Cathy O'Sullivan1, L Lee Dupuis2,3, Paul Gibson4, Donna L Johnston5, Christina Baggott6, Carol Portwine7, Brenda Spiegler8, Susan Kuczynski9, Deborah Tomlinson1, George A Tomlinson10, Lillian Sung1,11. 1. Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, Toronto, Ontario, Canada. 2. Department of Pharmacy, The Hospital for Sick Children, Toronto, Ontario, Canada. 3. Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, Ontario, Canada. 4. Departments of Haematology/Oncology and Pediatrics, London Health Sciences Centre, London, Ontario, Canada. 5. Division of Hematology/Oncology, Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada. 6. Cancer Clinical Trials Office, Stanford University, Palo Alto, California, USA. 7. Division of Haematology/Oncology, McMaster Children's Hospital, Health Sciences Centre, Hamilton, Ontario, Canada. 8. Department of Psychology, The Hospital for Sick Children, Toronto, Ontario, Canada. 9. Ontario Parents Advocating for Children with Cancer (OPACC), Toronto, Ontario, Canada. 10. Department of Medicine, Toronto General Hospital, Toronto, Ontario, Canada. 11. Division of Haematology/Oncology, The Hospital for Sick Children, Toronto, Ontario, Canada.
Abstract
OBJECTIVE: We previously developed the paper-based Symptom Screening in Pediatrics Tool (SSPedi) designed for paediatric cancer symptom screening. Objectives were to evaluate and refine the electronic mobile application (app) of SSPedi using the opinions of children with cancer. METHODS: Participants were children 8-18 years of age with cancer. Participants completed electronic SSPedi on their own and then responded to semistructured questions to determine whether they found electronic SSPedi easy or difficult to complete and understand, understood and liked the app features (audio and animation), and understood previously difficult to understand concepts with the introduction of a help menu. After each group of 10 children, responses were reviewed to determine whether modifications were required. RESULTS: 20 children evaluated electronic SSPedi. None found electronic SSPedi difficult to complete or understand. All children understood the app features and each of the 4 more difficult to understand concepts after using the help menu. 19 of 20 children thought the app was a good way to communicate with doctors and nurses. CONCLUSIONS: We finalised an electronic version of SSPedi that is easy to use and understand with features specifically designed to facilitate child self-report. Future work will evaluate the psychometric properties of electronic SSPedi. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/.
OBJECTIVE: We previously developed the paper-based Symptom Screening in Pediatrics Tool (SSPedi) designed for paediatric cancer symptom screening. Objectives were to evaluate and refine the electronic mobile application (app) of SSPedi using the opinions of children with cancer. METHODS:Participants were children 8-18 years of age with cancer. Participants completed electronic SSPedi on their own and then responded to semistructured questions to determine whether they found electronic SSPedi easy or difficult to complete and understand, understood and liked the app features (audio and animation), and understood previously difficult to understand concepts with the introduction of a help menu. After each group of 10 children, responses were reviewed to determine whether modifications were required. RESULTS: 20 children evaluated electronic SSPedi. None found electronic SSPedi difficult to complete or understand. All children understood the app features and each of the 4 more difficult to understand concepts after using the help menu. 19 of 20 children thought the app was a good way to communicate with doctors and nurses. CONCLUSIONS: We finalised an electronic version of SSPedi that is easy to use and understand with features specifically designed to facilitate child self-report. Future work will evaluate the psychometric properties of electronic SSPedi. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/.
Authors: Robyn Loves; Deborah Tomlinson; Christina Baggott; David Dix; Paul Gibson; Shannon Hyslop; Donna L Johnston; Andrea D Orsey; Carol Portwine; Victoria Price; Tal Schechter; Magimairajan Vanan; Susan Kuczynski; Brenda Spiegler; George A Tomlinson; L Lee Dupuis; Lillian Sung Journal: Support Care Cancer Date: 2018-10-15 Impact factor: 3.603
Authors: Deborah Tomlinson; L Lee Dupuis; Donna L Johnston; Susan Kuczynski; Serina Patel; Tal Schechter; Emily Vettese; Mark Mairs; George A Tomlinson; Lillian Sung Journal: BMC Cancer Date: 2022-07-04 Impact factor: 4.638
Authors: Donna L Johnston; Shannon Hyslop; Deborah Tomlinson; Christina Baggott; Paul Gibson; Andrea Orsey; David Dix; Vicky Price; Magimairajan Vanan; Carol Portwine; Susan Kuczynski; Brenda Spiegler; George A Tomlinson; Laura Lee Dupuis; Lillian Sung Journal: Cancer Med Date: 2018-03-23 Impact factor: 4.452
Authors: Deborah Tomlinson; Erin Plenert; Grace Dadzie; Robyn Loves; Sadie Cook; Tal Schechter; Jennifer Furtado; L Lee Dupuis; Lillian Sung Journal: Cancer Med Date: 2020-06-21 Impact factor: 4.452
Authors: Cody Z Watling; Clodagh McCarthy; Alexandra Theodorakidis; Sadie Cook; Emily Vettese; Tal Schechter; Hanan Abubeker; L Lee Dupuis; Lillian Sung Journal: BMC Cancer Date: 2020-09-25 Impact factor: 4.430