Literature DB >> 27831905

Paediatric health-related quality of life: what is it and why should we measure it?

L Haverman1, P F Limperg1, N L Young2, M A Grootenhuis1,3, R J Klaassen4.   

Abstract

Keywords:  Outcomes research; Paediatric Practice; patient reported outcome; quality of life

Mesh：

Year:  2016        PMID： 27831905     DOI： 10.1136/archdischild-2015-310068

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN： 0003-9888            Impact factor:   3.791


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  20 in total

Review 1.  Pertinent clinical outcomes in pediatric survivors of pediatric acute respiratory distress syndrome (PARDS): a narrative review.

Authors:  Siew Wah Lee; Sin Wee Loh; Chengsi Ong; Jan Hau Lee
Journal:  Ann Transl Med       Date:  2019-10

2.  Measuring health-related quality of life in young children with physical illness: psychometric properties of the parent-reported KIDSCREEN-27.

Authors:  Mark A Ferro; Christiane Otto; Ulrike Ravens-Sieberer
Journal:  Qual Life Res       Date:  2021-12-02       Impact factor: 4.147

3.  Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish study.

Authors:  Michaela Dellenmark-Blom; Sofie Örnö Ax; Elin Öst; Jan F Svensson; Ann-Marie Kassa; Linus Jönsson; Kate Abrahamsson; Vladimir Gatzinsky; Pernilla Stenström; AnnaMaria Tollne; Erik Omling; Helene Engstrand Lilja
Journal:  Orphanet J Rare Dis       Date:  2022-06-20       Impact factor: 4.303

4.  Adherence to Mediterranean diet associated with health-related quality of life in children and adolescents: a systematic review.

Authors:  Milton A Romero-Robles; Fabricio Ccami-Bernal; Zhamanda N Ortiz-Benique; Diego F Pinto-Ruiz; Vicente A Benites-Zapata; Donovan Casas Patiño
Journal:  BMC Nutr       Date:  2022-06-23

5.  Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia.

Authors:  Anna Rozensztrauch; Robert Śmigiel; Dariusz Patkowski; Sylwester Gerus; Magdalena Kłaniewska; Julia Hannah Quitmann; Michaela Dellenmark-Blom
Journal:  Int J Environ Res Public Health       Date:  2022-06-30       Impact factor: 4.614

6.  Caregiver-reported health-related quality of life of New Zealand children born very and extremely preterm.

Authors:  Gordon X H Liu; Jane E Harding
Journal:  PLoS One       Date:  2021-06-08       Impact factor: 3.240

7.  Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H-FIT).

Authors:  Saunya Dover; Nancy L Young; Victor S Blanchette; Robert J Klaassen; Anthony K Chan; Cindy Wakefield; Vanessa Bouskill; Manuel Carcao; Mark Belletrutti; Aisha A K Bruce; Victoria E Price
Journal:  Res Pract Thromb Haemost       Date:  2021-05-07

8.  Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia.

Authors:  Tutku Soyer; Umut Ece Arslan; Çiğdem Ulukaya Durakbaşa; Sinem Aydöner; Özlem Boybeyi-Türer; Julia H Quitmann; Jens Dingemann; Michaela Dellenmark-Blom
Journal:  Turk J Gastroenterol       Date:  2021-08       Impact factor: 1.852

9.  French-language adaptation of the 16D and 17D Quality of Life measures and score description in two Canadian pediatric samples.

Authors:  Émélie Rondeau; Leandra Desjardins; Caroline Laverdière; Daniel Sinnett; Élie Haddad; Serge Sultan
Journal:  Health Psychol Behav Med       Date:  2021-07-06

10.  Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders.

Authors:  P F Limperg; L Haverman; H Maurice-Stam; M Coppens; C Valk; M J H A Kruip; J Eikenboom; M Peters; M A Grootenhuis
Journal:  Qual Life Res       Date:  2017-09-12       Impact factor: 4.147
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