Literature DB >> 28042069

Comprehensive and Integrated Palliative Care for People With Advanced Chronic Conditions: An Update From Several European Initiatives and Recommendations for Policy.

Xavier Gómez-Batiste1, Scott A Murray2, Keri Thomas3, Carles Blay4, Kirsty Boyd2, Sebastien Moine5, Maxime Gignon5, Bart Van den Eynden6, Bert Leysen6, Johan Wens6, Yvonne Engels7, Marianne Dees8, Massimo Costantini9.   

Abstract

The number of people in their last years of life with advanced chronic conditions, palliative care needs, and limited life prognosis due to different causes including multi-morbidity, organ failure, frailty, dementia, and cancer is rising. Such people represent more than 1% of the population. They are present in all care settings, cause around 75% of mortality, and may account for up to one-third of total national health system spend. The response to their needs is usually late and largely based around institutional palliative care focused on cancer. There is a great need to identify these patients and integrate an early palliative approach according to their individual needs in all settings, as suggested by the World Health Organization. Several tools have recently been developed in different European regions to identify patients with chronic conditions who might benefit from palliative care. Similarly, several models of integrated palliative care have been developed, some with a public health approach to promote access to all in need. We describe the characteristics of these initiatives and suggest how to develop a comprehensive and integrated palliative approach in primary and hospital care and to design public health and community-oriented practices to assess and respond to the needs in the whole population. Additionally, we report ethical challenges and prognostic issues raised and emphasize the need for research to test the various tools and models to generate evidence about the benefits of these approaches to patients, their families, and to the health system.
Copyright © 2016 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Palliative approach; chronic care; comprehensive care; integrated care; palliative care; public health planning

Mesh:

Year:  2016        PMID: 28042069     DOI: 10.1016/j.jpainsymman.2016.10.361

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  21 in total

1.  An update in symptom clusters using the Edmonton Symptom Assessment System in a palliative radiotherapy clinic.

Authors:  Vithusha Ganesh; Liying Zhang; Stephanie Chan; Bo Angela Wan; Leah Drost; May Tsao; Cyril Danjoux; Elizabeth Barnes; Rachel McDonald; Leigha Rowbottom; Pearl Zaki; Ronald Chow; Matthew K Hwang; Carlo DeAngelis; Nicholas Lao; Edward Chow
Journal:  Support Care Cancer       Date:  2017-05-23       Impact factor: 3.603

2.  A Delphi study to guide the development of a clinical indicator tool for palliative care in South Africa.

Authors:  Rene Krause; Alan Barnard; Henriette Burger; Andre De Vos; Katya Evans; Lindsay Farrant; Nicki Fouche; Sebastiana Kalula; Jennie Morgan; Zainab Mohamed; Eugenio Panieri; Tasleem Ras; Peter Raubenheimer; Estelle Verburg; Kirsty Boyd; Liz Gwyther
Journal:  Afr J Prim Health Care Fam Med       Date:  2022-05-19

3.  An Adapted Conceptual Model Integrating Palliative Care in Serious Illness and Multiple Chronic Conditions.

Authors:  Komal Patel Murali; John D Merriman; Gary Yu; Allison Vorderstrasse; Amy Kelley; Abraham A Brody
Journal:  Am J Hosp Palliat Care       Date:  2020-06-08       Impact factor: 2.500

4.  Access to palliative care by disease trajectory: a population-based cohort of Ontario decedents.

Authors:  Hsien Seow; Erin O'Leary; Richard Perez; Peter Tanuseputro
Journal:  BMJ Open       Date:  2018-04-05       Impact factor: 2.692

5.  How is palliative care understood in the context of dementia? Results from a massive open online course.

Authors:  Fran McInerney; Kathleen Doherty; Aidan Bindoff; Andrew Robinson; James Vickers
Journal:  Palliat Med       Date:  2017-12-13       Impact factor: 4.762

6.  Adding a second surprise question triggers general practitioners to increase the thoroughness of palliative care planning: results of a pilot RCT with cage vignettes.

Authors:  F Weijers; C Veldhoven; C Verhagen; K Vissers; Y Engels
Journal:  BMC Palliat Care       Date:  2018-04-19       Impact factor: 3.234

7.  Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries.

Authors:  Marlieke den Herder-van der Eerden; Jeroen van Wijngaarden; Sheila Payne; Nancy Preston; Lisa Linge-Dahl; Lukas Radbruch; Karen Van Beek; Johan Menten; Csilla Busa; Agnes Csikos; Kris Vissers; Jelle van Gurp; Jeroen Hasselaar
Journal:  Palliat Med       Date:  2018-02-13       Impact factor: 4.762

8.  Towards accessible integrated palliative care: Perspectives of leaders from seven European countries on facilitators, barriers and recommendations for improvement.

Authors:  Marlieke den Herder-van der Eerden; Benjamin Ewert; Farina Hodiamont; Michaela Hesse; Jeroen Hasselaar; Lukas Radbruch
Journal:  J Integr Care (Brighton)       Date:  2017

9.  Computer screening for palliative care needs in primary care: a mixed-methods study.

Authors:  Bruce Mason; Kirsty Boyd; John Steyn; Marilyn Kendall; Stella Macpherson; Scott A Murray
Journal:  Br J Gen Pract       Date:  2018-03-26       Impact factor: 5.386

10.  Patient Views on Advance Care Planning in Cirrhosis: A Qualitative Analysis.

Authors:  Michelle Carbonneau; Tracy Davyduke; Jude Spiers; Amanda Brisebois; Kathleen Ismond; Puneeta Tandon
Journal:  Can J Gastroenterol Hepatol       Date:  2018-07-18
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