Literature DB >> 27901440

Does Lack of "Genetic-Relative Family Health History" Represent a Potentially Avoidable Health Disparity for Adoptees?

Thomas May1, Kimberly A Strong2, Kaija L Zusevics3, Jessica Jeruzal4, Michael H Farrell5, Alison LaPean Kirschner4, Arthur R Derse4, James P Evans6, Harold D Grotevant7.   

Abstract

Many adoptees face a number of challenges relating to separation from biological parents during the adoption process, including issues concerning identity, intimacy, attachment, and trust, as well as (for older adopted children) language and other cultural challenges. One common health challenge faced by adoptees involves lack of access to genetic-relative family health history (GRFHx). Lack of GRFHx represents a disadvantage due to a reduced capacity to identify diseases and recommend appropriate screening for conditions for which the adopted person may be at increased risk. In this article, we draw out common features of traditionally understood "health disparities" in order to identify analogous features in the context of adoptees' lack of GRFHx.

Entities:  

Keywords:  genetics (clinical); health policy

Mesh:

Year:  2016        PMID: 27901440     DOI: 10.1080/15265161.2016.1240255

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  4 in total

1.  Autonomy, Well-Being, and the Value of Genetic Testing for Adopted Persons.

Authors:  Thomas May; Harold Grotevant
Journal:  HEC Forum       Date:  2018-09

2.  No Panacea: Next-Gen Sequencing Will Not Mitigate Adoptees' Lack of Genetic Family Health History.

Authors:  Stephanie M Fullerton
Journal:  Am J Bioeth       Date:  2016-12       Impact factor: 11.229

3.  Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.

Authors:  Zhijun Yin; Lijun Song; Ellen W Clayton; Bradley A Malin
Journal:  PLoS One       Date:  2020-09-08       Impact factor: 3.240

4.  Direct-to-Consumer Genetic Ancestry Testing in Clinical Encounters: Perspectives From Psychotherapy Cases.

Authors:  Caryn Kseniya Rubanovich; Wendy Zhang; Cinnamon S Bloss
Journal:  JMIR Ment Health       Date:  2020-11-26
  4 in total

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