Literature DB >> 27920340

"The Church of Online Support": Examining the Use of Blogs Among Family Caregivers of Persons With Dementia.

Joel G Anderson1, Elizabeth Hundt2, Morgan Dean2, Jessica Keim-Malpass2, Ruth Palan Lopez3.   

Abstract

Many individuals, including dementia caregivers, use blogs to share their experiences. These blogs contain rich narratives representing an untapped resource for understanding the psychosocial impact of caring for a person with dementia at the family level. The present study used blogs written by caregivers of persons with dementia to explore how these individuals leveraged this medium as part of the caregiving experience. Blogs written by self-identified informal caregivers of persons with dementia were identified using a systematic search method, and data were analyzed using a qualitative thematic analysis. Four themes emerged from the narratives: social support through communication and engagement, information gathering and seeking, reminiscing and legacy building, and altruism. By understanding the ways in which individuals providing care for persons with dementia use social media as part of the caregiving experience, family nurses can develop interventions and services aimed at improving caregiver burden and quality of life.

Entities:  

Keywords:  blog; dementia; family caregivers; social media

Mesh:

Year:  2016        PMID: 27920340     DOI: 10.1177/1074840716681289

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  9 in total

1.  Blogging with dementia: Writing about lived experience of dementia in the public domain.

Authors:  Jenni Brooks; Nada Savitch
Journal:  Dementia (London)       Date:  2022-07-08

2.  Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups.

Authors:  Pavel Bachmann; Jan Hruska
Journal:  Int J Environ Res Public Health       Date:  2022-05-25       Impact factor: 4.614

Review 3.  The role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers: a scoping review.

Authors:  Kristine Newman; Angel He Wang; Arthur Ze Yu Wang; Dalia Hanna
Journal:  BMC Public Health       Date:  2019-11-09       Impact factor: 4.135

4.  Adapting the eHealth Literacy Scale for Carers of People With Chronic Diseases (eHeals-Carer) in a Sample of Greek and Cypriot Carers of People With Dementia: Reliability and Validation Study.

Authors:  Areti Efthymiou; Nicos Middleton; Evridiki Papastavrou; Andreas Charalambous
Journal:  J Med Internet Res       Date:  2019-11-28       Impact factor: 5.428

5.  An investigation of the information provided to the parents of young people with mental health needs on an internet forum.

Authors:  Elif Mertan; Lauren Croucher; Roz Shafran; Sophie D Bennett
Journal:  Internet Interv       Date:  2020-12-01

6.  Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic.

Authors:  Marissa Bartmess; Catherine Talbot; Siobhan T O'Dwyer; Ruth Palan Lopez; Karen M Rose; Joel G Anderson
Journal:  Dementia (London)       Date:  2022-05-13

7.  Implementation of a Statewide Web-Based Caregiver Resource Information System (CareNav): Mixed Methods Study.

Authors:  Heather M Young; Janice F Bell; Orly Tonkikh; Tina R Kilaberia; Robin L Whitney; Jennifer M Mongoven; Benjamin M Link; Kathleen Kelly
Journal:  JMIR Form Res       Date:  2022-07-13

8.  Diabetes-Related Topics in an Online Forum for Caregivers of Individuals Living With Alzheimer Disease and Related Dementias: Qualitative Inquiry.

Authors:  Yan Du; Kristi Paiva; Adrian Cebula; Seon Kim; Katrina Lopez; Chengdong Li; Carole White; Sahiti Myneni; Sudha Seshadri; Jing Wang
Journal:  J Med Internet Res       Date:  2020-07-06       Impact factor: 5.428

9.  Impact of Medical Blog Reading and Information Presentation on Readers' Preventative Health Intentions: Mixed Methods, Multistudy Investigation.

Authors:  Kimberly A Taylor; William F Humphrey
Journal:  J Med Internet Res       Date:  2021-12-22       Impact factor: 5.428

  9 in total

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