Sarah Gebauer1,2, Sarah Knox Morley3, Emily A Haozous4, Esme Finlay5, Chris Camarata6, Bridget Fahy7, Erin FitzGerald8, Kimberly Harlow8, Lisa Marr8. 1. 1 Department of Anesthesiology, University of New Mexico , Albuquerque, New Mexico. 2. 2 Department of Internal Medicine, Division of Palliative Medicine, University of New Mexico , Albuquerque, New Mexico. 3. 3 Health Sciences Library and Informatics Center, University of New Mexico , Albuquerque, New Mexico. 4. 4 College of Nursing, University of New Mexico , Albuquerque, New Mexico. 5. 5 Department of Internal Medicine, Division of Palliative Medicine and Division of Oncology, University of New Mexico , Albuquerque, New Mexico. 6. 6 Department of Family and Community Medicine, University of New Mexico , Albuquerque, New Mexico. 7. 7 Department of Surgery, University of New Mexico , Albuquerque, New Mexico. 8. 8 Department of Internal Medicine, Division of Palliative Medicine, University of New Mexico , Albuquerque, New Mexico .
Abstract
BACKGROUND: Little is known about optimal palliative and end-of-life care for American Indians and Alaska Natives (AIs/ANs). METHODS: We searched MEDLINE, the Cochrane library, EBSCOhost, (PsycINFO, CINAHL Complete), and the University of New Mexico (UNM) Health Sciences Library and Informatics Center Native Health Database for search terms related to palliative care and AIs/ANs as of December 1, 2015. We included English language, peer-reviewed articles describing palliative care projects, programs, or studies in AI/AN populations or communities. We excluded case series, opinion or reflection pieces, and dissertations and articles addressing Pacific Islanders. RESULTS: Our search strategy yielded 294 references, of which we included 10 publications. Study methods and outcome measures were heterogeneous, and many studies were small and/or subject to multiple biases. Common themes included the importance of culturally appropriate communication, multiple barriers to treatment, and less frequent use of advance directives than other populations. CONCLUSIONS: Heterogeneity of study types, population, and small sample sizes makes it hard to draw broad conclusions regarding the best way to care for AIs/ANs. More studies are needed to assess this important topic.
BACKGROUND: Little is known about optimal palliative and end-of-life care for American Indians and Alaska Natives (AIs/ANs). METHODS: We searched MEDLINE, the Cochrane library, EBSCOhost, (PsycINFO, CINAHL Complete), and the University of New Mexico (UNM) Health Sciences Library and Informatics Center Native Health Database for search terms related to palliative care and AIs/ANs as of December 1, 2015. We included English language, peer-reviewed articles describing palliative care projects, programs, or studies in AI/AN populations or communities. We excluded case series, opinion or reflection pieces, and dissertations and articles addressing Pacific Islanders. RESULTS: Our search strategy yielded 294 references, of which we included 10 publications. Study methods and outcome measures were heterogeneous, and many studies were small and/or subject to multiple biases. Common themes included the importance of culturally appropriate communication, multiple barriers to treatment, and less frequent use of advance directives than other populations. CONCLUSIONS: Heterogeneity of study types, population, and small sample sizes makes it hard to draw broad conclusions regarding the best way to care for AIs/ANs. More studies are needed to assess this important topic.
Entities:
Keywords:
Alaska Native; American Indian; Native American; Native Hawaiian; palliative care; palliative medicine; terminal care