Literature DB >> 27766448

Social Support in a Virtual Community: Analysis of a Clinic-Affiliated Online Support Group for Persons Living with HIV/AIDS.

Tabor E Flickinger1, Claire DeBolt1, Ava Lena Waldman1, George Reynolds2, Wendy F Cohn1, Mary Catherine Beach3, Karen Ingersoll4, Rebecca Dillingham5,6.   

Abstract

Social support can improve outcomes for people living with HIV (PLWH) and could be provided through online support groups. The Positive Links smartphone app is a multicomponent intervention that allows users to interact in a clinic-affiliated anonymous online support group. We investigated how social support was exchanged in a group of 55 participants over 8 months, using an adaptation of the Social Support Behavior Code. Participant interviews assessed their experiences and perceptions of the app. Of 840 posts analyzed, 115 (14 %) were coded as eliciting social support and 433 (52 %) as providing social support. Messages providing support were predominantly emotional (41 %), followed by network (27 %), esteem (24 %), informational (18 %), and instrumental (2 %) support. Participants perceived connection and support as key benefits of the app. Technical issues and interpersonal barriers limited some participants in fully using the app. Mobile technology offers a useful tool to reach populations with barriers to in-person support and may improve care for PLWH.

Entities:  

Keywords:  HIV/AIDS; Mobile app; Online support group; Social support

Mesh:

Year:  2017        PMID: 27766448     DOI: 10.1007/s10461-016-1587-3

Source DB:  PubMed          Journal:  AIDS Behav        ISSN: 1090-7165


  24 in total

Review 1.  Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.

Authors:  Celia B Fisher; Elise Bragard; Rachel Bloom
Journal:  Curr HIV/AIDS Rep       Date:  2020-06       Impact factor: 5.071

Review 2.  Pediatric Human Immunodeficiency Virus Continuum of Care: A Concise Review of Evidence-Based Practice.

Authors:  Megan E Gray; Phillip Nieburg; Rebecca Dillingham
Journal:  Pediatr Clin North Am       Date:  2017-08       Impact factor: 3.278

3.  Improving HIV Care Engagement in the South from the Patient and Provider Perspective: The Role of Stigma, Social Support, and Shared Decision-Making.

Authors:  Barbara S Taylor; Laura Fornos; Jesse Tarbutton; Jana Muñoz; Julie A Saber; Delia Bullock; Roberto Villarreal; Ank E Nijhawan
Journal:  AIDS Patient Care STDS       Date:  2018-09       Impact factor: 5.078

4.  Brief report: HIV-related healthcare stigma/discrimination and unmet needs among persons living with HIV in England and Wales.

Authors:  John Mark Wiginton; Jessica L Maksut; Sarah M Murray; Jura L Augustinavicius; Meaghan Kall; Valerie Delpech; Stefan D Baral
Journal:  Prev Med Rep       Date:  2021-10-03

5.  Virtual voices: examining social support exchanged through participant-generated and unmoderated content in a mobile intervention to improve HIV antiretroviral therapy adherence among GBMSM.

Authors:  Christina J Sun; Thembekile Shato; Ashlynn Steinbaugh; Sharanya Pradeep; K Rivet Amico; Keith Horvath
Journal:  AIDS Care       Date:  2022-02-13

6.  Media representation, perception and stigmatisation of race, sexuality and HIV among young black gay and bisexual men.

Authors:  Gregory Sallabank; Natalie A Blackburn; Megan Threats; Deren V Pulley; Megan C Barry; Sara LeGrand; Gary W Harper; José A Bauermeister; Lisa B Hightow-Weidman; Kathryn E Muessig
Journal:  Cult Health Sex       Date:  2021-12-12

7.  Patients as research partners; how to value their perceptions, contribution and labor?

Authors:  Elise Smith; Jean-Chrisophe Bélisle-Pipon; David Resnik
Journal:  Citiz Sci       Date:  2019-03-08

Review 8.  Peer Group Focused eHealth Strategies to Promote HIV Prevention, Testing, and Care Engagement.

Authors:  Keshet Ronen; Eli Grant; Charles Copley; Tara Batista; Brandon L Guthrie
Journal:  Curr HIV/AIDS Rep       Date:  2020-10       Impact factor: 5.071

9.  Associations Between Influencing Factors, Perceived Symptom Burden, and Perceived Overall Function Among Adults Living With HIV.

Authors:  Joan N Chukwurah; Joachim Voss; Susan R Mazanec; Ann Avery; Allison Webel
Journal:  J Assoc Nurses AIDS Care       Date:  2020 May-Jun       Impact factor: 1.354

10.  Brief Report: Understanding Preferences for HIV Care Among Patients Experiencing Homelessness or Unstable Housing: A Discrete Choice Experiment.

Authors:  Madellena Conte; Ingrid Eshun-Wilson; Elvin Geng; Elizabeth Imbert; Matthew D Hickey; Diane Havlir; Monica Gandhi; Angelo Clemenzi-Allen
Journal:  J Acquir Immune Defic Syndr       Date:  2020-12-01       Impact factor: 3.771

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