Literature DB >> 28042072

Measuring Advance Care Planning: Optimizing the Advance Care Planning Engagement Survey.

Rebecca L Sudore1, Daren K Heyland2, Deborah E Barnes3, Michelle Howard4, Konrad Fassbender5, Carole A Robinson6, John Boscardin7, John J You8.   

Abstract

CONTEXT: A validated 82-item Advance Care Planning (ACP) Engagement Survey measures a broad range of behaviors. However, concise surveys are needed.
OBJECTIVES: The objective of this study was to validate shorter versions of the survey.
METHODS: The survey included 57 process (e.g., readiness) and 25 action items (e.g., discussions). For item reduction, we systematically eliminated questions based on face validity, item nonresponse, redundancy, ceiling effects, and factor analysis. We assessed internal consistency (Cronbach's alpha) and construct validity with cross-sectional correlations and the ability of the progressively shorter survey versions to detect change one week after exposure to an ACP intervention (Pearson correlation coefficients).
RESULTS: Five hundred one participants (four Canadian and three US sites) were included in item reduction (mean age 69 years [±10], 41% nonwhite). Because of high correlations between readiness and action items, all action items were removed. Because of high correlations and ceiling effects, two process items were removed. Successive factor analysis then created 55-, 34-, 15-, nine-, and four-item versions; 664 participants (from three US ACP clinical trials) were included in validity analysis (age 65 years [±8], 72% nonwhite, 34% Spanish speaking). Cronbach's alphas were high for all versions (four items 0.84-55 items 0.97). Compared with the original survey, cross-sectional correlations were high (four items 0.85; 55 items 0.97) as were delta correlations (four items 0.68; 55 items 0.93).
CONCLUSION: Shorter versions of the ACP Engagement Survey are valid, internally consistent, and able to detect change across a broad range of ACP behaviors for English and Spanish speakers. Shorter ACP surveys can efficiently measure broad ACP behaviors in research and clinical settings. Published by Elsevier Inc.

Entities:  

Keywords:  Advance care planning; psychometrics; surveys and questionnaires

Mesh:

Year:  2016        PMID: 28042072      PMCID: PMC5730058          DOI: 10.1016/j.jpainsymman.2016.10.367

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  11 in total

1.  A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem.

Authors:  Bernard J Hammes; Brenda L Rooney; Jacob D Gundrum
Journal:  J Am Geriatr Soc       Date:  2010-07       Impact factor: 5.562

2.  Advance directives and outcomes of surrogate decision making before death.

Authors:  Maria J Silveira; Scott Y H Kim; Kenneth M Langa
Journal:  N Engl J Med       Date:  2010-04-01       Impact factor: 91.245

3.  Promoting advance care planning as health behavior change: development of scales to assess Decisional Balance, Medical and Religious Beliefs, and Processes of Change.

Authors:  Terri R Fried; Colleen A Redding; Mark L Robbins; Andrea Paiva; John R O'Leary; Lynne Iannone
Journal:  Patient Educ Couns       Date:  2011-07-07

4.  Stages of change for the component behaviors of advance care planning.

Authors:  Terri R Fried; Colleen A Redding; Mark L Robbins; Andrea Paiva; John R O'Leary; Lynne Iannone
Journal:  J Am Geriatr Soc       Date:  2010-12       Impact factor: 5.562

5.  Redefining the "planning" in advance care planning: preparing for end-of-life decision making.

Authors:  Rebecca L Sudore; Terri R Fried
Journal:  Ann Intern Med       Date:  2010-08-17       Impact factor: 25.391

6.  Engagement in multiple steps of the advance care planning process: a descriptive study of diverse older adults.

Authors:  Rebecca L Sudore; Adam D Schickedanz; C Seth Landefeld; Brie A Williams; Karla Lindquist; Steven Z Pantilat; Dean Schillinger
Journal:  J Am Geriatr Soc       Date:  2008-04-10       Impact factor: 5.562

7.  A novel website to prepare diverse older adults for decision making and advance care planning: a pilot study.

Authors:  Rebecca L Sudore; Sara J Knight; Ryan D McMahan; Mariko Feuz; David Farrell; Yinghui Miao; Deborah E Barnes
Journal:  J Pain Symptom Manage       Date:  2013-08-21       Impact factor: 3.612

Review 8.  Does facilitated Advance Care Planning reduce the costs of care near the end of life? Systematic review and ethical considerations.

Authors:  Corinna Klingler; Jürgen in der Schmitten; Georg Marckmann
Journal:  Palliat Med       Date:  2015-08-20       Impact factor: 4.762

9.  Measuring engagement in advance care planning: a cross-sectional multicentre feasibility study.

Authors:  Michelle Howard; Aaron J Bonham; Daren K Heyland; Rebecca Sudore; Konrad Fassbender; Carole A Robinson; Michael McKenzie; Dawn Elston; John J You
Journal:  BMJ Open       Date:  2016-06-23       Impact factor: 2.692

10.  The advance care planning PREPARE study among older Veterans with serious and chronic illness: study protocol for a randomized controlled trial.

Authors:  Rebecca Sudore; Gem M Le; Ryan McMahan; Ryan McMahon; Mariko Feuz; Mary Katen; Deborah E Barnes
Journal:  Trials       Date:  2015-12-12       Impact factor: 2.279

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  55 in total

1.  Brief English and Spanish Survey Detects Change in Response to Advance Care Planning Interventions.

Authors:  Ying Shi; Deborah E Barnes; John Boscardin; John J You; Daren K Heyland; Aiesha M Volow; Michelle Howard; Rebecca L Sudore
Journal:  J Pain Symptom Manage       Date:  2019-09-18       Impact factor: 3.612

2.  Population-Based Pragmatic Trial of Advance Care Planning in Primary Care in the University of California Health System.

Authors:  Anne M Walling; Rebecca L Sudore; Doug Bell; Chi-Hong Tseng; Christine Ritchie; Ron D Hays; Lisa Gibbs; Maryam Rahimi; Javier Sanz; Neil S Wenger
Journal:  J Palliat Med       Date:  2019-09       Impact factor: 2.947

3.  Supporting In-Home Caregivers in Symptom Assessment of Frail Older Adults with Serious Illness: A Pilot Study.

Authors:  Sarah Nouri; Christine Ritchie; Pei Chen; Aiesha Volow; Brookelle Li; Ismael Tellez; Rebecca L Sudore
Journal:  J Palliat Med       Date:  2020-05-22       Impact factor: 2.947

4.  Effect of the PREPARE Website vs an Easy-to-Read Advance Directive on Advance Care Planning Documentation and Engagement Among Veterans: A Randomized Clinical Trial.

Authors:  Rebecca L Sudore; John Boscardin; Mariko A Feuz; Ryan D McMahan; Mary T Katen; Deborah E Barnes
Journal:  JAMA Intern Med       Date:  2017-08-01       Impact factor: 21.873

5.  "Find Out What They Lack, Try to Provide": A Qualitative Investigation of Palliative Care Services Adapted to Local Need in a Low-Resource Setting.

Authors:  Grace H Taylor; Eric L Krakauer; Justin J Sanders
Journal:  J Palliat Med       Date:  2020-01-07       Impact factor: 2.947

Review 6.  Achieving Goal-Concordant Care: A Conceptual Model and Approach to Measuring Serious Illness Communication and Its Impact.

Authors:  Justin J Sanders; J Randall Curtis; James A Tulsky
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

7.  Patient-centered and efficacious advance care planning in cancer: Protocol and key design considerations for the PEACe-compare trial.

Authors:  Judith M Resick; Robert M Arnold; Rebecca L Sudore; David Farrell; Shane Belin; Andrew D Althouse; Betty Ferrell; Bernard J Hammes; Edward Chu; Douglas B White; Kimberly J Rak; Yael Schenker
Journal:  Contemp Clin Trials       Date:  2020-07-31       Impact factor: 2.226

8.  Effect of an Interactive Website to Engage Patients in Advance Care Planning in Outpatient Settings.

Authors:  Michelle Howard; Carole A Robinson; Michael McKenzie; Gillian Fyles; Rebecca L Sudore; Elizabeth Andersen; Neha Arora; Doris Barwich; Carrie Bernard; Dawn Elston; Rebecca Heyland; Doug Klein; Erin McFee; Lawrence Mroz; Marissa Slaven; Amy Tan; Daren K Heyland
Journal:  Ann Fam Med       Date:  2020-03       Impact factor: 5.166

9.  Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers.

Authors:  Lauren J Van Scoy; Andrew G Day; Michelle Howard; Rebecca Sudore; Daren K Heyland
Journal:  J Pain Symptom Manage       Date:  2019-01-24       Impact factor: 3.612

10.  Community-Based Conversations about Advance Care Planning for Underserved Populations Using Lay Patient Navigators.

Authors:  Regina M Fink; Danielle M Kline; F Amos Bailey; Daniel L Handel; Sarah R Jordan; Hillary D Lum; Stacy M Fischer
Journal:  J Palliat Med       Date:  2020-01-16       Impact factor: 2.947

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