Literature DB >> 27753612

Visioning change: Co-producing a model of involvement and engagement in research (Innovative Practice).

Caroline M Swarbrick1, Open Doors2, Katie Davis1, John Keady3.   

Abstract

The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.

Entities:  

Keywords:  co-production; co-research; dementia; engagement; involvement

Year:  2016        PMID: 27753612     DOI: 10.1177/1471301216674559

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  12 in total

1.  Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer's and Dementia Research.

Authors:  Clark Benson; Amanda Friz; Shannon Mullen; Laura Block; Andrea Gilmore-Bykovskyi
Journal:  J Empir Res Hum Res Ethics       Date:  2020-11-26       Impact factor: 1.742

Review 2.  Partnering with frail or seriously ill patients in research: a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Wendy Gifford; Josee Lavoie; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2020-09-11

3.  What is important to people living with dementia?: the 'long-list' of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions.

Authors:  Andrew J E Harding; Hazel Morbey; Faraz Ahmed; Carol Opdebeeck; Reena Lasrado; Paula R Williamson; Caroline Swarbrick; Iracema Leroi; David Challis; Ingrid Hellstrom; Alistair Burns; John Keady; Siobhan T Reilly
Journal:  BMC Geriatr       Date:  2019-03-27       Impact factor: 3.921

4.  Public involvement in the dissemination of the North West Coast Household Health Survey: Experiences and lessons of co-producing research together.

Authors:  Clarissa Giebel; Shaima Hassan; Jason C McIntyre; Rhiannon Corcoran; Ben Barr; Mark Gabbay; Jennifer Downing; Terence Comerford; Ana Alfirevic
Journal:  Health Expect       Date:  2019-07-29       Impact factor: 3.377

Review 5.  Patient and public involvement in dementia research in the European Union: a scoping review.

Authors:  Jahanara Miah; Piers Dawes; Steven Edwards; Iracema Leroi; Bella Starling; Suzanne Parsons
Journal:  BMC Geriatr       Date:  2019-08-14       Impact factor: 3.921

6.  Young onset dementia: Public involvement in co-designing community-based support.

Authors:  Andrea M Mayrhofer; Elspeth Mathie; Jane McKeown; Claire Goodman; Lisa Irvine; Natalie Hall; Michael Walker
Journal:  Dementia (London)       Date:  2018-08-19

7.  Engaging multi-stakeholder perspectives to identify dementia care research priorities.

Authors:  Neela K Patel; Sara S Masoud; Kylie Meyer; Angelica V Davila; Sheran Rivette; Ashlie A Glassner; Deborah James; Carole L White
Journal:  J Patient Rep Outcomes       Date:  2021-06-22

8.  Receiving a diagnosis of young onset dementia: Evidence-based statements to inform best practice.

Authors:  Mary O'Malley; Jacqueline Parkes; Jackie Campbell; Vasileios Stamou; Jenny LaFontaine; Jan R Oyebode; Janet Carter
Journal:  Dementia (London)       Date:  2020-10-30

9.  Tea, talk and technology: patient and public involvement to improve connected health 'wearables' research in dementia.

Authors:  Lamiece Hassan; Caroline Swarbrick; Caroline Sanders; Angela Parker; Matt Machin; Mary P Tully; John Ainsworth
Journal:  Res Involv Engagem       Date:  2017-08-01

10.  Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN): a mixed-methods study protocol.

Authors:  Faraz Ahmed; Hazel Morbey; Andrew Harding; David Reeves; Caroline Swarbrick; Linda Davies; Mark Hann; Fiona Holland; Ruth Elvish; Iracema Leroi; Simon Burrow; Alistair Burns; John Keady; Siobhan Reilly
Journal:  BMJ Open       Date:  2020-01-14       Impact factor: 2.692

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.