Lucy Whiston1, Joe M Barry2, Catherine D Darker3. 1. Department of Public Health and Primary Care, Institute of Population Health, Trinity College Dublin, Russell Centre, Tallaght Cross, Dublin 24, Ireland. Electronic address: whistonl@tcd.ie. 2. Department of Public Health and Primary Care, Institute of Population Health, Trinity College Dublin, Russell Centre, Tallaght Cross, Dublin 24, Ireland. Electronic address: joebarry@tcd.ie. 3. Department of Public Health and Primary Care, Institute of Population Health, Trinity College Dublin, Russell Centre, Tallaght Cross, Dublin 24, Ireland. Electronic address: Catherine.darker@tcd.ie.
Abstract
OBJECTIVE: Identify the current amount and intensity of patient and family participation at the patient, service and national levels from a diabetes and a psychiatric service perspective. Establish the current level of support for greater participation and related characteristics. METHOD: Researcher-administered questionnaires were conducted with 738 patients and family members in an outpatient type 2 diabetes service and an outpatient psychiatric service, both in Dublin, Ireland. RESULTS: Patient and family participation at the service and national levels are restricted to the provision of information. Typically no involvement in discussions or the decision -making process is reported. The majority of participants favour greater patient participation at the service level (537/669; 80.3%) and the national level (561/651; 86.2%). Greater support for patient and family member participation is significantly associated with participant's age, service satisfaction and level of education. CONCLUSION: Patient and family participation is greatest at the patient level. The majority of patients and family members support greater participation at the service and national levels. PRACTICE IMPLICATIONS: The best way to implement participation needs to be identified. There needs to be a greater focus on participation at the service level. The role of family members also needs to be investigated further.
OBJECTIVE: Identify the current amount and intensity of patient and family participation at the patient, service and national levels from a diabetes and a psychiatric service perspective. Establish the current level of support for greater participation and related characteristics. METHOD: Researcher-administered questionnaires were conducted with 738 patients and family members in an outpatient type 2 diabetes service and an outpatientpsychiatric service, both in Dublin, Ireland. RESULTS:Patient and family participation at the service and national levels are restricted to the provision of information. Typically no involvement in discussions or the decision -making process is reported. The majority of participants favour greater patient participation at the service level (537/669; 80.3%) and the national level (561/651; 86.2%). Greater support for patient and family member participation is significantly associated with participant's age, service satisfaction and level of education. CONCLUSION:Patient and family participation is greatest at the patient level. The majority of patients and family members support greater participation at the service and national levels. PRACTICE IMPLICATIONS: The best way to implement participation needs to be identified. There needs to be a greater focus on participation at the service level. The role of family members also needs to be investigated further.
Authors: H Lempp; S Abayneh; D Gurung; L Kola; J Abdulmalik; S Evans-Lacko; M Semrau; A Alem; G Thornicroft; C Hanlon Journal: Epidemiol Psychiatr Sci Date: 2017-11-08 Impact factor: 6.892