Literature DB >> 28100583

Every participant is a PI. Citizen science and participatory governance in population studies.

Alena Buyx1, Lorenzo Del Savio1, Barbara Prainsack2, Henry Völzke3.   

Abstract

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Year:  2017        PMID： 28100583     DOI： 10.1093/ije/dyw204

Source DB:  PubMed          Journal:  Int J Epidemiol        ISSN： 0300-5771            Impact factor:   7.196


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  10 in total

1.  Opinion: Toward an international definition of citizen science.

Authors:  Florian Heigl; Barbara Kieslinger; Katharina T Paul; Julia Uhlik; Daniel Dörler
Journal:  Proc Natl Acad Sci U S A       Date:  2019-04-23       Impact factor: 11.205

2.  Gamete and embryo donation for research: what might shape the willingness to donate among gamete donors and recipients?

Authors:  Sandra Pinto da Silva; Cláudia de Freitas; Milton Severo; Susana Silva
Journal:  J Assist Reprod Genet       Date:  2022-08-20       Impact factor: 3.357

3.  Public Views About Involvement in Decision-Making on Health Data Sharing, Access, Use and Reuse: The Importance of Trust in Science and Other Institutions.

Authors:  Ngozi Nwebonyi; Susana Silva; Cláudia de Freitas
Journal:  Front Public Health       Date:  2022-05-10

4.  Citizen science to further precision medicine: from vision to implementation.

Authors:  Carolyn Petersen; Robin R Austin; Uba Backonja; Hugo Campos; Arlene E Chung; Eric B Hekler; Pei-Yun S Hsueh; Katherine K Kim; Anthony Pho; Liz Salmi; Anthony Solomonides; Rupa S Valdez
Journal:  JAMIA Open       Date:  2019-12-03

5.  Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine.

Authors:  Amelia Fiske; Barbara Prainsack; Alena Buyx
Journal:  J Med Ethics       Date:  2019-07-12       Impact factor: 2.903

6.  Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research.

Authors:  Cláudia de Freitas; Mariana Amorim; Helena Machado; Elisa Leão Teles; Maria João Baptista; Alicia Renedo; Veerle Provoost; Susana Silva
Journal:  BMJ Open       Date:  2021-03-15       Impact factor: 2.692

7.  Public awareness of and attitudes towards research biobanks in Latvia.

Authors:  S Mezinska; J Kaleja; I Mileiko; D Santare; V Rovite; L Tzivian
Journal:  BMC Med Ethics       Date:  2020-07-31       Impact factor: 2.652

8.  Involving Patient Groups in Drug Research: A Systematic Review of Reasons.

Authors:  Christoph Rach; Jan Lukas; Regina Müller; Matthias Sendler; Peter Simon; Sabine Salloch
Journal:  Patient Prefer Adherence       Date:  2020-03-12       Impact factor: 2.711

9.  Dual consent? Donors' and recipients' views about involvement in decision-making on the use of embryos created by gamete donation in research.

Authors:  I Baía; C de Freitas; C Samorinha; V Provoost; S Silva
Journal:  BMC Med Ethics       Date:  2019-12-02       Impact factor: 2.652

10.  The SmartSleep Experiment: Evaluation of changes in night-time smartphone behavior following a mass media citizen science campaign.

Authors:  Thea Otte Andersen; Agnete Skovlund Dissing; Tibor V Varga; Naja Hulvej Rod
Journal:  PLoS One       Date:  2021-07-21       Impact factor: 3.240
  10 in total

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