Literature DB >> 28085750

Parent-perceived Facilitators in the Transition of Care for Young Adult Survivors of Childhood Cancer.

Amanda DiNofia1, Kate Shafer, Katarina Steacy, Karim Thomas Sadak.   

Abstract

Most childhood cancer survivors need life-long care with specialized late-effects surveillance and screening. As these children age into adulthood, it is imperative to continue their survivor-focused care. To do so, health care systems must be prepared to care for this growing and aging population. This includes creating models of care that take into account the needs and desires of all key stakeholders: survivors, parents, pediatric providers, and adult providers. This clinical observation describes that parents desire comprehensive and highly accessible survivorship care that promotes survivor independence; yet, they also want to have a central role in their child's survivorship care.

Entities:  

Mesh:

Year:  2017        PMID: 28085750     DOI: 10.1097/MPH.0000000000000765

Source DB:  PubMed          Journal:  J Pediatr Hematol Oncol        ISSN: 1077-4114            Impact factor:   1.289


  5 in total

1.  Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care.

Authors:  Beeshman S Nandakumar; Joanna E Fardell; Claire E Wakefield; Christina Signorelli; Jordana K McLoone; Jane Skeen; Ann M Maguire; Richard J Cohn
Journal:  Support Care Cancer       Date:  2018-03-02       Impact factor: 3.603

2.  Survivorship care plan experiences among childhood acute lymphoblastic leukemia patients and their families.

Authors:  Samantha T Pannier; Karely Mann; Echo L Warner; Stephanie Rosen; Akanksha Acharya; Claire Hacking; Cheryl Gerdy; Jennifer Wright; Yelena P Wu; Anne C Kirchhoff
Journal:  BMC Pediatr       Date:  2019-04-13       Impact factor: 2.125

3.  Transition of care in pediatric oncohematology: a systematic literature review.

Authors:  Veronica Strini; Chiara Daicampi; Nicola Trevisan; Anna Marinetto; Angela Prendin; Elena Marinelli; Ilaria De Barbieri
Journal:  Acta Biomed       Date:  2020-06-20

Review 4.  Late Effects After Haematopoietic Stem Cell Transplantation in ALL, Long-Term Follow-Up and Transition: A Step Into Adult Life.

Authors:  Tamara Diesch-Furlanetto; Melissa Gabriel; Olga Zajac-Spychala; Alessandro Cattoni; Bianca A W Hoeben; Adriana Balduzzi
Journal:  Front Pediatr       Date:  2021-11-24       Impact factor: 3.418

5.  Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative interview study of parents.

Authors:  Karim Thomas Sadak; Milki Gemeda; Michelle C Grafelman; Taiwo O Aremu; Joseph P Neglia; David R Freyer; Eileen Harwood; Jude Mikal
Journal:  Cancer Med       Date:  2021-08-06       Impact factor: 4.452

  5 in total

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