Literature DB >> 27881479

Barriers and Facilitators to Deaf Trauma Survivors' Help-Seeking Behavior: Lessons for Behavioral Clinical Trials Research.

Melissa L Anderson1, Kelly S Wolf Craig1,2, Douglas M Ziedonis1.   

Abstract

Deaf individuals experience significant obstacles to participating in behavioral health research when careful consideration is not given to accessibility during the design of study methodology. To inform such considerations, we conducted an exploratory secondary analysis of a mixed-methods study that originally explored 16 Deaf trauma survivors' help-seeking experiences. Our objective was to identify key findings and qualitative themes from consumers' own words that could be applied to the design of behavioral clinical trials methodology. In many ways, the themes that emerged were not wholly dissimilar from the general preferences of members of other sociolinguistic minority groups-a need for communication access, empathy, respect, strict confidentiality procedures, trust, and transparency of the research process. Yet, how these themes are applied to the inclusion of Deaf research participants is distinct from any other sociolinguistic minority population, given Deaf people's unique sensory and linguistic characteristics. We summarize our findings in a preliminary "Checklist for Designing Deaf Behavioral Clinical Trials" to operationalize the steps researchers can take to apply Deaf-friendly approaches in their empirical work.
© The Author 2016. Published by Oxford University Press. All rights reserved. For Permissions, please email: journals.permissions@oup.com.

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Year:  2016        PMID: 27881479      PMCID: PMC6083920          DOI: 10.1093/deafed/enw066

Source DB:  PubMed          Journal:  J Deaf Stud Deaf Educ        ISSN: 1081-4159


  37 in total

1.  Comparison of the PTSD Symptom Scale-Interview Version and the Clinician-Administered PTSD scale.

Authors:  E B Foa; D F Tolin
Journal:  J Trauma Stress       Date:  2000-04

Review 2.  Mediators and moderators of treatment effects in randomized clinical trials.

Authors:  Helena Chmura Kraemer; G Terence Wilson; Christopher G Fairburn; W Stewart Agras
Journal:  Arch Gen Psychiatry       Date:  2002-10

3.  Is it abuse? Deaf female undergraduates' labeling of partner violence.

Authors:  Melissa L Anderson; Caroline M Kobek Pezzarossi
Journal:  J Deaf Stud Deaf Educ       Date:  2011-12-02

4.  Characteristics of youths with hearing loss admitted to substance abuse treatment.

Authors:  Janet C Titus; James A Schiller; Debra Guthmann
Journal:  J Deaf Stud Deaf Educ       Date:  2008-02-04

Review 5.  A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.

Authors:  Sheba George; Nelida Duran; Keith Norris
Journal:  Am J Public Health       Date:  2013-12-12       Impact factor: 9.308

Review 6.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

7.  Assessing Health Literacy in Deaf American Sign Language Users.

Authors:  Michael M McKee; Michael K Paasche-Orlow; Paul C Winters; Kevin Fiscella; Philip Zazove; Ananda Sen; Thomas Pearson
Journal:  J Health Commun       Date:  2015

8.  Health literacy and the disenfranchised: the importance of collaboration between limited English proficiency and health literacy researchers.

Authors:  Michael M McKee; Michael K Paasche-Orlow
Journal:  J Health Commun       Date:  2012

9.  Posttraumatic stress disorder and substance use disorder comorbidity among individuals with physical disabilities: findings from the National Comorbidity Survey Replication.

Authors:  Melissa L Anderson; Douglas M Ziedonis; Lisa M Najavits
Journal:  J Trauma Stress       Date:  2014-03-21

10.  [Psychosocial characteristics of deaf people: evaluation of data from a special outpatient clinic for the deaf].

Authors:  J Fellinger; D Holzinger; R Schoberberger; G Lenz
Journal:  Nervenarzt       Date:  2005-01       Impact factor: 1.214

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  3 in total

Review 1.  Profound Hearing Loss: Addressing Barriers to Hearing Healthcare.

Authors:  Sheila R Pratt
Journal:  Semin Hear       Date:  2018-10-26

2.  Developing Signs of Safety: A Deaf-accessible counselling toolkit for trauma and addiction.

Authors:  Melissa L Anderson; Neil S Glickman; Kelly S Wolf Craig; Amanda K Sortwell Crane; Alexander M Wilkins; Lisa M Najavits
Journal:  Clin Psychol Psychother       Date:  2021-04-24

Review 3.  Promoting inclusion in clinical trials-a rapid review of the literature and recommendations for action.

Authors:  Danielle H Bodicoat; Ash C Routen; Andrew Willis; Winifred Ekezie; Clare Gillies; Claire Lawson; Thomas Yates; Francesco Zaccardi; Melanie J Davies; Kamlesh Khunti
Journal:  Trials       Date:  2021-12-04       Impact factor: 2.279

  3 in total

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