Tanya N Martelly1, Angela M C Rose2, Sujha Subramanian3, Patrick Edwards3, Florence K L Tangka4, Mona Saraiya4. 1. Chronic Disease Research Centre, The University of the West Indies, 'Avalon', Jemmott's Lane, St. Michael, Barbados. Electronic address: fbt9@cdc.gov. 2. Chronic Disease Research Centre, The University of the West Indies, 'Avalon', Jemmott's Lane, St. Michael, Barbados. 3. RTI International, 3040 E. Cornwallis Rd., Research Triangle Park, NC, USA. 4. Centers for Disease Control and Prevention, 4770 Buford Hwy., Atlanta, GA, USA.
Abstract
BACKGROUND: This report describes the resources required to support the integrated approach of the Barbados National Registry for Chronic Non-communicable Diseases (BNR) to non-communicable disease (NCD) case registration, and to identify differences in cost for collecting and maintaining information on cancer and cardiovascular disease (CVD) case registration. METHODS: We used the modified Centers for Disease Control and Prevention's International Registry Costing Tool to collect data from the CVD and cancer registries. We used cancer and CVD cost data for the annual period April 2014 through March 2015 to estimate the total cost and cost per case. We used prospectively collected average annual CVD cases, and for cancer cases we assumed 2 or 3 years are needed for retrospective data collection. RESULTS: The Ministry of Health provided 56% of the resources for the registries. Labor accounted for over 70% of both registries' budgets, while management and administration, along with data collection and analysis, incurred the highest costs per case. Total variable cost activities related to data collection and analysis were higher for the CVD component (US$131,297) than the cancer component (US$58,917). The CVD cost per case (US$489) was in between the cancer 2-year (US$382) and the cancer 3-year (US$573) cost-per-case estimates. CONCLUSION: These findings indicate that there are substantial fixed costs related to management and administration of NCD registries. All registries need management and administration support. When registries are combined, management and administration costs can be shared. We project that registries that can share fixed-cost infrastructure are likely to incur a lower total cost per case. Published by Elsevier Ltd.
BACKGROUND: This report describes the resources required to support the integrated approach of the Barbados National Registry for Chronic Non-communicable Diseases (BNR) to non-communicable disease (NCD) case registration, and to identify differences in cost for collecting and maintaining information on cancer and cardiovascular disease (CVD) case registration. METHODS: We used the modified Centers for Disease Control and Prevention's International Registry Costing Tool to collect data from the CVD and cancer registries. We used cancer and CVD cost data for the annual period April 2014 through March 2015 to estimate the total cost and cost per case. We used prospectively collected average annual CVD cases, and for cancer cases we assumed 2 or 3 years are needed for retrospective data collection. RESULTS: The Ministry of Health provided 56% of the resources for the registries. Labor accounted for over 70% of both registries' budgets, while management and administration, along with data collection and analysis, incurred the highest costs per case. Total variable cost activities related to data collection and analysis were higher for the CVD component (US$131,297) than the cancer component (US$58,917). The CVD cost per case (US$489) was in between the cancer 2-year (US$382) and the cancer 3-year (US$573) cost-per-case estimates. CONCLUSION: These findings indicate that there are substantial fixed costs related to management and administration of NCD registries. All registries need management and administration support. When registries are combined, management and administration costs can be shared. We project that registries that can share fixed-cost infrastructure are likely to incur a lower total cost per case. Published by Elsevier Ltd.
Authors: R Zanetti; L Sacchetto; M Calvia; A Bordoni; T Hakulinen; A Znaor; H Møller; S Siesling; H Comber; A Katalinic; S Rosso Journal: J Registry Manag Date: 2014
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