Emilie Wawrziczny1, Florence Pasquier2, Francine Ducharme3, Marie-Jeanne Kergoat4, Pascal Antoine5. 1. Laboratory SCALab, UMR CNRS 9193, University of Lille, Domaine Universitaire du Pont de Bois, BP 149, 59653 Villeneuve d'Ascq, France; Roubaix Hospital, Addiction Service, Roubaix, France. Electronic address: emilie.wawrziczny@univ-lille3.fr. 2. Department of Neurology, Memory Research and Resources Clinic at the University Hospital of Lille, University of Lille, CHRU, 59037 Lille, France. Electronic address: florence.pasquier@chru-lille.fr. 3. Institut universitaire de gériatrie de Montréal, 4565 Chemin Queen Mary, Montréal, Qc H3W1W5, Canada. Electronic address: francine.ducharme@umontreal.ca. 4. Institut universitaire de gériatrie de Montréal, 4565 Chemin Queen Mary, Montréal, Qc H3W1W5, Canada. Electronic address: marie-jeanne.kergoat@umontreal.ca. 5. Laboratory SCALab, UMR CNRS 9193, University of Lille, Domaine Universitaire du Pont de Bois, BP 149, 59653 Villeneuve d'Ascq, France. Electronic address: pascal.antoine@univ-lille3.fr.
Abstract
OBJECTIVES: To explore spouse caregivers' means of coping with the disease and compare them based on the age of onset of the disease in order to adapt support programs. METHODS: Interviews were conducted with 38 spouse caregivers of persons with late-onset dementia (PLOD) and 40 spouse caregivers of persons with early onset dementia (PEOD). The first step in the analysis was qualitative, using QSR N'Vivo 10 to identify the coping strategies. The second step was quantitative, comparing the coping strategies based on the age of onset of the disease with a χ2 test. RESULTS: An inventory of 26 strategies used by all caregivers was established and consolidated into two groups: acceptance strategies and avoidance strategies. The statistical results show that some strategies were used by the two groups of caregivers. However, when differences emerged, the "Planning" strategy was used by spouse caregivers of PEOD, whereas the "Re-arranging", "Humor" and "Getting away from the entourage" strategies were used by spouse caregivers of PLOD. CONCLUSION: It would be interesting to develop a support program with a common framework and specific modules depending on the age of onset of the disease. Common modules would permit developing and strengthening acceptance strategies. Specific modules for caregivers of PEOD would guide them in the acquisition of more adaptability and flexibility in the assistance provided to the PWD, which can sometimes be too rigid and controlled. Specific modules for caregivers of PLOD would help them to develop the ability to request help and identify the intervention limits of the entourage.
OBJECTIVES: To explore spouse caregivers' means of coping with the disease and compare them based on the age of onset of the disease in order to adapt support programs. METHODS: Interviews were conducted with 38 spouse caregivers of persons with late-onset dementia (PLOD) and 40 spouse caregivers of persons with early onset dementia (PEOD). The first step in the analysis was qualitative, using QSR N'Vivo 10 to identify the coping strategies. The second step was quantitative, comparing the coping strategies based on the age of onset of the disease with a χ2 test. RESULTS: An inventory of 26 strategies used by all caregivers was established and consolidated into two groups: acceptance strategies and avoidance strategies. The statistical results show that some strategies were used by the two groups of caregivers. However, when differences emerged, the "Planning" strategy was used by spouse caregivers of PEOD, whereas the "Re-arranging", "Humor" and "Getting away from the entourage" strategies were used by spouse caregivers of PLOD. CONCLUSION: It would be interesting to develop a support program with a common framework and specific modules depending on the age of onset of the disease. Common modules would permit developing and strengthening acceptance strategies. Specific modules for caregivers of PEOD would guide them in the acquisition of more adaptability and flexibility in the assistance provided to the PWD, which can sometimes be too rigid and controlled. Specific modules for caregivers of PLOD would help them to develop the ability to request help and identify the intervention limits of the entourage.
Authors: Kirsten J Moore; Sarah Davis; Anna Gola; Jane Harrington; Nuriye Kupeli; Victoria Vickerstaff; Michael King; Gerard Leavey; Irwin Nazareth; Louise Jones; Elizabeth L Sampson Journal: BMC Geriatr Date: 2017-07-03 Impact factor: 3.921
Authors: Marcus F Johansson; Kevin J McKee; Lena Dahlberg; Christine L Williams; Martina Summer Meranius; Elizabeth Hanson; Lennart Magnusson; Björn Ekman; Lena Marmstål Hammar Journal: BMC Geriatr Date: 2021-06-02 Impact factor: 3.921