Literature DB >> 27833398

Intersections of Critical Systems Thinking and Community Based Participatory Research: A Learning Organization Example with the Autistic Community.

Dora M Raymaker1.   

Abstract

Critical systems thinking (CST) and community based participatory research (CBPR) are distinct approaches to inquiry which share a primary commitment to holism and human emancipation, as well as common grounding in critical theory and emancipatory and pragmatic philosophy. This paper explores their intersections and complements on a historical, philosophical, and theoretical level, and then proposes a hybrid approach achieved by applying CBPR's principles and considerations for operationalizing emancipatory practice to traditional systems thinking frameworks and practices. This hybrid approach is illustrated in practice with examples drawn from of the implementation of the learning organization model in an action research setting with the Autistic community. Our experience of being able to actively attend to, and continuously equalize, power relations within an organizational framework that otherwise has great potential for reinforcing power inequity suggests CBPR's principles and considerations for operationalizing emancipatory practice could be useful in CST settings, and CST's vocabulary, methods, and clarity around systems thinking concepts could be valuable to CBPR practioners.

Entities:  

Keywords:  autism; community based participatory research; critical systems thinking; learning organization; power

Year:  2016        PMID: 27833398      PMCID: PMC5098939          DOI: 10.1007/s11213-016-9376-5

Source DB:  PubMed          Journal:  Syst Pract Action Res        ISSN: 1094-429X


  14 in total

1.  Improving the nutritional resource environment for healthy living through community-based participatory research.

Authors:  David C Sloane; Allison L Diamant; LaVonna B Lewis; Antronette K Yancey; Gwendolyn Flynn; Lori Miller Nascimento; William J McCarthy; Joyce Jones Guinyard; Michael R Cousineau
Journal:  J Gen Intern Med       Date:  2003-07       Impact factor: 5.128

2.  Systems thinking tools as applied to community-based participatory research: a case study.

Authors:  Rhonda BeLue; Chakema Carmack; Kyle R Myers; Laurie Weinreb-Welch; Eugene J Lengerich
Journal:  Health Educ Behav       Date:  2012-03-30

3.  Systemic intervention for public health.

Authors:  Gerald Midgley
Journal:  Am J Public Health       Date:  2006-01-31       Impact factor: 9.308

4.  Using community-based participatory research to develop a bilingual mental health survey for Latinos.

Authors:  Carolyn M Garcia; Lauren Gilchrist; Centro Campesino; Nancy Raymond; Sandy Naughton; Janeth Guerra de Patino
Journal:  Prog Community Health Partnersh       Date:  2008

Review 5.  Assessing the influence of researcher-partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: a scoping review.

Authors:  Jamil Jivraj; Lori-Ann Sacrey; Amanda Newton; David Nicholas; Lonnie Zwaigenbaum
Journal:  Autism       Date:  2014-07-02

6.  "Respect the way I need to communicate with you": Healthcare experiences of adults on the autism spectrum.

Authors:  Christina Nicolaidis; Dora M Raymaker; Elesia Ashkenazy; Katherine E McDonald; Sebastian Dern; Amelia Ev Baggs; Steven K Kapp; Michael Weiner; W Cody Boisclair
Journal:  Autism       Date:  2015-04-16

7.  Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.

Authors:  Christina Nicolaidis; Dora Raymaker; Katherine McDonald; Sebastian Dern; Elesia Ashkenazy; Cody Boisclair; Scott Robertson; Amanda Baggs
Journal:  Prog Community Health Partnersh       Date:  2011

8.  Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities.

Authors:  Christina Nicolaidis; Dora Raymaker; Marsha Katz; Mary Oschwald; Rebecca Goe; Sandra Leotti; Leah Grantham; Eddie Plourde; Janice Salomon; Rosemary B Hughes; Laurie E Powers
Journal:  Prog Community Health Partnersh       Date:  2015

9.  Comparison of healthcare experiences in autistic and non-autistic adults: a cross-sectional online survey facilitated by an academic-community partnership.

Authors:  Christina Nicolaidis; Dora Raymaker; Katherine McDonald; Sebastian Dern; W Cody Boisclair; Elesia Ashkenazy; Amanda Baggs
Journal:  J Gen Intern Med       Date:  2012-11-21       Impact factor: 5.128

10.  Views on researcher-community engagement in autism research in the United Kingdom: a mixed-methods study.

Authors:  Elizabeth Pellicano; Adam Dinsmore; Tony Charman
Journal:  PLoS One       Date:  2014-10-10       Impact factor: 3.240

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  2 in total

1.  Development of the AASPIRE Web Accessibility Guidelines for Autistic Web Users.

Authors:  Dora M Raymaker; Steven K Kapp; Katherine E McDonald; Michael Weiner; Elesia Ashkenazy; Christina Nicolaidis
Journal:  Autism Adulthood       Date:  2019-04-13

2.  "Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew": Defining Autistic Burnout.

Authors:  Dora M Raymaker; Alan R Teo; Nicole A Steckler; Brandy Lentz; Mirah Scharer; Austin Delos Santos; Steven K Kapp; Morrigan Hunter; Andee Joyce; Christina Nicolaidis
Journal:  Autism Adulthood       Date:  2020-06-10
  2 in total

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