Literature DB >> 27969083

Health and quality of life among the caregivers of children with disabilities: A review of literature.

Siti Nor Ismalina Isa1, Ismarulyusda Ishak2, Azriani Ab Rahman3, Nur Zakiah Mohd Saat4, Normah Che Din5, Syarif Husin Lubis4, Muhammad Faiz Mohd Ismail4.   

Abstract

Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009-2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers' health and quality of life include the caregivers' sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers' adaptations to their children's disabilities.
Copyright © 2016 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Caregivers; Children with disabilities; Factors; Psychological health; Quality of life; Stress

Mesh:

Year:  2016        PMID: 27969083     DOI: 10.1016/j.ajp.2016.07.007

Source DB:  PubMed          Journal:  Asian J Psychiatr        ISSN: 1876-2018


  4 in total

1.  Translation, Cultural Adaptation, Reliability, and Validity Evidence of the Feeding/Swallowing Impact Survey (FS-IS) to Brazilian Portuguese.

Authors:  Cristiane G Rama; Fernanda B Bernardes; Maureen A Lefton-Greif; Deborah S Levy; Vera L Bosa
Journal:  Dysphagia       Date:  2021-11-15       Impact factor: 2.733

Review 2.  Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review.

Authors:  Ronelle Jansen; Marianne Reid
Journal:  JMIR Mhealth Uhealth       Date:  2020-08-19       Impact factor: 4.773

Review 3.  Requirements for improving health and well-being of children with Prader-Willi syndrome and their families.

Authors:  Jessica Mackay; Zoe McCallum; Geoffrey R Ambler; Komal Vora; Gillian Nixon; Philip Bergman; Nora Shields; Kate Milner; Nitin Kapur; Patricia Crock; Daan Caudri; Jaqueline Curran; Charles Verge; Chris Seton; Andrew Tai; Elaine Tham; Yassmin Musthaffa; Antony R Lafferty; Greg Blecher; Jessica Harper; Cara Schofield; Aleisha Nielsen; Andrew Wilson; Helen Leonard; Catherine S Choong; Jenny Downs
Journal:  J Paediatr Child Health       Date:  2019-06-30       Impact factor: 1.954

4.  Health-Related Quality of Life and Related Factors among Primary Caregivers of Children with Disabilities in Shanghai, China: A Cross-Sectional Study.

Authors:  Cong Xia; Mei Sun; Xinying Li; Chenhao Lu; Xiu Gao; Jun Lu; Gang Chen
Journal:  Int J Environ Res Public Health       Date:  2020-12-12       Impact factor: 3.390

  4 in total

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