on the individual's own perspective of living with the condition. DESIGN: A qualitative exploratory study was conducted based on focus groups. METHODS: Five focus groups were conducted with adult persons living with inflammatory bowel disease, 14 men and 12 women aged 19-76 years. The interviews were performed between January-June 2014. RESULTS: The perceptions of health care from the perspective of persons living with inflammatory bowel disease were summarised in two categories: 'professional attitudes of healthcare staff' and 'structure of the healthcare organisation'. Persons with inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision-making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organisation comprise access to care, accommodation, continuity of care, as well as the pros and cons of specialised care. CONCLUSION: The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs - but there is room for improvement in terms of quality of care. RELEVANCE TO CLINICAL PRACTICE: A person-centred approach, which places the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high-quality healthcare organisation for patients with Inflammatory bowel disease.