Literature DB >> 28053759

Five fathers' experience of an adult son sustaining a cervical spinal cord injury: an interpretative phenomenological analysis.

Kevin J Hartie1, Jonathan A Smith1.   

Abstract

The paper presents an in-depth idiographic study exploring the experience of fathers who have an adult son with a cervical spinal cord injury (SCI). Five participants were recruited and individual semi-structured interviews were conducted. The interviews were transcribed verbatim and analyzed using interpretative phenomenological analysis. Two superordinate themes are presented highlighting. First, the ongoing negative impact of their sons' injury on the participants' role as fathers'. This comprises the negative impact on emotions with guilt common for failing in their perceived role as a father. The dissonance experienced between wanting to help encourage their sons' independence. Concern experienced due to their sons altered life trajectory and anxiety because they would not be alive to protect their son in the future. Second, how participants cope and adjust to their son's SCI are presented. Comprising of how positive thinking, such as focusing on their son surviving the trauma and the influence of seeing their son cope well affects how participants cope. Also, reflecting on how the injury has changed their life helps participants, to an extent, make sense of the trauma. The results are discussed in relation to the relevant extant literature to give a unique perspective about how SCI impacts their perceived role as fathers and the struggle to cope and adjust to the trauma. Future research investigating the impact of SCI on the family is warranted to better understand the wider implications.

Entities:  

Keywords:  Human behaviour; Quality of life

Year:  2016        PMID: 28053759      PMCID: PMC5129411          DOI: 10.1038/scsandc.2016.15

Source DB:  PubMed          Journal:  Spinal Cord Ser Cases        ISSN: 2058-6124


  19 in total

1.  The 1999 Eleanor Clarke Slagle Lecture. Defining lives: occupation as identity: an essay on competence, coherence, and the creation of meaning.

Authors:  C H Christiansen
Journal:  Am J Occup Ther       Date:  1999 Nov-Dec

2.  Coping responses in patients with spinal cord injury and adjustment difficulties.

Authors:  M P Belciug
Journal:  Int J Rehabil Res       Date:  2001-06       Impact factor: 1.479

3.  Measuring appraisals following acquired spinal cord injury: a preliminary psychometric analysis of the appraisals of disability.

Authors:  R E Dean; Paul Kennedy
Journal:  Rehabil Psychol       Date:  2009-05

4.  The experience of posttraumatic growth for people with spinal cord injury.

Authors:  Sanghee Chun; Youngkhill Lee
Journal:  Qual Health Res       Date:  2008-07

Review 5.  Psychosocial implications of spinal cord injury.

Authors:  M Gill
Journal:  Crit Care Nurs Q       Date:  1999-08

6.  Spinal cord injury and sexuality in married or partnered men: activities, function, needs, and predictors of sexual adjustment.

Authors:  J Phelps; M Albo; K Dunn; A Joseph
Journal:  Arch Sex Behav       Date:  2001-12

7.  Chronic sorrow: a parental response.

Authors:  A M Fraley
Journal:  J Pediatr Nurs       Date:  1990-08       Impact factor: 2.145

8.  Positive perceptions in families of children with developmental disabilities.

Authors:  Richard P Hastings; Helen M Taunt
Journal:  Am J Ment Retard       Date:  2002-03

9.  Husbands and wives as caregivers: antecedents of depression and burden.

Authors:  R A Pruchno; N L Resch
Journal:  Gerontologist       Date:  1989-04

10.  Aging parents of adults with disabilities: the gratifications and frustrations of later-life caregiving.

Authors:  J S Greenberg; M M Seltzer; J R Greenley
Journal:  Gerontologist       Date:  1993-08
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