Arthur Kavanaugh1, Philip Helliwell2, Christopher T Ritchlin3. 1. University of California, San Diego, School of Medicine, La Jolla, CA, USA. akavanaugh@ucsd.edu. 2. Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK. 3. University of Rochester, School of Medicine and Dentistry, Rochester, University of Rochester Medical Center, Rochester, NY, USA.
Abstract
INTRODUCTION: Psoriatic arthritis (PsA) is underdiagnosed and has a substantial impact on quality of life, disability, and work productivity. The population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis (MAPP) survey examined the impact of PsA on patients' activities of daily living and unmet treatment needs. METHODS: This large-scale, random digit dialing, telephone survey of patients self-reporting a diagnosis of psoriasis and/or PsA was conducted in North America and Europe. RESULTS: In all, 3426 patients participated in the survey, including 712 (21%) who identified themselves as having PsA. Over half of the patients reported severe PsA involving more than four joints. Eighty-three percent of patients with PsA visited a health-care provider within the past 12 months. Approximately one-quarter saw their primary care provider or dermatologist most often for their disease; 37% responded that their rheumatologist was the health-care provider seen most often for PsA. Patients with PsA reported a substantial impact of disease on physical function. One-third of patients with PsA reported missing work because of their disease and PsA impacted their ability to work full time. Over half of the patients with PsA (58%) reported receiving no treatment or topical therapy only, leaving their joint disease untreated. Factors associated with lack of adherence were perceived lack of efficacy and concerns about long-term safety. CONCLUSIONS: The MAPP survey confirms that PsA has a significant impact on physical function and activities of daily living. Undertreatment of PsA suggests a need for improved screening and diagnosis as well as education about treatment options and adherence. FUNDING: Celgene Corporation.
INTRODUCTION:Psoriatic arthritis (PsA) is underdiagnosed and has a substantial impact on quality of life, disability, and work productivity. The population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis (MAPP) survey examined the impact of PsA on patients' activities of daily living and unmet treatment needs. METHODS: This large-scale, random digit dialing, telephone survey of patients self-reporting a diagnosis of psoriasis and/or PsA was conducted in North America and Europe. RESULTS: In all, 3426 patients participated in the survey, including 712 (21%) who identified themselves as having PsA. Over half of the patients reported severe PsA involving more than four joints. Eighty-three percent of patients with PsA visited a health-care provider within the past 12 months. Approximately one-quarter saw their primary care provider or dermatologist most often for their disease; 37% responded that their rheumatologist was the health-care provider seen most often for PsA. Patients with PsA reported a substantial impact of disease on physical function. One-third of patients with PsA reported missing work because of their disease and PsA impacted their ability to work full time. Over half of the patients with PsA (58%) reported receiving no treatment or topical therapy only, leaving their joint disease untreated. Factors associated with lack of adherence were perceived lack of efficacy and concerns about long-term safety. CONCLUSIONS: The MAPP survey confirms that PsA has a significant impact on physical function and activities of daily living. Undertreatment of PsA suggests a need for improved screening and diagnosis as well as education about treatment options and adherence. FUNDING: Celgene Corporation.
Entities:
Keywords:
Burden of illness; Health survey; Psoriatic arthritis; Quality of life; Questionnaires; Treatment
Authors: Philip Helliwell; Laura Coates; Vinod Chandran; Dafna Gladman; Maarten de Wit; Oliver FitzGerald; Arthur Kavanaugh; Vibeke Strand; Philip J Mease; Wolf-Henning Boehncke; Richard G Langley; Ennio Lubrano; Mara Maccarone; Hendrik Schulze-Koops; Corinne Miceli-Richard; Ruben Queiro Journal: Arthritis Care Res (Hoboken) Date: 2014-12 Impact factor: 4.794
Authors: Mariana Garcia-Leal; Mayra A Reyes-Soto; Ivan Hernandez-Galarza; Neri A Alvarez-Villalobos; Dionicio A Galarza-Delgado; Diana E Flores-Alvarado Journal: Clin Rheumatol Date: 2021-02-12 Impact factor: 2.980