Literature DB >> 27833193

Sonnet XXX: Love, dignity, and dying.

E Wesley Ely1.   

Abstract

All of us in medicine who care for patients who are chronically critically ill, dying of incurable illnesses, will be faced with discussions about the value of their lives and about the appropriateness of ongoing supportive care. Such discussions are good and true, and they must always be done within the context of the sanctity of every human life and the promise of God that we are His children, each and every one of us. In this article, I explore the end-of-life path of a patient with amyotrophic lateral sclerosis (ALS) and the courageous faith that she demonstrated in the face of her illness. I explore with you, the reader, the hard-core conversations that took place at her bedside and their meaning in light of Catholic moral teaching. This story is not meant to indicate that we should always do all interventions at all times for all patients. That would be a teaching counter to Evangelium vitae. This story is meant to help you think through the path of your patients and of you as a physician or other type of healthcare professional in serving your patients. Primum non nocere. Ad majorem Dei gloriam.

Entities:  

Keywords:  ALS; Amyotrophic lateral sclerosis; Dignity; EOL; End of life; Euthanasia; Hippocratic Oath; Lou Gehrig's disease; Love; Mechanical ventilation; Physician-assisted suicide; Redemptive suffering

Year:  2016        PMID: 27833193      PMCID: PMC5102211          DOI: 10.1080/00243639.2016.1163938

Source DB:  PubMed          Journal:  Linacre Q        ISSN: 0024-3639


  9 in total

1.  Statement on euthanasia.

Authors: 
Journal:  Origins       Date:  1991-09-26

2.  "Piece" of mind: end of life in the intensive care unit statement of the Belgian Society of Intensive Care Medicine.

Authors:  Jean-Louis Vincent; Miet Schetz; Jan J De Waele; Stéphan Clément de Cléty; Isabelle Michaux; Thierry Sottiaux; Eric Hoste; Didier Ledoux; Annick De Weerdt; Alexander Wilmer
Journal:  J Crit Care       Date:  2013-11-05       Impact factor: 3.425

Review 3.  Improving patient care through the prism of psychology: application of Maslow's hierarchy to sedation, delirium, and early mobility in the intensive care unit.

Authors:  James C Jackson; Michael J Santoro; Taylor M Ely; Leanne Boehm; Amy L Kiehl; Lindsay S Anderson; E Wesley Ely
Journal:  J Crit Care       Date:  2014-02-03       Impact factor: 3.425

4.  Seeking worldwide professional consensus on the principles of end-of-life care for the critically ill. The Consensus for Worldwide End-of-Life Practice for Patients in Intensive Care Units (WELPICUS) study.

Authors:  Charles L Sprung; Robert D Truog; J Randall Curtis; Gavin M Joynt; Mario Baras; Andrej Michalsen; Josef Briegel; Jozef Kesecioglu; Linda Efferen; Edoardo De Robertis; Pierre Bulpa; Philipp Metnitz; Namrata Patil; Laura Hawryluck; Constantine Manthous; Rui Moreno; Sara Leonard; Nicholas S Hill; Elisabet Wennberg; Robert C McDermid; Adam Mikstacki; Richard A Mularski; Christiane S Hartog; Alexander Avidan
Journal:  Am J Respir Crit Care Med       Date:  2014-10-15       Impact factor: 21.405

5.  Hastening death due to administration of sedatives and opioids after withdrawal of life-sustaining measures: even in the absence of discomfort?

Authors:  Erwin J O Kompanje; Jelle L Epker; Jan Bakker
Journal:  J Crit Care       Date:  2014-02-18       Impact factor: 3.425

6.  Prayer for a parent with a pierced and restless heart.

Authors:  E Wesley Ely
Journal:  Linacre Q       Date:  2014-05

7.  Quality of life in cancer patients--an hypothesis.

Authors:  K C Calman
Journal:  J Med Ethics       Date:  1984-09       Impact factor: 2.903

Review 8.  Patient-Perceived Outcomes and Quality of Life in ALS.

Authors:  Zachary Simmons
Journal:  Neurotherapeutics       Date:  2015-04       Impact factor: 7.620

9.  Evaluation of quality of life in complete locked-in syndrome patients.

Authors:  Marie-Christine Rousseau; Stephane Pietra; Mohammed Nadji; Thierry Billette de Villemeur
Journal:  J Palliat Med       Date:  2013-11       Impact factor: 2.947

  9 in total
  1 in total

Review 1.  Talking about the end of life: communication patterns in amyotrophic lateral sclerosis - a scoping review.

Authors:  Anke Erdmann; Celia Spoden; Irene Hirschberg; Gerald Neitzke
Journal:  Palliat Care Soc Pract       Date:  2022-03-15
  1 in total

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