Didier Frappaz1, Marie-Pierre Sunyach2, Emilie Le Rhun3, Marie Blonski4, Valérie Laurence5, Alice Bonneville Levard2, Hugues Loiseau6, David Meyronnet7, Arnaud Callies8, F Laigle-Donadey9, Cecile Faure Conter10. 1. Centre Léon-Bérard, 28, Prom. Léa-et-Napoléon-Bullukian, 69008 Lyon, France; Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France; Société française du cancer de l'enfant (SFCE), 35203 Rennes cedex 2, France; Groupe onco-hématologie adolescents jeunes adultes (GO-AJA), 75013 Paris, France. Electronic address: Didier.frappaz@lyon.unicancer.fr. 2. Centre Léon-Bérard, 28, Prom. Léa-et-Napoléon-Bullukian, 69008 Lyon, France; Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France. 3. Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France; CHRU, 2, avenue Oscar-Lambret, 59000 Lille, France. 4. Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France; CHU, 1, rue Joseph-Cugnot, 54035 Nancy, France. 5. Groupe onco-hématologie adolescents jeunes adultes (GO-AJA), 75013 Paris, France; Institut Curie, 26, rue d'Ulm, 75005 Paris, France. 6. Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France; CHU, bâtiment Tripode, place Amélie-Raba-Léon, 33000 Bordeaux, France. 7. Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France; CHU de Lyon, 59, boulevard Pinel, 69500 Bron, France. 8. Centre Léon-Bérard, 28, Prom. Léa-et-Napoléon-Bullukian, 69008 Lyon, France. 9. Association des neuro-oncologues d'expression française (ANOCEF), 54035 Nancy cedex, France; Pitié Salpêtrière, 47-83, boulevard de l'Hôpital, 75013 Paris, France. 10. Centre Léon-Bérard, 28, Prom. Léa-et-Napoléon-Bullukian, 69008 Lyon, France; Société française du cancer de l'enfant (SFCE), 35203 Rennes cedex 2, France.
Abstract
The skills of adult versus pediatric neuro-oncologists are not completely similar though additive. Because the tumors and their protocols are different and the tolerance and expected sequelae are specific. Multidisciplinary meetings including adult and pediatric neuro-oncologists are warranted to share expertise. Since 2008, a weekly national web based conference was held in France. Any patient with the following criteria could be discussed: Adolescent and Young Adults aged between 15 and 25 years, and any adult with a pediatric type pathology, including medulloblastoma, germ cell tumors, embryonic tumors, ependymoma, pilocytic astrocytoma. RESULTS: Attendance during the year 2015 was as follows: 42 meetings were held; the median number of cases discussed at each meeting was 4 (1 to 8); the mean number of attendants was 7 (2 to 12). One hundred and sixty-eight cases concerning 121 patients were discussed. Mean age was 30 years old (7 to 67). Forty-eight percent were discussed at diagnosis. The patients had mostly medulloblastomas (40%), germ cell tumors (11%), ependymomas (11%), pineal tumors (7%) and embryonal tumors (8%). The rate of inclusion in protocols was increased since the opening of this web conference, especially for the germ cell tumor SIOP protocol that is opened without age restriction, and in RSMA standard risk or MEVITEM relapse adult medulloblastoma protocols. CONCLUSION: Multidisciplinary Web conference for AYAs is feasible and increases the inclusion rate in protocols. It should be developed further.
The skills of adult versus pediatric neuro-oncologists are not completely similar though additive. Because the tumors and their protocols are different and the tolerance and expected sequelae are specific. Multidisciplinary meetings including adult and pediatric neuro-oncologists are warranted to share expertise. Since 2008, a weekly national web based conference was held in France. Any patient with the following criteria could be discussed: Adolescent and Young Adults aged between 15 and 25 years, and any adult with a pediatric type pathology, including medulloblastoma, germ cell tumors, embryonic tumors, ependymoma, pilocytic astrocytoma. RESULTS: Attendance during the year 2015 was as follows: 42 meetings were held; the median number of cases discussed at each meeting was 4 (1 to 8); the mean number of attendants was 7 (2 to 12). One hundred and sixty-eight cases concerning 121 patients were discussed. Mean age was 30 years old (7 to 67). Forty-eight percent were discussed at diagnosis. The patients had mostly medulloblastomas (40%), germ cell tumors (11%), ependymomas (11%), pineal tumors (7%) and embryonal tumors (8%). The rate of inclusion in protocols was increased since the opening of this web conference, especially for the germ cell tumor SIOP protocol that is opened without age restriction, and in RSMA standard risk or MEVITEM relapse adult medulloblastoma protocols. CONCLUSION: Multidisciplinary Web conference for AYAs is feasible and increases the inclusion rate in protocols. It should be developed further.
Authors: Didier Frappaz; Marc Barritault; Laure Montané; Florence Laigle-Donadey; Olivier Chinot; Emilie Le Rhun; Alice Bonneville-Levard; Andreas F Hottinger; David Meyronnet; Anne-Sophie Bidaux; Gwenaële Garin; David Pérol Journal: Neuro Oncol Date: 2021-11-02 Impact factor: 13.029
Authors: Lidia S van Huizen; Pieter U Dijkstra; Sjoukje van der Werf; Kees Ahaus; Jan Ln Roodenburg Journal: BMJ Open Date: 2021-12-09 Impact factor: 2.692